Working together to provide research, education,

and support for people affected by Primary Sclerosing Cholangitis

 

CONFERENCE FOR PATIENTS AND CAREGIVERS

April 29 - May 1, 2011

Sheraton Grand Sacramento, Sacramento, CA

We'd like to thank the physicians at the UC Davis School of Medicine, especially Dr. Christopher L. Bowlus and his colleagues, who have worked closely with us in planning the conference.  Many thanks as well to all our wonderful speakers who have broadened our perspectives and understanding of PSC. We are also indebted to our conference sponsors:

 

Platinum level sponsors

Anonymous Donor

Illinois Tool Works

Dike & Rilee Ajiri

Gold level sponsors

Don and Ricky Safer

Silver level sponsors

Stephen and Joanne Hatchett

Ken and Patty Shepherd

Jeff and Reggie Belmont

Jason and Jennifer Drasner

Division of Gastroenterology and Hepatology, University of California Davis

Global Treatment Options

Bronze level sponsors

Jennifer Soloway and Mark Stivers 

Genentech

Shire

Peter Holmgren Family

We also thank all those members of the PSC support group, and their family, friends and caregivers, who have generously donated their time and funds to the PSC Partners Seeking a Cure foundation.

PSC Partners Seeking a Cure is a 501(c) 3 nonprofit foundation that endeavors to find a cure for primary sclerosing cholangitis. Please see the details of our 2011 patient education conference by viewing the PowerPoint presentations which are posted here. Summaries of the breakout sessions will be available in our post-conference newsletter edition. For more information about PSC Partners Seeking a Cure, go to www.pscpartners.org and click on “Join our Mailing List” button to receive news and information.

Photograph acknowledgements to Karen Pearlman, (K Pearlman Photography) and Arne Myrabo.

Note to Readers:

PSC Partners does not provide specific medical advice, is not engaged in providing medical or professional services and does not endorse any medical or professional service obtained through information provided in this presentation.  Use of this presentation does not replace medical consultations with a qualified health or medical professional to meet the health and medical needs of you or a loved one.

A complete listing of the conference photographs by Karen Pearlman is available at kpearlmanphotography.com

FRIDAY April 29, Pre-conference Event (click to see photos)

10:30AM-12:30PM

Informal brunch at the State Capitol Building:

Optional Afternoon Activities

Healthy Living Perspectives: Nutrition, Exercise and Alternative Therapies Introduction

Integrated Chinese Medicine and PSC: Accessing the Best of East and West

Misha Ruth Cohen, OMD

Doctor of Oriental Medicine, Licensed Acupuncturist, Research Specialist, University of California San Francisco

The Value of Eating Organically: Shawn Harrison, Executive Director of Soil Born Farms

Karen Klussendorf: Yoga - stress relief and relaxation

Kinetics for PSCers: Exercise Considerations for People with Primary Sclerosing Cholangitis

Julianne Vasichek & Cameron Wohl

Organic Cooking Demonstration: Patrick Mulvaney of award-winning Sacramento Mulvaney’s B & L Restaurant

Hints for Gluten Free Eating by Melanie Weir of Gluten Free Specialty Store, and others

Home Health: Cindy Campbell RN, BSN Fazzi Associates, Inc.

 

Registration:

Welcome Reception:

SATURDAY April 30, Day 1 (click to see presentation/enlarged photo)

Buffet Breakfast

SESSION I Carlo Selmi, MD, PhD, Moderator - Department of Translational Medicine, University of Milan Assistant Professor of Medicine Division of Rheumatology, Allergy and Clinical Immunology University of California Davis

Presentation 1: "Introduction to PSC"  [Copyright Christopher L. Bowlus, all rights reserved, 758KB]. Christopher L. Bowlus, MD - Associate Professor, Division of Gastroenterology and Hepatology, University of California Davis

Presentation 2: "Urso – Pro vs Con "

Pro [Copyright Gideon Hirschfield, all rights reserved, 1345KB] Gideon Hirschfield, MD, PhD Assistant Professor of Medicine, University of Toronto, Staff Hepatologist, Liver Centre, Toronto Western Hospital

Con [Copyright Marion Peters, all rights reserved, 201KB] Marion Peters, MD Professor of Medicine, Chief of Hepatology Research, Division of Gastroenterology, University of California San Francisco

Presentation 3: "Managing PSC Symptoms" [Copyright Natalie Torok, all rights reserved, 246 KB]. Natalie Torok, MD, Associate Clinical Professor, Division of Gastroenterology and Hepatology, University of California Davis

Questions and Answers Panel: Drs. Selmi, Bowlus, Hirschfield, Peters and Torok
  SESSION II Christopher L. Bowlus, MD, Moderator

Presentation 4: PSC Partners Research Grants Overview

David Rhodes, PhD, Purdue University Chair, PSC Partners Scientific/Medical Advisory Committee

Stephen Miller, MD, PSC Partners Scientific/Medical Advisory Committee

Presentation 5: "PSC Immunology: Lessons to be Learned from PBC". [Copyright Eric Gershwin all rights reserved, 1719KB]. Eric Gershwin, MD, Distinguished Professor of Medicine, The Jack and Donald Chia Professor of Medicine Division of Rheumatology, Allergy and Clinical Immunology, University of California Davis

Presentation 6: "New PSC Genes – What Should We Do With Them?" [Copyright Espen Melum all rights reserved, 1683KB]. Espen Melum, MD, PhD Postdoctoral Researcher Norwegian PSC Research Center Clinic for Specialized Medicine and Surgery Oslo University Hospital Rikshospitalet

Questions and Answers Panel: Drs. Bowlus, Rhodes, Miller, Gershwin and Melum

Lunch

Breakout Sessions - Session I:

"IBD Management in PSC" [Copyright Sooraj Tejaswi all rights reserved, 5390KB] Sooraj Tejaswi, MD, MSPH Assistant Clinical Professor Division of Gastroenterology and Hepatology University of California Davis

"Pre-Transplantation and the MELD Score" [Copyright Maurizio Bonacini all rights reserved, 1765KB] Maurizio Bonacini, MD Department of Liver Disease Management and Transplant California Pacific Medical Center Associate Professor of Clinical Medicine University of California San Francisco

"Interpreting Your Blood Tests" [Copyright Christopher L Bowlus, all rights reserved, 35KB] Christopher L. Bowlus, MD, University of California Davis

"The Role of ERCP in PSC" [Copyright James Ostroff all rights reserved, 7631KB] James Ostroff, MD, FAGA Lynne & Marc Benioff Endowed Chair Kenneth Rainin Distinguished Professor Professor of Medicine, Pediatrics and Radiology Director Endoscopy Unit and GI Consultation Service University of California San Francisco

"Special Topics for Post-Transplant PSCers" Aubrey Goldstein, MD PSC Post-Transplant Patient PSC Partners Scientific/Medical Advisory Committee

"Ask a Chef: Natural Cuisine for Healthy Cooking" [Copyright Russell Michel all rights reserved, 366KB] Russell Michel, Executive Chef, Sheraton Grand Hotel Sacramento Winner, 2010 Sacramento Celebrity Chef Challenge Fox 40 Live “Ask a Chef

"Liver Transplantation for PSC"  [Copyright John McVicar all rights reserved, 2955KB] John McVicar, MD Professor, Department of Surgery University of California Davis School of Medicine

Breakout Sessions - Session II:

"IBD Management in PSC"  [Copyright Sooraj Tejaswi all rights reserved, 5390KB] Sooraj Tejaswi, MD, MSPH Assistant Clinical Professor Division of Gastroenterology and Hepatology University of California Davis

"Coping for PSCers: Making Your Life More than PSC"  [Copyright Philip Burke all rights reserved, 252KB] Philip Burke, PhD, PSC Patient and Clinical Psychologist, Assistant Professor, Department of Psychology Southern Illinois University at Carbondale

"Pediatric PSC and Potential Therapies"  [Copyright Philip Rosenthal all rights reserved, 1054KB] Philip Rosenthal, MD Professor of Pediatrics & Surgery Medical Director, Pediatric Liver Transplant Program Director, Pediatric Hepatology University of California San Francisco

"An Overview of Disability Law" Becky Long, PSC Partners Board Member and Legal Counsel

"Screening and Treatments for Cholangiocarcinoma"  [Copyright Carlo Selmi all rights reserved, 793KB] Carlo Selmi, MD, PhD University of Milan and University of California Davis

"Practical Considerations Before Transplant Panel of Post-Transplant PSC Patients and Caregivers" Moderator: Joanne Grieme Panelists: David Abbinanti, Alison Collins, Jo-Ann Collins, Tom Butler

Breakout Sessions - Session III:

"Caregivers: Helping Us Help Others Panel of PSC Caregivers" Moderator: Mike Pearlman Panelists: Joanne Grieme, Eve Jedrzejewska, Scott Malat, Karen Pearlman, Caroline Vanneste

"Medical Therapies on the Horizon"  [Copyright Bowlus, Selmi, Hirschfield, Melum and Zern - all rights reserved, 2650KB] Drs. Bowlus, Selmi, Hirschfield, Melum and Zern. Mark A. Zern, MD Professor of Medicine, Division of Gastroenterology and Hepatology Director Transplant Research Institute, University of California Davis

"The Effects of Diet on Inflammation"  [Copyright Charles Stephensen all rights reserved, 1642 KB] Charles Stephensen, PhD, Adjunct Professor Department of Nutrition, University of California Davis USDA ARS Western Human Nutrition Research Center Scientist

"Special Topics for 20s/30s PSCers" Valentina Medici, MD Division of Gastroenterology and Hepatology University of California Davis, Drew Ingram, MD Fellow, Division of Gastroenterology and Hepatology University of California Davis

"Financial and Insurance Considerations for Transplant"  [Copyright Christina Allman all rights reserved, 1335KB] Christina Allman Financial Coordinator Supervisor, Transplant Program University of California Davis

Wrap-up, Don and Ricky Safer

Banquet Dinner

SUNDAY MAY 1, Day 2

 Continental Breakfast 

Breakout sessions:

College Age PSCers and Teenaged PSCers

Female PSCers in their 20s/30s

Male PSCers in their 20s/30s

Female PSCers

Male PSCers

Post-Transplant PSCers

Parents of Pediatric PSCers

Parents of Adult PSCers

Spouses/Caregivers of PSCers

Siblings & Other Caregivers of PSCers

 Break/snacks

 

Closing Remarks - Ricky Safer, PSC Partners Seeking a Cure