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PSC Partners Seeking a Cure

Blog



3rd of August 2017

2017 RESEARCH GRANT AWARD SPOTLIGHT: ELLINGHAUS, “IDENTIFICATION OF CONCRETE GENE TARGETS FOR THERAPUETIC INTERVENTION BY CHARACTERIZING EXPRESSIONAL CHANGES IN PRIMARY SCLEROSING CHOLANGITIS AND ULCERATIVE COLITIS”

Each year, PSC Partners asks research grant awardees to share a lay summary as part of our grant process.  In order to make this information more digestible and shine a light on each individual study, we will share a summary each week (in alphabetical order of the Principal Investigator’s last names).  We welcome your comments […]


28th of July 2017

Fred’s Cliff of Insanity: A Hopeful Picture of the Unpredictable Life of a PSCer

  We often see posts in our online PSC groups that highlight the frustrating unpredictability inherent in the lives of PSC patients and caregivers.  Living day to day, knowing that, at any point, the rug could be pulled from under you is hard.  One of our board members recently shared his personal journey of living […]


21st of July 2017

2017 Research Grant Award Spotlight: Deneau, “A Multicenter Collaboration to Study PSC in Children”

Each year, PSC Partners asks research grant awardees to share a lay summary as part of our grant process.  In order to make this information more digestible and shine a light on each individual study, we will share a summary each week (in alphabetical order of the Principal Investigator’s last names).  We welcome your comments […]


6th of July 2017

Research Update:  Announcing the 2017 PSC Partners 2017 Grant Awardees

Every year, on the recommendation of the Scientific/Medical Advisory Committee and the Board of Directors, PSC Partners Seeking a Cure funds the most promising research projects in leading PSC institutions worldwide. We are excited to announce that in 2017, PSC Partners will award six grants and our Canadian affiliate will award one grant, for a […]


20th of June 2017

PSC Partners Announces Formation of the PSC Forum

PSC Partners is thrilled to announce a new partnership with the Forum for Collaborative Research called the PSC Forum. The forum is the same group that was instrumental in finding effective treatments for both Hep C and HIV and we are tremendously excited that they have now chosen to focus their efforts on PSC. Founded in 1997, as […]


19th of May 2017

PSC Research Conversation with Dr. Manns and Dr. Gideon Hirschfield from ILC2017

In this videotaped conversation, Dr. Michael Manns (Medical School of Hannover, Germany​) ​and Dr. Gideon Hirschfield (University of Birmingham, UK)​ discuss what they perceived to be the best presentations in autoimmune hepatitis (AIH)​, primary biliary cholangitis (​PBC)​, primary sclerosing cholangitis (​PSC)​ and secondary sclerosing cholangitis (SSC, ​the newcomer on the block) at the International Liver […]


2nd of May 2017

PSC Partners statement on MacArthur amendment proposal to AHCA

Dear PSC Community, PSC Partners has been closely watching congressional health care reform efforts and how they may impact people diagnosed with PSC. As part of our mission, PSC Partners provides education and support to PSC patients, families and caregivers and we think it is important for our community to be aware of the various […]


21st of March 2017

Healio.com Commentary on PSC & PBC

March 20, 2017: Healio.com, an in-depth specialty clinical information website, has featured a guest commentary distinguishing between PSC and PBC following PBC’s name change to Primary Biliary Cholangitis. The commentary was co-authored by Ricky Safer, CEO of PSC Partners, and Martine Walmsley, Chair of Trustees for PSC Support, and highlights the importance of understanding the […]


Writing: A Lifeline, by Laura Bradbury

As you may know, two years ago life served me up my mid-life crisis on a platter. It came in the form of a phone call from an insurance company who had just performed medical exams on Franck and I for life and disability insurance. “Ms. Bradbury?” the woman said. “I’m calling to inform you […]


16th of March 2017

From a Grandmother With PSC

Why me?  Unlike most of you who post on our PSC Closed Facebook group, I am not a young parent nor a millennial. I am a sixty-six-year-old grandmother. Until November 2015, I had been enjoying life as a retired special education teacher who was also (and still is) working part-time as a registered nurse. With […]