2019 Annual Conference
We are pleased to announce that PSC Partners Seeking a Cure’s 15th annual conference for PSC patients and caregivers will take place in Rochester, Minnesota, from June 21-23, 2019. The conference will be held in partnership with the Mayo Clinic. More details will be posted when they become available. Please join our mailing list to receive the latest announcements and updates about the 2019 conference.
Conference Registration is now open!
Click here to register now!
The 2019 conference logistics will be slightly different than in recent years. Except for Friday breakfast (which will take place at the Kahler Grand Hotel), all meetings and meals will be held at the Mayo Civic Center, which is located four blocks away. You will NOT need a car. If needed, wheelchairs will be readily available and free to use between the Kahler and the Civic Center, and enclosed walkways between the Kahler and the Civic Center make the 10-minute walk easy to navigate.
We are pleased to offer a discounted group rate for conference attendees staying at the Kahler Grand Hotel, which is located at 20 2nd Ave. SW, Rochester MN 55902. The Kahler has set up a personalized group page for conference attendees to reserve their hotel rooms. Click here to take advantage of our special group rate, which is $119 per night, plus taxes and fees. This discounted group rate is available from Sun., June 16-Wed., June 26, 2019. Once the designated block of rooms are all reserved, the discount rate will no longer apply. It is strongly advised that you make reservations as soon as possible to take advantage of the group rate.
The 2019 Annual Conference officially begins Friday, June 21 at 7:30 a.m. and ends on Sunday, June 23 at 1:00 p.m. Please see the 2019 PSC Partners Conference Agenda for details about the entire weekend. We strongly suggest that your travel plans permit you to attend all conference activities, including the pre-conference Meet & Greet Dinner on Thursday evening, 6-8:30 p.m., and the Sunday morning peer session, 9-11:15 a.m., both of which offer valuable opportunities to spend quality time learning from and bonding with others in the PSC community. Learn more about Conference presenters by checking out the 2019 PSC Partners Conference Speaker Bios.
|Early Bird Registration||Start of Registration through 4/29/19||$220 per person|
|Regular Registration||4/30/19 through 5/28/19||$240 per person|
|Late Registration||5/29/19 through 6/9/19||$270 per person|
& Medical Provider Registration
|Start of Registration through 6/9/19||$330 per person|
- Friday: breakfast, lunch, and dinner
- Saturday: breakfast, lunch, snacks, and banquet dinner
- Sunday: breakfast, snacks
- Fees also cover: evening entertainment, presentations, breakout sessions, open forums, and all conference materials.
- Full refunds for registration fees can be issued if you cancel via email (firstname.lastname@example.org) before 06/09/2019. We are unable to refund any fees after that date.
Everyone who has attended one of our annual conferences for PSCers and caregivers knows what a life-changing experience this event can be. Our goal is to make our annual conference as affordable as possible while offering a superior experience, and PSC Partners subsidizes almost half of the conference costs for each attendee. Our generous conference sponsors help us cover these costs, support our mission and provide a special experience for everyone who attends.
We depend upon generous partners to make our annual conference an affordable and memorable event for the PSC community. Please consider becoming a sponsor!
We greatly appreciate all levels of support. Community sponsorships are available for individuals and families. Corporate sponsorships are available for businesses, companies and non-profit organizations.
For sponsorship recognition to be included in printed event materials, all funds must be received by May 15, 2019.
Please select the appropriate link below for a complete list of partnership opportunities and benefits:
- Community Conference Sponsorship Opportunities (full details)
- Corporate Conference Sponsorship Opportunities (full details)
Community Conference Sponsorship Levels
$1,500 Copper Partner
$1,000 Community Partner
Corporate Conference Sponsorship Levels
$25,000 Emerald Partner
$10,000 Gold Partner
$5,000 Silver Partner
$2,500 Bronze Partner
$1,500 Copper Partner
$1,000 Non-Profit Partner
If you wish to mail your sponsorship contribution, please send it to:
PSC Partners Seeking a Cure
6900 E Belleview Ave Ste 202
Greenwood Village CO 80111-1627
Please email us at email@example.com or (303) 771-5227 with questions about conference sponsorships.
Thank You to Our 2019 Conference Sponsors!
The Kenneth S. Hollander Charitable Foundation
The Parry Family
The McMurtry Family
William Bandy & Mary Jo Jordan
The Memory of Aubrey Goldstein
The John & Chris Browner Family
The Grover & Wente Families
The Hatchett Family
The Sabernick Family
The Safer Family
The Shepherd Family
Stuart and Debra Barnett
Jason and Jennifer Drasner
Randall and Catherine Oates
Frank and Barbara Resnek
The Belmont Family
Charles Schwab and Company, Inc.
The Kerdman Family
Jay and Mary Vyas
The Holmgren Family
The McKinney Family
General Conference Info
Attendee Age Requirement
The nature of all conference activities is exclusively directed towards PSC patients and caregivers 13 years of age and older. No one under the age of 13 may attend any part of the conference, including meals. Meals are restricted for registered attendees only. We ask that all attendees wear their name tag to all events (including the Thursday evening dinner). Your name tag will also serve as your ticket for all conference sessions, meals and snacks.
If this will be your first PSC Partners conference, be sure to visit the Annual Conference FAQ page and the Attendee Testimonials to learn more about this annual event. Additionally, plan to attend the Newcomer Orientation presentation on Fri., June 21, from 9-9:30 a.m. If you need further information or have any questions, please email us, firstname.lastname@example.org, or call our office, (303) 771-5227. We are available 9 a.m.-5 p.m. MDT.
We have prepared a helpful Glossary of Terms related to PSC. We suggest you print out this page, and keep it with you during the conference.
Whether this is your first conference or you are a veteran attendee, you will be assigned to a peer group that meets at various times throughout the weekend. These groups convene to offer invaluable support, share knowledge and discuss personal experiences. No matter where you are in your PSC journey, there is a supportive peer group for you. The list of specific peer groups is as follows:
- Teen PSCers
- Female PSCers in their 20s/30s
- Male PSCers in their 20s/30s
- Female PSCers
- Male PSCers
- Post-Transplant PSCers
- Parents of Pediatric PSCers (17 and under)
- Parents of Young Adult PSCers (18-25 years old)
- Parents of Adult PSCers (26 and up)
- Spouses/Partners/Caregivers of PSCers
- Siblings and Other Caregivers of PSCers
- Caregivers Coping with Loss & Carrying on the Spirit
If you are a first-time attendee (either a PSCer or a caregiver), we suggest that you request a mentor when you fill out your registration form. We will match you with someone from your peer group. Prior to the conference, we encourage you to communicate with your mentor to get all of your questions answered. During Friday’s lunch, you will meet your Mentor in person, if you haven’t connected previously.
If you have attended a past PSC Partners conference, please consider volunteering to be a mentor this year for our new attendees. We try very hard to match mentees with a similar mentor, so the mix of patient and caregiver mentors needed each year depends on the mix of new attendees.
We have organized some fun activities specifically for the teens and college-aged conference attendees. Once teens and college-aged attendees register for the conference, more details will be sent to this peer group and their parents.
Help us get the word out about the conference by making copies of this flyer and asking your medical providers to display it in their offices. For best results, please download the flyer to your computer first, and then print.
Mayo Clinic Blood Specimen Collection
A PSC research effort is currently underway at Mayo Clinic, and PSC patients attending the 2019 PSC Partners Conference are encouraged to participate. Researchers are creating a biobank of specimens and collecting clinical data for use in current and future research to better understand primary sclerosing cholangitis (PSC). Mayo Clinic researchers will be collecting blood specimens from PSC patients on Friday and Saturday during the conference weekend. The hope is to develop better testing for early detection and a greater understanding of disease complications and progression.
Research Coordinators for Mayo Clinic will be on hand Thursday afternoon during check-in to answer questions. The blood draws will be held on Friday and Saturday at the Mayo Civic Center from 9 a.m.- 5 p.m. Mayo Clinic representatives will assist with the consent process during this time. All participants must have the consent form signed prior to specimen collection. Please contact Erik Schlicht (email@example.com), 507-284-4312, or Jacki Bianchi (Bianchi.firstname.lastname@example.org), 507-266-0346, to get a copy of the consent form in advance of the conference, if you have any questions about the study, or if you would like to meet with someone to discuss the study.
Mayo Clinic is encouraging all PSC patients to provide blood samples regardless of past participation in Mayo studies. PSC patients who may be at Mayo Clinic earlier in the week are welcome to meet with a Research Coordinator and have their blood drawn at that time. Please contact Erik or Jacki for more information about how to schedule this visit.
How to Secure an Appointment at Mayo Clinic
Many people have expressed an interest in scheduling appointments with Mayo Clinic before or after the conference. Please understand that PSC Partners is unable to help facilitate scheduling. However, we are happy to share a few tips with you regarding booking an appointment:
- Interested PSC patients should contact the Central Appointment Office at 1 (507) 284-2111 for new patient appointments in the Mayo PSC Clinic.
- The PSC Clinic calendar opened 12 weeks prior to the conference weekend (end of March).
PSC patients will likely first be seen by Andrea Gossard, APRN, C.N.P. Numerous PSCers have met with her. She is extremely knowledgeable about PSC, and she will be presenting at the 2019 Conference.
2019 Conference Travel Details and Logistics
While flying directly into Rochester is an option, it may be less expensive to fly into Minneapolis-St. Paul, which is 79 miles from Rochester (about a 2-hour shuttle ride/drive). The Rochester Shuttle Service can take you from either airport, and has offered a discounted rate for PSC Partners conference attendees. Click here to make a reservation. Enter the code MAYO1 (all caps, no spaces – It’s MAYO with a 1 after it, as in MAYO Clinic.) at checkout after the times and dates of shuttle service have been selected. The discounted rate from Minneapolis-St. Paul is $27 one way, $54 round trip. Be sure to make a round trip reservation. The Rochester Shuttle Service has a representative at the Kahler Grand Hotel, if you need assistance on site. You do not need a car during the conference.
- Rochester International Airport is about 8 miles from The Kahler Grand Hotel. Use the information in the Transportation section above to reserve a shuttle. A taxi will cost approximately $40, and an Uber/Lyft will cost approximately $30.
- Minneapolis-St. Paul International Airport is 79 miles from Rochester. Airfares may be more affordable in and out of this airport. Use the information in the Transportation section above to book a shuttle. A taxi will cost approximately $250, and an Uber/Lyft will cost approximately $110 each way.
There will be a PSC Partners registration desk at the Mayo Civic Center, in the Grand Lobby South, from Thursday morning (6/20/19) through Saturday afternoon (6/23/19). The map below shows general walking directions from the Kahler Grand Hotel to the Civic Center’s Grand Lobby South. Stop by to pick up your conference materials and name tag, which must be worn to all events (including the Thursday evening dinner) so other PSCers can recognize you as a conference attendee. Your name tag will also serve as your ticket for all conference sessions, meals and snacks.
Pre-Conference Riverside BBQ, Rochester Art Center
Thursday, June 20, 6-8:00 p.m.: Please consider arriving in time for the Thursday evening pre-conference gathering. This year’s kick-off event is at the Rochester Art Center, 40 Civic Center Dr., SE, 6-8:00 p.m. The Art Center is about four blocks from The Kahler Grand Hotel, and can be accessed using easily accessible skyways or via city streets. Wheelchairs will be available in the skyways for those needing assistance with the commute. Parking adjacent to the Rochester Art Center is also available.
A festive summer menu will be served. The fee for this pre-conference event, ($23 per person), is not included in your conference registration, and tickets MUST be purchased in advance. Please purchase your tickets when you register for the conference. Tickets are available on a first-come, first-served basis. It is a fun conference kick-off and a great way for new attendees and veteran conference goers to connect with other PSCers and caregivers before the more formal conference starts on Friday.
Saturday Camping-Themed Shindig
When you’re packing for the 2019 conference, don’t forget to bring some camping attire! As returning conference attendees know, Saturday night is a celebration of our amazing community, and a much-needed chance for lightheartedness and fun after a full day of educational sessions. This year, we will be celebrating the Land of 10,000 Lakes with a camping-themed party. We encourage everyone to show their PSC Partners spirit by coming dressed in fun camping garb, such as cargo shorts, hiking boots, funny socks, a camp hat, your old scouting uniform, etc. You name it…the sky is the limit. Creativity and humor are appreciated and encouraged – the tackier the better! We also have karaoke during the final night soiree, so warm up your vocal chords.
Parking at The Kahler Grand Hotel:
- Valet Parking: Valet parking is available for $20 per day.
- Self-Parking: Self-Parking on property is available for $16 per day.
Parking at the Mayo Civic Center:
The Mayo Civic Center is a four-block walk from The Kahler Grand Hotel using the convenient skyway. However, if you are planning to drive to the Mayo Civic Center, look for the Parking Logo which will direct you to available lots and ramps. There is a minimal charge.
Free parking is available at certain times in Rochester City lots. Click here to learn more about parking lot locations and hours when free parking is available.
Rochester Local Attractions & Points of Interest
For more information about Rochester’s attractions, points of interest, dining, and events, click here.
Questions? Email us at email@example.com, or call us at (303) 771-5227.