Online support groups can literally be lifesavers. Offering information, comfort, community and support for PSCers and caregivers, we at PSC Partners consider these connections important allies in the fight against PSC. Whether newly diagnosed, pre- or post-transplant, or feeling all alone in the world, PSCers and caregivers can take advantage of these online networks to connect with others. Finding others who truly understand the successes and struggles of living a life with PSC, no matter where geography places us, is truly a gift we can give ourselves.
Sites are available to caregivers and patients alike and cover a variety of topics related to PSC. Whether you have questions or advice to share or are just looking for a place where you're not the "other," there are sites available to fulfill those needs.
Information on these social media sites has been compiled by persons without formal medical training. Therefore, the information is not intended nor implied to be a substitute for professional medical advice.
Please consult with your doctor before using any information presented on these venues for treatment. Nothing contained in these sites is intended to be for medical diagnosis or treatment. The views and opinions expressed in the sites are not intended to endorse any product, person or procedure.
To find the PSC Partners Seeking a Cure online support group for PSCers and caregivers to share social connection, education and experiences, go to:
Additional social connection sites for PSCers and caregivers are listed below.
Yahoo PSC message boards:
PSC support groups in other countries:
Support groups that are not directly affiliated with PSC Partners Seeking a Cure:
New York City:
Israeli support group: