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PSC Partners Seeking a Cure

Blog



13th of October 2017

Support PSC Partners with a Donor Advised Fund (DAF)

What is a Donor Advised Fund? A donor advised fund (DAF) is a type of giving program administered by a third party that provides you with the flexibility and most favorable tax benefits to easily support your favorite charities.  DAFs are designed to manage charitable donations on behalf of an organization, family or individual and […]


12th of October 2017

Nutrition Update with Guest Blogger and Nutritionist Brittany

Hello PSC Community! I’m Brittany, a registered dietitian, certified personal trainer, and former All-American collegiate swimmer living with ulcerative colitis (UC) and primary sclerosing cholangitis (PSC). I will be guest blogging for PSC Partners with the mission of empowering others to alleviate symptoms of their disease by making simple dietary and lifestyle changes to dramatically […]


9th of October 2017

2017 Research Grant Award Spotlight: Pinzani, “Exploring the PSC Matrisome: Discovery of Serum Biomarkers for the Stratification and Classification of Patients with Primary Sclerosing Cholangitis”

Each year, PSC Partners asks research grant awardees to share a layman’s summary as part of the process for accepting the grant.  We are excited to share the 2017 PSC-related research grant summaries with you! In order to make this information more digestible and shine a light on each individual study, we will share one […]


28th of September 2017

2017 Research Grant Award Spotlight: Lazaridis and Hemming Karlsen, “Dissecting the Genomic Variants of PSC Outcomes”

Each year, PSC Partners asks research grant awardees to share a lay summary as part of our grant process.  In order to make this information more digestible and shine a light on each individual study, we will share a summary each week (in alphabetical order of the Principal Investigator’s last names).  We welcome your comments […]


22nd of September 2017

Ricky Safer: Reaching a Milestone in Our International PSC Registry

Primary sclerosing cholangitis (PSC) is a rare liver disease affecting the bile ducts inside and outside the liver. As with most rare diseases, it is difficult to conduct large clinical trials that support the development of effective treatments for PSC. In 2014, PSC Partners Seeking a Cure collaborated with the NIH Office of Rare Disease […]


20th of September 2017

2017 RESEARCH GRANT AWARD SPOTLIGHT: KATZMANN, “APICAL AND BASOLATERAL EXOSOME SIGNALING IN NORMAL AND PSC CHOLANGIOCYTES”

Each year, PSC Partners asks research grant awardees to share a lay summary as part of our grant process.  In order to make this information more digestible and shine a light on each individual study, we will share a summary each week (in alphabetical order of the Principal Investigator’s last names).  We welcome your comments […]


2017 RESEARCH GRANT AWARD SPOTLIGHT: GREEN, “THE ROLE OF HEPATIC XBP1 IN CHOLESTATIC LIVER INJURY”

Each year, PSC Partners asks research grant awardees to share a lay summary as part of our grant process.  In order to make this information more digestible and shine a light on each individual study, we will share a summary each week (in alphabetical order of the Principal Investigator’s last names).  We welcome your comments […]


29th of August 2017

Reflections on the Power of PSC Partners Annual Conference

It is difficult to explain how exhausting it is to prepare for our annual conference each year. It is an event with an unimaginable amount of detail requiring a herculean effort from our small team at HQ. As we reflect on the conference, we are energized by the outcome and the equally herculean efforts of […]


18th of August 2017

Q and A with Caregiver and Live Liver Donor Jen Ragaini

          Background Many of you may have already heard Jen and Matt Ragaini’s story – it was featured on the Today Show in April of this year and was picked up by a variety of local news stations before Matt’s transplant to help them get the word out about the need […]


14th of August 2017

Specific Gene Associated with Survival and Need for Transplantation in PSC Patients

In 2014, PSC Partners awarded a grant to Professor RK Weersma and his team from the University Medical Center in Groningen, Netherlands.  The grant was titled, “Unraveling genetics driving PSC subphenotypes: An IPSCSG study”.  As an extension of the work done for this grant, a paper was recently accepted for publication in Gut, a leading […]