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PSC Partners Seeking a Cure

Blog



13th of May 2016

Road to a Cure Campaign Launches May 13, 2016

It’s time again for our annual Road to a Cure fundraiser!  Each year, in the months leading up to our annual conference, the Road to a Cure campaign seeks to raise money to support our mission in our quest for a world with no PSC. New and exciting things are in store, and we’re ready to make […]


7th of May 2016

2012 Grant – Final Report from Dr. Patrick Leung et. al., UC Davis

Each year  on the recommendation of the Scientific/Medical Advisory Committee and the Board of Directors, PSC Partners Seeking a Cure chooses the most promising research projects to support. In 2012, Dr. Patrick S.C. Leung of the University of California Davis School of Medicine, and Jonathan Eisen, PhD and Hoi Shan Kwan, PhD, of The Chinese University of Hong […]


2013 Grant – Final Report from Dr. Eva Ellinghaus, Christian-Albrechts-University, Kiel, Germany

Each year  on the recommendation of the Scientific/Medical Advisory Committee and the Board of Directors, PSC Partners Seeking a Cure chooses the most promising research projects to support. In 2013, Dr. Eva Ellinhaus and Dr. Andre Franke of Christian-Albrechts-University received a two-year $60,000 grant to sequence the genomes of 64 unrelated PSC patients looking for rare and low frequency […]


2012 Grant – Final Report from Dr. Lankisch and Dr. Metzger, Hannover Medical School

Each year on the recommendation of the Scientific/Medical Advisory Committee and the Board of Directors, PSC Partners Seeking a Cure chooses the most promising research projects to support. In 2012, Dr. Tim Lankisch and Dr. Jochen Metzger – both from Hannover Germany –  received a two-year $60,000 grant to study improvements in detecting Cholangiocarcinoma (CC) using […]


2013 Grant – Final Report from Dr. Heather Francis, Texas A&M University

Each year  on the recommendation of the Scientific/Medical Advisory Committee and the Board of Directors, PSC Partners Seeking a Cure chooses the most promising research projects to support. In 2013, Dr. Heather Francis of the Texas A&M Health Science Center received a two-year $60,000 grant to study  if liver mast cells and cholangiocytes (bile duct cells) interact with each other […]


21st of April 2016

PSCer Tawny Holtz and PSC Partners in the news!

Recently Tawny Holtz was the subject of a local Wisconsin newspaper article detailing her live donor transplant (from her sister) in 2015.  Read the article in the Lake Geneva News. Note: The article contains several inaccurate statements about PSC and UC.


16th of April 2016

2013 Grant – Final Report from Dr. Romina Fiorotto, Yale University

Each year  on the recommendation of the Scientific/Medical Advisory Committee and the Board of Directors, PSC Partners Seeking a Cure chooses the most promising research projects to support. In 2013, Dr. Romina Fiorotto of Yale University received a two-year $60,000 grant to study the possible reasons for the progression of bile duct damage in PSC.  Read the final […]


4th of April 2016

PSC Medication Tetris

Ok, I’m stubborn.  I play PSC Medication Tetris every week.  You remember Tetris, the computer game where you fit various shapes and try to fill all the empty spaces … Several years ago when my post-transplant medicines were sufficiently reduced I purchased a compact – and cheap – 7 day pill caddy.  Using this compact container […]