PSCers in the News

Read about fellow PSCers who manage their PSC every day and also help to increase awareness of the disease through community activities and living full lives.

Powerful Patient

On Thursday, March 8, 2013, Ricky Safer and Joanne Grieme were interviewed on the half hour radio show Powerful Patient regarding our disease and organization. Click here to listen to the interview.

Organ donation saves lives
The Ottawa Citizen February 2, 2013

Re: Paralympian there for woman he loves, Jan. 29.

Martin Cleary wrote a wonderful column about Jason Dunkerley's plan to donate a kidney to his wife, Colleen Hayes. The gift of life is a fantastic treasure to bestow on anyone, but to be willing and able to do that for his life partner is even more wonderful.

I encourage Jason and Colleen to come to Rio in 2015 so that she can compete in the World Transplant Games. Jason can get a sense of the venues for the Olympics and Paralympics that will follow the next year.

I would also like to mention that, while 80 per cent of people support organ and tissue donation, only 20 per cent have registered their wishes at BeADonor.ca and talked to their loved ones about these plans.

We need more people to donate their organs and tissues to save lives rather than burying them. I hope Jason and Colleen's story helps spread the news that organ donation saves lives.

To read more, click here. (Dr. Goldstein is a board member of  PSC Partners Seeking a cure, and a member of the Scientific/Medical Advisory Committee).

Boarder Chris Klug giving back after 2002 Olympic glory
By Lee Benson, Deseret News
Published: Monday, Feb. 13, 2012

PARK CITY — Celebrating the 10th anniversary of the Salt Lake Olympics gives everyone a chance to dust off their favorite 2002 moment.

Mine involves remembering a picture-perfect Valentine's Day at Park City, where snowboard racer Chris Klug laid down the crowning run of the Games.

Klug didn't win gold, or silver, but the bronze medal he captured easily qualified as the emotional apex of the 2002 Games.

It was the first Olympic medal ever won by an athlete after an organ transplant.

And it came on National Donor Day...

To read more, click here. (Chris Klug is an honorary board member of PSC Partners Seeking a Cure).

Livers off on world journey

12/Aug/2011
By Kaitlyn Offer, Hills Gazette

CORINNE Perrett’s liver is about to set off on a world journey. Actually, the Lesmurdie resident has six livers that will roam the globe.

Dubbed Super Liver, the caped, plush toys are going to be sent to patients of a rare liver disease – primary sclerosing cholangitis (PSC).

Ms Perrett was diagnosed with PSC in 2006 and has since attended two conferences in the US to learn more and find others with the condition.

To read more, click here.

A Stampede Inspiration

Updated: Wed Jul. 13 2011 12:09:39
CTV Calgary

Hundreds of volunteers at the Calgary Stampede work year round to make the ten day event a complete success and Alison Collins is no slacker, especially in the face of adversity.

Collins, a former Stampede princess, fought through more than ten years of a debilitating liver disease until her sister provided her with the opportunity to lead a normal life.

She's always lived for the Stampede and many people had no idea that the energetic young woman had primary sclerosing cholangitis.

To read more, click here.

Primary Sclerosing Cholangitis May Have Caused the Death of Beethoven

by Ulrika Broome, revised by Annika Berquist, and translated by Peter Holmgren Originally published in 2006 in Lakartidninen, vol. 103, translated 2010

In a recently published article by two American otologists it is claimed that the different physical symptoms of Beethoven could be explained by an immunopathy associated with inflammatory bowel disease (IBD).

To read more, click here.