Primary Sclerosing Cholangitis (PSC) is a chronic, progressive and devastating autoimmune disease of the bile ducts that often leads to liver failure and the need for a liver transplant. Affecting thousands of people worldwide, PSC can strike anyone out of nowhere. The growing numbers of cases highlight the need for treatments and a desperately needed cure.
We’ve Come a Long Way
Momentum Toward Finding a Cure is Building
Help us keep the momentum going!
Donate to PSC Partners Seeking a Cure today!
Please VIEW these videos and SHARE them to help bring awareness and understanding of this devastating disease. Whether you are a PSCer, friend, family member or health professional, you can help us spread the word!
See more educational material including downloadable brochures by using the main menu above. Hover over the “Patients & Caregivers” text then select items from the “Education” sub-block as shown in the image below.
Share Information with Your Network
There are many ways to increase awareness for PSC. Help others become #PSCaware by learning how you can spread the word.
|WAYS TO INCREASE PSC AWARENESS|
|JOIN OUR MAILING LIST||JOIN THE REGISTRY!
Learn more about the registry
|Change your social media profiles using Twibbon !
|Replace your social media profile/cover photos with the PSC Awareness Logo!
Profile: Facebook Twitter Cover: Facebook Twitter
|Participate in our Story Contest: Share your story on Facebook or with us via email!||Have a game party: Gather your friends and solve these PSC word jumbles and searches|
|Take brochures to your local GI or hepatology clinics and share on social media or email us to let us know you shared them!||Share our PSC Awareness Week page or select videos with friends and family!||Do a science project on PSC: Contact us us for helpful resouces (videos, images, research, etc.) See if your classmates can conquer the the word jumble afterwards. Send us a picture of your display or with classmates!|
|Tweet something about PSC to your network!||Share this picture with your network!||Wear your PSC flair everywhere to promote awareness!|
|Show off your scar(s) to a stranger or trusted colleague!||Write a poem or sing a song about PSC and share it on social media or send via email . See this example by Rex S.!||Share a picture to show that while you have PSC, PSC does not have you!|
|Say thank you to groups that are helping folks with PSC this week!||Complete this questionnaire: “30 Things About My PSC You May Not Know“. Share the results with your social media network. The list can be completed by patients, caregivers, friends or relatives! [PDF Version]|
|Click on each photo to read a story from a PSC patient or caregiver!|
|Amanda’s Story||David’s Story|
|Heather’s Story||Jennifer and Kyle’s Story||Laura’s Story|
|Sandi’s Story||Tawny’s Story|