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About Us
PSC Partners is grateful to all our conference presenters for providing their slides from past conferences.
To read our newsletter's annual conference summaries, click here to access the summer editions.
If you would like to review PowerPoint presentations and photos from previous conferences, here are the links you can click on.
The conference provides the opportunity to share experiences, open up on an emotional level with others who truly understand the issues/ challenges we face, and to laugh and cry at the inspiring and stoic persons we meet. When you leave the conference, you have a feeling of sadness like you do when you go off to college for a year. You leave physically tired at all the information and emotions expended, upbeat towards the future, inspired by the experiences and people you meet, and wish you could have just one more day!
2010 conference attendee
Changed my life
Overall, you are all incredibly amazing!!! I was completely in awe of your organization of this big undertaking. Your ability to be so professional and yet “down to earth” at the same time was exceptional.
You truly have changed my life and I will be forever grateful to you all!
2010 conference attendee
Beyond expectations
Thank you for such an energetic conference. It was beyond my expectations. The people were so upbeat even with all their problems.
2010 conference attendee
This was the most professionally run conference I've ever attended. The speakers were authoritative, willing to take questions, up front. The breadth of topics was terrific too.
Conference attendee 2009
Even though everyone there is touched by the illness, I felt an air of optimism It made me realize I am not alone. I thought the lunch with a doctor was the best part: a one-on-one with someone that spoke and was very interested in our situation.
Conference attendee 2009
I enjoyed the balance between pure academia and peer experiences; the free-flow question and answer sessions, the instant bond of friendship and support between old hands and newbies like myself, and the incredible amount of information that I can now use to improve my current quality of life and future medical adventures.
Conference attendee 2008
Please note!
Information on this website has been compiled by persons without formal medical training. Therefore, the information is not intended nor implied to be a substitute for professional medical advice.
Please consult with your doctor before using any information presented here for treatment. Nothing contained in this website is intended to be for medical diagnosis or treatment. The views and opinions expressed in the site are not intended to endorse any product or procedure.