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PSC Partners Seeking a Cure


16th of September 2016

PSC Partners’ Registry in the Larger Context: How Have We Used Your Data?

  At our 2016 conference in New Haven, Dr. Christopher Bowlus made an urgent call for PSC patients to join our patient-driven Registry. So far, within two years, close to 900 PSCers have joined the PSC Partners Patient Registry. Whether you have already joined our Registry or are thinking about joining, you might be curious […]

30th of August 2016

Words of Wisdom and Love from a Mom Preparing for her Son’s Transplant

by Ruth Beinart This blog post originally appeared on our closed Facebook group, and has been re-posted publicly with the author’s permission. If you are interested in joining our closed Facebook group, please email us. It is Saturday morning and I am reflecting on the last few days’ events. On Thursday at 13.30 the phone […]

17th of August 2016

International Collaboration Enriches 2016 Conference

  What happens when more than 300 PSCers and caregivers get together for a PSC Partners’ annual conference? We learn updated information about PSC and PSC research For three days, we have the chance to interact with top hepatologists and researchers and get our individual medical questions answered Patients no longer feel isolated Newcomers become […]

16th of August 2016

OPTN/UNOS Seek Comments on New Proposed Liver Distribution Plan for Transplant Recipients

Because liver transplantation is an issue that affects many in our community, we wanted to share the following news regarding liver transplantation policy changes that may take place in the United States in the near future. This proposed policy change is open to public comment beginning TODAY, so please visit the links below to learn […]

13th of August 2016

2016 Conference Recap

See and read all about the 2016 PSC Partners Seeking a Cure Conference.  Watch the general session videos, download presentations and see a sampling of photos depicting the friendship, spirit, and fun that were all part of this year’s conference. Read about other past conferences.

23rd of July 2016

HBO’s Documentary Series VICE Features a Research Project Funded by PSC Partners

A critical component of the mission of PSC Partners Seeking a Cure is to raise funds to research causes, treatments and cures for primary sclerosing cholangitis in both adult and pediatric patients. Since 2009, PSC Partners has channeled the generous donations made by community members to fund over $1.8 million in the most cutting-edge research […]

23rd of May 2016

SF Support Group Available for Both In-Person and Remote Attendance

PSC Partners has been asked to spread the news of a support group hosted by the autoimmune liver disease program at CPMC in San Francisco. There is a dial-in option for those who wish to attend remotely. Those living with PSC, PBC, and Autoimmune Hepatitis (AIH), family members, loved ones, and caregivers are invited to […]

14th of May 2016

Video From the FDA PSC Workshop is Now Available to Stream Online

The FDA hosted a PSC Workshop on March 3rd – 4th, 2016, in Silver Spring, Maryland. The topic of the conference was Trial Design and Endpoints for Clinical Trial in Adults and Children with Primary Sclerosing Cholangitis. The FDA workshop was also sponsored by AASLD, ACG, AGA and NASPGHAN. Video of the workshop is now […]

13th of May 2016

Road to a Cure Campaign Launches May 13, 2016

It’s time again for our annual Road to a Cure fundraiser!  Each year, in the months leading up to our annual conference, the Road to a Cure campaign seeks to raise money to support our mission in our quest for a world with no PSC. New and exciting things are in store, and we’re ready to make […]

7th of May 2016

2012 Grant – Final Report from Dr. Patrick Leung et. al., UC Davis

Each year  on the recommendation of the Scientific/Medical Advisory Committee and the Board of Directors, PSC Partners Seeking a Cure chooses the most promising research projects to support. In 2012, Dr. Patrick S.C. Leung of the University of California Davis School of Medicine, and Jonathan Eisen, PhD and Hoi Shan Kwan, PhD, of The Chinese University of Hong […]