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PSC Partners Seeking a Cure

Blog



21st of March 2017

Writing: A Lifeline, by Laura Bradbury

As you may know, two years ago life served me up my mid-life crisis on a platter. It came in the form of a phone call from an insurance company who had just performed medical exams on Franck and I for life and disability insurance. “Ms. Bradbury?” the woman said. “I’m calling to inform you […]


16th of March 2017

From a Grandmother With PSC

Why me?  Unlike most of you who post on our PSC Closed Facebook group, I am not a young parent nor a millennial. I am a sixty-six-year-old grandmother. Until November 2015, I had been enjoying life as a retired special education teacher who was also (and still is) working part-time as a registered nurse. With […]


10th of March 2017

The voice of the PSC community is important

Dear PSC Community, Access to affordable, high quality health care is essential for patients and families experiencing PSC. Like everyone, PSC Partners has been closely watching congressional health care reform efforts and how they may impact people diagnosed with PSC. We understand that this is a complex issue. Regardless of the many differing opinions on […]


25th of January 2017

Pregnancy and PSC

I expected to cry when my son was born. I didn’t cry when they placed him on my chest, when we spoke his name for the first time, or when he cried. Three days later the tears came. They were tears that cleansed years of disappointment, fear, frustrations, and mourning. They were tears that broke […]


24th of January 2017

PSC and PBC Patient Meeting Held at University of California Davis

PSC and PBC Patient Meeting Held at University of California Davis On January 21, an informational meeting for PSC and PBC patients was held at the University of California Davis. This patient meeting was hosted by Dr. Christopher Bowlus, and focused on the basics of PSC and PBC, as well as current treatment options and clinical […]


4th of December 2016

2016 Updated Research Flyer

PSC Partners Seeking a Cure has produced a new Research Flyer showing Research Grants funded by the organization from 2016-2010.  You can see descriptions of all grants awarded on our Research Grant page (including those awarded prior to 2010).


11th of November 2016

Campaign launched for accurate diagnosis of PSC/PBC

PSC Partners Seeking a Cure and PSC Support in the United Kingdom have started an education campaign to bring awareness of the potential for error in diagnosing primary sclerosing cholangitis (PSC) and primary biliary cholangitis (PBC) patients. The campaign was launched at the 2016 Liver Meeting in Boston where 10,000 international hepatologists met to discuss […]


9th of November 2016

Call to Action for Medical Stakeholders to Better Understand and Diagnose Rare Liver Diseases

PSC Partners Seeking a Cure and PSC Support Announce a Call to Action for Medical Stakeholders to Better Understand and Diagnose Rare Liver Diseases  Nonprofit patient group to educate on Rare Liver Disease Diagnosis at The Liver Meeting 2016 Greenwood Village, CO — Nov. 10, 2016 — PSC Partners Seeking a Cure, a nonprofit organization […]


Q & A With PSC Partners Grant Awardee Dr. Francis

Recently, an article entitled “Common Asthma Drug Could Prevent Liver Disease and Reduce the Need for Liver Transplants” caught our attention. This study was featured in the Baylor Hospital newsletter. Heather Francis, PhD, Principal Investigator of this study and her team have actively been working on PSC and were awarded a two-year PSC Partners research grant […]


30th of October 2016

PSC Partners Will Fund Six Research Studies and One Educational Project in 2016!

Every year, on the recommendation of the Scientific/Medical Advisory Committee and the Board of Directors, PSC Partners Seeking a Cure chooses the most promising research projects to support. We are thrilled to announce that in 2016, PSC Partners will fund six research projects and one PSC educational project. PSC Partners received a record number of […]