PSC Partners Ten Year Anniversary Logo

Working together to provide research, education,

and support for people affected by Primary Sclerosing Cholangitis

 

ANNUAL CONFERENCE FOR PATIENTS AND CAREGIVERS

April 25-27, 2014

In conjunction with the University of Colorado Hospital
at the
Hyatt Regency Denver Tech Center, Denver, CO

Click to view the conference agenda

Thank you to Drs. Greg Everson and Lisa Forman and their colleagues for providing the excellent speakers who have broadened our perspectives and understanding of PSC. Our thanks to the University of Colorado Hospital, our 2014 conference Platinum Sponsor and ITW our Diamond Sponsor.  We are also indebted to all our conference sponsors:

Diamond Sponsors

Illinois Tool Works

 

Platinum Sponsors

University of Colorado Hospital

Intracept Pharma

Lumena Pharmaceuticals

Gold level sponsors

John and Chris Browner Family
Abe and Rachel Gomel
The Grover Family Foundation - Deborah Grover Wente
Axel and Karyn Rasmussen
Don and Ricky Safer
Ken and Patty Shepherd

Toyota Motor Sales

 

Gilead Pharmaceutical

Silver level sponsors

Ruth and Doron Blatt
Jason and Jennifer Drasner
Steve and Joanne Hatchett
Fred Sabernick
VSL #3

Bronze level sponsors

Jeff and Reggie Belmont
Aubrey Goldstein and Caroline Vanneste
Peter and Helena Holmgren
Allan and Karen Luks
Brett and Becky Narlinger
The Pearlman Family

Thanks also to our In-kind Conference Sponsors:

Apothecary Products, Inc.
Deep River Snacks
4imprint
David and Roz Parry
Soothing Scents
Visit Denver
Jeff and Reggie Belmont
Donate Life
Jel-Sert
Purell
UNOS

Red Rocks Park Group Photo

We also thank all the members of our community who have generously donated their time and funds to the PSC Partners Seeking a Cure foundation.

PSC Partners Seeking a Cure is a 501(c) 3 nonprofit foundation that endeavors to find a cure for primary sclerosing cholangitis. For more information about PSC Partners Seeking a Cure, go to  www.pscpartners.org and click on “Join our Mailing List” button to receive news and information.

Photograph acknowledgements to Karen Pearlman, (K Pearlman PhotographyK Pearlman Photography), unless otherwise stated. A slide show of conference photographs by K Pearlman Photography is available here.

Additional conference photographs by Kelly J. Shepherd Photography are available here.

Note to Readers:

PSC Partners does not provide specific medical advice, is not engaged in providing medical or professional services and does not endorse any medical or professional service obtained through information provided in this presentation.  Use of this presentation does not replace medical consultations with a qualified health or medical professional to meet the health and medical needs of you or a loved one.

Thursday, April 24

6:00 PM - 9:00 PM Casual Get Together - GARCIA'S MEXICAN RESTAURANT

    Garcia's Mexican Restaurant Photo     Garcia's Mexican Restaurant Photo     Garcia's Mexican Restaurant Photo

FRIDAY April 25

Pre-conference Brunch Trip - RED ROCKS PARK

   Red Rocks Park Photo     Red Rocks Park Brunch Photo     Red Rocks Park Photo

Afternoon Activity - PRESENTATION:TO THE EDGE AND BACK, CHRIS KLUG, WWW.CHRISKLUG.COM

    Chris Klug Presentation Photo      Chris Klug Presentation Photo    Chris Klug Presentation Photo

Dinner Reception and Entertainment

  Friday Dinner Photo  Friday Dinner Photo      Friday Dinner Photo    Friday Dinner Photo

SATURDAY April 26 

Buffet Breakfast

Saturday Breakfast Photo   Saturday Breakfast Photo   

General Sessions (Morning/Afternoon)
(click title to see presentation if available, click the Audio link symbol for an audio recording.  Note that due to the size of some presentation and/or audio files they may take considerable time to download before opening)
Click here to see detailed speaker bios

Hugh P. Rosen Photo

SESSION I  Hugo P. Rosen, MD, FACP, Moderator
Professor of Medicine and Immunology, University of Colorado Hospital

Greg Everson Photo

Presentation 1: "Current Perspectives in the Treatment and Management of PSC" Link to audio [Copyright Greg Everson, all rights reserved, 4139 KB].
Greg Everson, MD, 2014 Conference Medical Chair, Director of Hepatology Division of Gastroenterology and Hepatology, University of Colorado Hospital

Raj J. Shah Photo

Presentation 2: "Evaluation and Management of Strictures in PSC Using ERCPLink to audio  [Copyright Raj Shah, all rights reserved, 2869 KB].
Raj. J. Shah, MD, FASGE, AGAF, Associate Professor of Medicine, Director, Pancreaticobiliary Endoscopy Services, Medical Co-Director, Digestive Health Center, University of Colorado Hospital

Michael Wachs Photo

Presentation 3: "Liver Transplantation for PSC" Link to audio [Copyright Michael Wachs, all rights reserved, 20103 KB].
Michael Wachs, MD, Professor of Medicine, Division of Transplant Surgery, University of Colorado Denver

Panel Photo

Questions and Answers Panel: Drs. Everson, Shah and Wachs Link to audio
   

Greg Everson Photo

SESSION II  Greg Everson, MD, Moderator
2014 Conference Medical Chair, Director of Hepatology Division of Gastroenterology and Hepatology, University of Colorado Hospital

Paul D. Russ Photo

Presentation 4: "Radiological Imaging - CT and MRI in PSC"  
Paul D. Russ, MD, FACR, Professor, University of Colorado, School of Medicine

Tom Hemming Karlsen Photo

Presentation 5: "What Have We Learned from Genome Wide Association Studies in PSC" Link to audio [Copyright Tom Hemming Karlsen, all rights reserved, 9425 KB]  
Tom Hemming Karlsen, MD, PhD in Genetics, Professor of Gastroenterology, Norwegian PSC Research Center, Clinic for Specialized Medicine and Surgery, Oslo University Hospital Rikshospitalet, Oslo, Norway

Rob Knight Photo

Presentation 6: "Towards a Pipeline for Personalized Medicine Based on the Human MicrobiomeLink to audio [Copyright Rob Knight, all rights reserved, 83012 KB]
Rob Knight, PhD, Professor, Howard Hughes Medical Institute: Professor, Department of Chemistry and Biochemistry, Computer Science, Biofrontiers Institute, University of Colorado, Boulder

Panel Photo

Questions and Answers Panel: Drs. Russ, Karlsen and Knight Link to audio

Breakout Sessions:

Igal Kam Photo

"Living Donor Transplantation (LDLT) for PSC"
Igal Kam, MD, Chief of Transplant Surgery, Professor of Surgery, University of Colorado School of Medicine

Tom Hemming Karlsen Photo

"Norwegian Studies Measuring Disease Activity in PSC" Link to audio
Tom Hemming Karlsen, MD, MD, PhD in Genetics, Professor of Gastroenterology, Norwegian PSC Research Center, Clinic for Specialized Medicine and Surgery, Oslo University Hospital Rikshospitalet, Oslo, Norway

Michael Narkewicz Photo

"Pediatric PSC: Similarities and Differences Compared to Adult PSC" [Copyright Michael Narkewicz, all rights reserved, 610 KB]
Michael Narkewicz, Hewit Andrews Chair in Pediatric Liver Disease, Professor of Pediatrics, Section of Pediatric Gastroenterology, Hepatology and Nutrition, University of Colorado School of Medicine, Associate Dean of Clinical Affairs

Tom Purcell Photo

"Diagnosis and Management of Liver and Bile Duct Cancer [Copyright Tom Purcell, all rights reserved, 3280 KB]
 Tom Purcell, MD, MBA, Assistant Professor of Medicine, Division of Oncology, University of Colorado Denver, Associate Director, Clinical Services, University of Colorado Cancer Center, Executive Medical Director, Oncology Services, University of Colorado, Director, Oncology Service Line, UC Health

Micol Rothman Photo

"Bone Health in PSC"
Micol S. Rothman, MD, Associate Professor of Medicine and Radiology, Clinical Director Metabolic Bone Program, Endocrinology, Diabetes and Metabolism, University of Colorado Denver

Panel Photo

"How to Participate in a Clinical Trial"
Jennifer Desanto
, RN, Nurse Coordinator, University of Colorado Denver
Michael Cookson, Hally Isberg, Nick Pisciotta, Clinical Research Coordinators, Hepatology Research, University of Colorado Denver

Cara Mack Photo

"Teens: Every Question is Fair Game"
Cara Mack, Associate Professor of Pediatrics, Director of Pediatric Gastroenterology and Hepatology Fellowship Training Program, Section of Pediatric Gastroenterology, Hepatology and Nutrition, Children's Hospital Colorado

Panel Photo

"Panel of PSCers: Interactive Question and Answer Session"
Fred Sabernick, Post-Transplant PSCer, PSC Partners Board of Directors - Panel Moderator
Tim Wholey, Britt Moore, Laura Bradbury, Rick Seifert - Panelists.

Lisa Forman Photo

"The Basics of PSC" [Copyright Lisa Forman, all rights reserved, 9560 KB]
Lisa Forman, MD, MSCE Associate Professor of Medicine, Section of Hepatology, University of Colorado Denver
    Panel Photo "Further Discussion of the Human Microbiome" Link to audio
Rob Knight, PhD, Professor, Howard Hughes Medical Institute: Professor, Department of Chemistry and Biochemistry, Computer Science, Biofrontiers Institute, University of Colorado, Boulder
Tom Hemming Karlsen, MD, PhD in Genetics, Professor of Gastroenterology, Norwegian PSC Research Center, Clinic for Specialized Medicine and Surgery, Oslo University Hospital Rikshospitalet, Oslo, Norway

Cara Mack Photo

"New Potential Therapies for Pediatric PSC" [Copyright Cara Mack, all rights reserved, 758 KB]
Cara Mack, Associate Professor of Pediatrics, Director of Pediatric Gastroenterology and Hepatology Fellowship Training Program, Section of Pediatric Gastroenterology, Hepatology and Nutrition, Children's Hospital Colorado

Mark Gerich Photo Jon Vogel Photo

"IBD and PSC: Intergrated Medical and Surgical Care" [Copyright Mark Gerich and Jon Vogel, all rights reserved, 960 KB]
Mark Gerich
, MD, MBA, University of Colorado Hospital Crohn's and Colitis Center, Division of Gastroenterology and Hepatology, University of Colorado Denver

Jon Vogel, MD, Associate Professor of Surgery, Section Head Colorectal Surgery Program, University of Colorado Denver

James R. Burton Jr. Photo

"Managing Pruritus and Sleep Disorders" [Copyright all rights reserved, 807 KB]
James R. Burton, Jr
, MD, Associate Professor of Medicine, Division of Gastroenterology and Hepatology, Medical Director of Liver Transplantation, Program Director of Transplant Hepatology Fellowship, University of Colorado Denver

Stephen R. Freeman Photo

"Probiotics and Transference of the Fecal Microbiome as Therapies Copyright all rights reserved, 271 KB]
Stephen R. Freeman, MD, FACP, FACG, Associate Professor of Medicine, Division of Gastroenterology and Hepatology, Department of Medicine, Universtiy of Colorado Denver

Cami Tynan Photo

"Nutrition for PSC)" [Copyright all rights reserved, 439 KB]
Cami Tynan, MS, RD, CNSC, Clinical Dietitian, Transplant Nutrition Specialist, University
of Colorado Hospital

Panel Photo

"Panel - Planning for Transplant: Discussion of Social, Medical and Financial Issues"
Cathy Ray, BSN, MA, Panel Moderator, Lead Case Manager in Hepatology, University of Colorado Hospital, Jennifer Mays, Transplant Financial Case Coordinator, University of Colorado Hospital, Jenny Sanderson, LSW Liver Transplant Social Worker, University of Colorado Hospital

   Dan Feuerstein Photo "Teen Panel: Living Large with PSC" (special session for teens)
Dan Feuerstein, Young Adult Transplant Recipient
Panelist: Sam Wente
  Lisa Forman Photo"Interpreting Your Test Results" [Copyright all rights reserved, 11152 KB]
Lisa Forman, MD, MSCE, Associate Professor of Medicine, University of Colorado Denver

James R. Burton Jr. Photo

"Indications for Liver Transplantation" [Copyright all rights reserved 1988 KB]
James R. Burton, Jr
, MD, Associate Professor of Medicine, Division of Gastroenterology and Hepatology, Medical Director of Liver Transplantation, Program Director of Transplant Hepatology Fellowship, University of Colorado Denver

Blair Fennimore Photo

"Exciting Research in PSC and IBD at University of Colorado, Denver" Link to audio

"Research Projects in IBD" [Copyright all rights reserved, 2768 KB]
Blair Fennimore, MD, Assistant Professor of Medicine, Division of Gastroenterology and Hepatology, University of Colorado Hospital

"Measuring the Function of Your Liver" [Copyright all rights reserved, 144 KB]
Steve Helmke, PhD, Research Instructor, 
Division of Gastroenterology and Hepatology, University of Colorado School of Medicine

Panel Photo

"Panel - Transition: A Process from Pediatric to Adult Care of PSC"
Shihka Sundaram, MD, MSCI, Panel Moderator, Associate Professor of Pediatrics, University of Colorado Hospital, Jenny Sanderson, LSW Liver Transplant Social Worker, University of Colorado Hospital,
Catherine Clark, MS, RN, BSN, CNS, Liver and Intestine Transplant Coordinator, Children's Hospital Colorado

Panel Photo

"Caregivers: Helping Us Help Others" [Copyright all rights reserved 96 KB]
Mike Pearlman, JD, Parent Caregiver, Panel Moderator
Panelists: Monica Crowley, Richard Heys, Sofia Holmgren, Patricia Stolzfus

Jeremy Burke Photo

"Long Term Disability: Understanding Your Options and Benefits" [Copyright all rights reserved 1207 KB]
Jeremy Burke, DM, ALHC, Learning Consultant Aetna Disability Benefits

Panel Photo

"Panel - How to Navigate the Health Care System"
Tracy Steinberg, RN, MS, CNS, CCTC, Panel Moderator, Lead Transplant Coordinator, University of Colorado Hospital, Cathy Ray, BSN, MA, Lead Case Manager in Hepatology, University of Colorado Hospital, Annette McCoy, RN, BSN, CPN, Hepatology Nurse, Children's Hospital Colorado

Western Theme Banquet Dinner

Saturday Dinner Photo   Saturday Dinner Photo   Saturday Dinner Photo   Saturday Dinner Photo

Saturday Dinner Photo   Saturday Dinner Photo   Saturday Dinner Photo   Saturday Dinner Photo   Saturday Dinner Photo

SUNDAY April 27

 Continental Breakfast 

General Session

Announcements

PSC Partners Treasurer's Report

Foundation Updates

Breakout sessions:

Teen PSCers
Female  PSCers in their 20s/30s

Male PSCers in their 20s/30s

Female PSCers
Male PSCers

Post-Transplant PSCers

Parents of Pediatric PSCers (17 and under)

Parents of Young Adult PSCers (18-25 years old)

Parents of Adult PSCers (26 and up)

Spouses/Caregivers of PSCers

Siblings & Other Caregivers of PSCers  
Caregivers Coping with Loss & Carrying on the Spirit

Break/snacks

Group Session Feedback Presentations
Closing Remarks
- Ricky Safer, PSC Partners Seeking a Cure

 

April 24-26, 2015 : Dallas TX

   

HULK and TIRA want to see everyone at the PSC Partners 11th Annual Conference next year!

 

                       Hulk and Tira Photo