Road to a Cure

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Transplant Questions

Transplant Questions

You’ll have many questions concerning transplant. Transplant Living, an online newsletter that focuses on transplants, has an excellent list of questions to ask your medical team. Click here to go to the page.

Below are some additional questions specific to liver transplant issues.

Successful surgery
  • What will happen if I don’t have a transplant?
  • Am I able to take medications on time each day and to refill prescriptions in a timely manner?
  • What are the side effects of transplant medications?
  • What is the expected surgery recovery time?
  • How can I improve my chances of success before and after surgery?
  • Am I confident in the transplant team?
  • What is the transplant center’s liver survival rate?

 

Recovery
  • Do I have transportation to the hospital and to my physicians?
  • Should I plan for housing near the transplant center?
  • Who will help me recover?
  • What about care for my family and my pets during recovery?

 

Financial
  • Will I be able to work before and after a transplant?
  • Will my job be saved?
  • Can I afford the inevitable extra expenses?
  • Does my insurance cover surgery at the center I want to be at?
  • Is my insurance current and is renewal easily accomplished?
  • If I can’t afford the costs, is there a person who can help out or other ways to find assistance?

 

Expectations
  • What do I expect a transplant to be like for me?
  • Are my goals realistic?
  • Can I commit to the post-surgery care plan and discipline of traveling for follow-up clinic appointments, blood tests, etc., even though it might be difficult or inconvenient?

 

Living donation
  • If I have a live donor, do we both understand the risks?
  • Am I prepared for those days when I seemingly am recovering faster than my donor?

 

Support
  • Where do I go for emotional support?
  • Do my family and friends support my transplant decision?
  • Will they help me and be supportive?
  • Will my significant other accept the physical changes post-surgery (the scar, possible weight gain, temporary emotional ups and downs, other side effects)?
  • What can I expect to experience during my recovery?
  • How can I and my family, friends, and co-workers prepare for the emotional ups and downs of this process?
  • Where can THEY go for support?

 

Post-surgery
  • How do I recognize problems like rejection after surgery, and when should I call for help?
  • Does my insurance cover the prescriptions?
  • Will they force me to use a mail-order specialty pharmacy?
  • What will my out of pocket costs be for all of the meds every month?

 

The online PSC support groups are a great source of information regarding these questions.