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PSC Partners Seeking a Cure


9th of November 2016

Call to Action for Medical Stakeholders to Better Understand and Diagnose Rare Liver Diseases

PSC Partners Seeking a Cure and PSC Support Announce a Call to Action for Medical Stakeholders to Better Understand and Diagnose Rare Liver Diseases  Nonprofit patient group to educate on Rare Liver Disease Diagnosis at The Liver Meeting 2016 Greenwood Village, CO — Nov. 10, 2016 — PSC Partners Seeking a Cure, a nonprofit organization […]

Q & A With PSC Partners Grant Awardee Dr. Francis

Recently, an article entitled “Common Asthma Drug Could Prevent Liver Disease and Reduce the Need for Liver Transplants” caught our attention. This study was featured in the Baylor Hospital newsletter. Heather Francis, PhD, Principal Investigator of this study and her team have actively been working on PSC and were awarded a two-year PSC Partners research grant […]

30th of October 2016

PSC Partners Will Fund Six Research Studies and One Educational Project in 2016!

Every year, on the recommendation of the Scientific/Medical Advisory Committee and the Board of Directors, PSC Partners Seeking a Cure chooses the most promising research projects to support. We are thrilled to announce that in 2016, PSC Partners will fund six research projects and one PSC educational project. PSC Partners received a record number of […]

23rd of October 2016

PSC Awareness Week Begins October 23th 2016

PSC Partners Seeking a Cure is celebrating Liver Awareness Month by launching the second annual PSC Awareness Week today, October 23rd. It is fitting to wrap up Liver Awareness month with a unified voice and call to action from all of us affected by PSC. PSC Awareness Week is the perfect opportunity to come together […]

23rd of September 2016

Thank You for Paving the Road to a Cure!

PSC Partners Seeking a Cure is excited to announce the success of our annual Road to a Cure fundraising campaign. Together, all of the regions have competed to raise $172,835!  We are thankful for your trust and vote of confidence as we, together, fight for a cure for PSC. Congratulations to Team Midwest who raised […]

16th of September 2016

PSC Partners’ Registry in the Larger Context: How Have We Used Your Data?

  At our 2016 conference in New Haven, Dr. Christopher Bowlus made an urgent call for PSC patients to join our patient-driven Registry. So far, within two years, close to 900 PSCers have joined the PSC Partners Patient Registry. Whether you have already joined our Registry or are thinking about joining, you might be curious […]

30th of August 2016

Words of Wisdom and Love from a Mom Preparing for her Son’s Transplant

by Ruth Beinart This blog post originally appeared on our closed Facebook group, and has been re-posted publicly with the author’s permission. If you are interested in joining our closed Facebook group, please email us. It is Saturday morning and I am reflecting on the last few days’ events. On Thursday at 13.30 the phone […]

17th of August 2016

International Collaboration Enriches 2016 Conference

  What happens when more than 300 PSCers and caregivers get together for a PSC Partners’ annual conference? We learn updated information about PSC and PSC research For three days, we have the chance to interact with top hepatologists and researchers and get our individual medical questions answered Patients no longer feel isolated Newcomers become […]

16th of August 2016

OPTN/UNOS Seek Comments on New Proposed Liver Distribution Plan for Transplant Recipients

Because liver transplantation is an issue that affects many in our community, we wanted to share the following news regarding liver transplantation policy changes that may take place in the United States in the near future. This proposed policy change is open to public comment beginning TODAY, so please visit the links below to learn […]

13th of August 2016

2016 Conference Recap

See and read all about the 2016 PSC Partners Seeking a Cure Conference.  Watch the general session videos, download presentations and see a sampling of photos depicting the friendship, spirit, and fun that were all part of this year’s conference. Read about other past conferences.