The "PSC Partners Seeking a Cure" foundation held its first annual conference in Denver, Colorado from April 29 - May 1, 2005.

When: April 29, 2005 (5:00 PM) - May 1, 2005 (Noon)

Where: Grand Hyatt Denver [http://granddenver.hyatt.com/property/index.jhtml]

1750 Welton Street
Denver, Colorado
80202 USA


[Click here to see Maps of Conference Location]

Conference Attendance:

The Conference was a huge success, and was attended by 82 people from 21 different states in the U.S.A., England and Canada.

• Photos from PSC Support Group Members in Portable Document Format (.pdf) (Copyright 2005 David Rhodes. All rights reserved.)

Arne Myrabo has kindly compiled digital photographs taken by himself at the conference, or kindly sent in by various conference attendees (see: Photo Gallery).

Note to Readers:

PSC Partners does not provide specific medical advice, is not engaged in providing medical or professional services and does not endorse any medical or professional service obtained through information provided on this CD. Use of this CD does not replace medical consultations with a qualified health or medical professional to meet the health and medical needs of you or a loved one.

Agenda:

Friday, April 29, 2005:
• 5:30 PM - 7:30 PM Reception; Welcoming Remarks (Don and Ricky Safer; PSC Support Group)
• 7:30 PM Dinner on your own (a list of restaurants within walking distance was provided)

Saturday, April 30, 2005:

• 7:00 AM - 8:00 AM Continental Breakfast
• 8:00 AM - 8:15 AM Opening Remarks (Don Safer and Arne Myrabo; PSC Support Group)
  • Conference Handout in Portable Document Format (.pdf) (Copyright 2005 Ricky Safer. All rights reserved.)
  • Arne Myrabo Introductory Remarks in Portable Document Format (.pdf) (Copyright 2005 Arne Myrabo. All rights reserved.)
• 8:15 AM - 10:00 AM
  • Dr. Gregory T. Everson (Introduction to PSC: The Top Ten Clinical Issues for Patients and Families) 20 minute talk
    • Gregory Everson Presentation in Portable Document Format (.pdf) (Copyright 2005 Dr. Gregory Everson. All rights reserved.)
  • Dr. James F. Trotter (Non-Surgical Management of PSC) 20 minute talk
    • James Trotter Presentation in Portable Document Format (.pdf) (Copyright 2005 Dr. James Trotter. All rights reserved.)
  • Dr. Joel Levine (IBD in Patients with PSC) 20 minute talk
    • Joel Levine Presentation in Portable Document Format (.pdf) (Copyright 2005 Dr. Joel Levine. All rights reserved.)
  • Panel (Dr. Everson, Dr. Trotter, Dr. Levine) Q and A for 45 minutes
• 10:00 AM - 10:15 AM Break/snacks
• 10:15 AM - 12:00 Noon
  • Dr. Igal Kam (Transplantation for PSC) 20 minutes
    • Igal Kam Presentation in Portable Document Format (.pdf) (Copyright 2005 Dr. Igal Kam. All rights reserved.)
  • Dr. Lisa Forman (Post-Transplant Issues) 20 minutes
    • Lisa Forman Presentation in Portable Document Format (.pdf) (Copyright 2005 Dr. Lisa Forman. All rights reserved.)
  • Chris Klug (To the Edge and Back: My Story from Organ Transplant Survivor to Olympic Snowboarder) 20 minutes
    We are very sorry, but we do not have a transcript of Chris Klug's talk
  • Panel (Dr. Kam, Dr. Forman, Chris) Q and A for 45 minutes
• 12:00 Noon - 1:15 PM Box Lunch
• 1:15 PM - 2:30 PM
  • Dr. Lisa Corbin (CAM Therapies) 20 minute talk
    • Lisa Corbin Presentation in Portable Document Format (.pdf) (Copyright 2005 Dr. Lisa Corbin. All rights reserved.)
    • General Reference List (.pdf) (Copyright 2005 Dr. Lisa Corbin. All rights reserved.)
  • Georgeane Vigue (Nutrition and Supplements) 20 minute talk
    • Georgeane Vigue Presentation in Portable Document Format (.pdf) (Copyright 2005 Georgeane Vigue. All rights reserved.)
  • Panel (Dr. Corbin and Georgeane) Q and A for 35 minutes
• 2:30 PM - 3:15 PM Marlene Murphy (Overview of Donor Awareness)
  • Marlene Murphy Presentation in Portable Document Format (.pdf) (Copyright 2005 Marlene Murphy. All rights reserved.)
• 3:15 PM - 3:30 PM Break/snacks
• 3:30 PM - 5:00 PM
  • David Rhodes (PSC: Perspectives from a Care-Giver) 20 minute talk
    • David Rhodes Presentation in Portable Document Format (.pdf) (Copyright 2005 David Rhodes. All rights reserved.)
  • Dr. Aubrey Goldstein (PSC: Perspectives from a Transplant Recipient and M.D.) 20 minute talk
    We are very sorry, but we do not have a transcript of Aubrey's talk
  • Panel (David and Aubrey) Q and A for 30 minutes
• 5:00 PM Dinner

Sunday, May 1, 2005:

• 7:00 AM - 8:00 AM Continental Breakfast
• 8:00 AM - 10:00 AM Round-Table Discussions (Funding Opportunities and Challenges; Discussion Leaders - Lee Bria and David Rhodes (PSC Support Group))
• 10:00 AM - 10:15 AM Coffee Break/Snacks
• 10:15 AM - 12:00 Noon Round-Table Discussions (Education, Support, Increasing Donor Awareness; Discussion Leaders - Ricky Safer and Lee Bria (PSC Support Group))
• 12:15 PM Adjourn

Gregory T. Everson, M.D. ¹
Professor of Medicine
Director of Hepatology

James F. Trotter, M.D. ¹
Associate Professor of Medicine
Associate Medical Director of Liver Transplantation

Joel Levine, M.D. ¹
Professor of Medicine
Interim Division Head

Igal Kam, M.D. ²
Professor of Surgery
Chief of Division of Transplant Surgery

Lisa Forman, M.D. ¹
Assistant Professor of Medicine
Associate Director of Gastroenterology and Hepatology Training Program

¹ Division of Gastroenterology and Hepatology, Department of Medicine, University of Colorado Health Sciences Center (USHSC), Denver, CO
² Department of Surgery, University of Colorado Health Sciences Center, Denver CO

Chris Klug
Professional Snowboarder, Olympic Medal Winner, Liver Transplant Recipient, and Author

Lisa Corbin, M.D.
Medical Director, The Center for Integrative Medicine, University of Colorado Hospital, Denver, CO

Georgeane Vigue RD, CNSD
Clinical Dietitian at University of Colorado Hospital, Denver, CO

Marlene Murphy
Executive Director of the Donor Awareness Council, Denver, CO

David Rhodes (PSC Support Group)
Professor, Department of Horticulture and Landscape Architecture, Purdue University, West Lafayette, IN

Aubrey Goldstein, M.D. (PSC Support Group member)
Chronic Care Physician,
St. Vincents Hospital Ottawa,
Canada

Sponsors:

• Axcan Pharma [Gold level sponsor]
• Procter and Gamble [Copper level sponsor]
• Salix Pharmaceuticals [Copper level sponsor]
• Don and Ricky Safer [Silver level sponsor]
• Citi Cards [Bronze level sponsor]
• Jon Shapiro [Bronze level sponsor]
• Jason Drasner [Copper level sponsor]
• University of Colorado Health Sciences Center (UCHSC), Denver CO
• members of the PSC Support Group
  • Sponsors: Portable Document Format (.pdf) (Copyright 2005 Ricky Safer. All rights reserved.)