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PSC Partners Seeking a Cure

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26th of June 2019

The Ins and Outs of Responding to Requests for Help

  RESPONDING TO REQUESTS FOR HELP TIPS FROM A PSCer and HER CAREGIVER HUSBAND “Just let me know what I can do to help.” – a phrase we’ve all heard or even said to someone going through a trying time. Oftentimes, that statement adds extra stress to the person who needs the help. They might […]


30th of May 2019

PRURITUS: Advice From Mom/Caregiver/Pharmacist Pauline Tostenrud

PRURITUS Advice From Mom/Caregiver/Pharmacist Pauline Tostenrud PSCers Often Have An Itch to Scratch As many PSCers and their caregivers know, itching, known as pruritus, is a big issue for those affected by this disease. The bile acid buildup from PSC is believed to cause this itching, and suggestions about ways to deal with this problem […]


29th of October 2018

PSC Awareness Day is Today – Watch Our New Video!

Today is PSC Awareness Day! We encourage everyone affected by PSC to join in and spread the word about primary sclerosing cholangitis. As any patient or caregiver knows, PSC isn’t the easiest thing to explain. To help, we’ve created a short video that can be shared with family, friends, or anyone who wants to learn […]


19th of May 2017

PSC Research Conversation with Dr. Manns and Dr. Gideon Hirschfield from ILC2017

In this videotaped conversation, Dr. Michael Manns (Medical School of Hannover, Germany​) ​and Dr. Gideon Hirschfield (University of Birmingham, UK)​ discuss what they perceived to be the best presentations in autoimmune hepatitis (AIH)​, primary biliary cholangitis (​PBC)​, primary sclerosing cholangitis (​PSC)​ and secondary sclerosing cholangitis (SSC, ​the newcomer on the block) at the International Liver […]


2nd of May 2017

PSC Partners statement on MacArthur amendment proposal to AHCA

Dear PSC Community, PSC Partners has been closely watching congressional health care reform efforts and how they may impact people diagnosed with PSC. As part of our mission, PSC Partners provides education and support to PSC patients, families and caregivers and we think it is important for our community to be aware of the various […]