Road to a Cure Pedal for PSC



2017 Annual Conference

2017 Annual Conference

We are pleased to announce that PSC Partners Seeking a Cure’s 13th annual conference for PSC patients and caregivers will take place in Cleveland, Ohio, from June 23-25, 2017. The conference will be held in partnership with the Cleveland Clinic Transplant Center and Digestive Disease and Surgery Institute, at the InterContinental Hotel, on the grounds of the Cleveland Clinic main campus. Click HERE to view the 2017 PSC Partners conference flyer. Please make copies of this flyer and ask your medical provider to display it in their office. (Please download the flyer to your computer to print)

Important Details

Late Registration From 5/28/2017 Through 6/09/2017
$240 per person

ALL fees must be received by 6/09/2017.

Conference fee includes: The brunch, dinner on Friday, breakfast, lunch, snack and banquet dinner Saturday, breakfast and snack Sunday, evening entertainment, presentations, breakouts, open forums and all conference materials. The Thursday evening dinner will cost an additional $23 if you have elected to join us for this pre-conference event. Conference fee applies to ALL those who attend ANY PART of our conference and cannot be pro-rated.

Conference fee receipts will be sent to your e-mail address.

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CONFERENCE FAQs: If this will be your first PSC Partners conference, be sure to visit the Annual Conference FAQ page and the 2016 Attendee Testimonials to learn more about this annual event.  In addition, please plan to attend the Newcomer Orientation presentation on Friday, 06/23/17 at 12:00PM.  If you need further information or have any questions, please write to us at or call our office at (303) 771-5227. We are available 9AM to 5PM (MDT).


CONFERENCE AGENDA: The 2017 conference officially begins with brunch on Friday morning, and ends on Sunday afternoon at 1:00 PM. Please see the 2017 Conference Agenda for details of the entire weekend. We strongly suggest that your travel plans permit you to attend all conference activities including the pre-conference Meet and Greet dinner on Thursday evening (6/22/2017), and also the Sunday morning peer session, as many past conference attendees have commented on how valuable this session is for them.

PEER GROUPS: If this is your first conference, you will notice that you will be assigned to a peer group that meets at various times throughout the weekend. These groups meet together to learn and share their knowledge and experiences. Whether you are a Teen PSCer, a Spouse, a Post-Transplant PSCer or if you are a Caregiver Coping with Loss and Carrying on the Spirit, there is a peer group for everyone.

MENTOR/MENTEE: If you are a first-time attendee (either a PSCer or a caregiver), we suggest that you request a mentor when you fill out your registration form. We will match you with a mentor who will be in your same peer group during the weekend. You will have the opportunity to communicate with your mentor before the conference and ask any questions you may have. During the brunch on Friday morning, you will have the opportunity to be introduced to your Mentor/Mentee if you haven’t already connected with them earlier.

TEEN PROGRAM: We have organized some specific activities for the teens and college-aged PSCers attending the conference, including a chaperoned outing just for this peer group. Once the teens and college-aged attendees register for the conference, we will send them (and their parents) an update with the weekend details.

ATTENDEES: The nature of all conference activities is exclusively directed towards PSC patients and caregivers 13 years of age and older. No one under the age of 13 may attend any part of the conference, including meals.

GO GREEN!  Most of the weekend activities take place at the InterContinental Cleveland Hotel, located at 9801 Carnegie Avenue, Cleveland OH 44106. You will NOT need a car. Directions to the InterContinental are listed below. Attendees are responsible for their own transportation to and from the conference at the InterContinental.  Airport taxi and Uber services are available.

TRANSPORTATION: There are several transportation options available in Cleveland that provide easy access by ground or air.

  • Major Airport: Hopkins International Airport (CLE) is about 15 miles southeast of the hotel
  • Taxi Charge from Hopkins to InterContinental (30 minutes one way): Approximately $40-$45

CONFERENCE CHECK-IN: There will be a PSC Partners registration desk in the InterContinental Hotel from Thursday morning (6/22/17) through Saturday afternoon (6/24/17) so that conference attendees can sign in early and pick up their information packets as soon as they arrive. Please wear your conference nametag to all events, including the Thursday evening get-together, so that we can get to know each other throughout the weekend.

PRE-CONFERENCE CASUAL DINNER ON THURSDAY, JUNE 22: We hope that you’ll consider arriving by Thursday evening to participate in our pre-conference get-together. This year the dinner will be held from 6:00 PM to 9:00 PM at the InterContinental Hotel. A festive Southwest menu will be served. The fees for this event, ($23 per person), are not included in your conference registration: tickets MUST be purchased in advance. Please purchase your tickets when you register for the conference. Conference attendees, particularly first time attendees, appreciate the opportunity to get acquainted with other PSCers and caregivers before our more formal educational schedule starts on Friday. We encourage you to come early, if possible!

Need a dinner ticket for Thursday evening? If you have already registered for the conference and would like to attend the Thursday evening dinner, you can purchase a ticket anytime before 06/09/2017 via our donation page and pay $23/ticket. Please be sure to tell us that the donation is for the dinner and who will be attending. We will send you a confirmation.  To purchase your dinner ticket click HERE.

CLEVELAND CLINIC CONSULTATIONS AVAILABLE THURSDAY, JUNE 22: The 2017 conference is taking place at Cleveland Clinic’s main campus, which allows attendees convenient access to the Clinic’s specialists. Recognizing the significance of having such a large group of PSC patients and caregivers in such close proximity, Dr. K.V. Narayanan Menon, Medical Director of Liver Transplantation in the Department of Gastroenterology and Hepatology at Cleveland Clinic, will be available to see PSC patients the afternoon of June 22ndClick here for more information about scheduling an appointment with Dr. Menon and other Clinic specialists.

GET ACQUAINTED BRUNCH AT CLEVELAND BOTANICAL GARDEN: FRIDAY from 8:30am – 11:15am. The brunch will be held at the Cleveland Botanical Garden located at 11030 East Boulevard in University Circle, Cleveland.  Please come mingle, munch and relax in the beautiful gardens and glass house.

Cleveland Botanical Gardens

Slideshow of Cleveland Botanical Garden

The cost for the brunch and entrance to the gardens is included in the conference attendee registration fee. The event is the perfect time to meet with your peers and have the chance to make mentor/mentee connections if you haven’t already done so. Attendees may wish to walk to the brunch, as the Garden is approximately a 15 minute walk from the InterContinental Hotel. Buses will be available to transport registered attendees to the Cleveland Botanical Garden and back to the InterContinental Hotel in time for Friday afternoon sessions.  Please refer to the conference agenda for the bus schedules and plan to load on time. To learn more about the Cleveland Botanic Garden, please click HERE.


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The 2017 PSC Partners Conference begins officially on the morning of Friday June 23rd, and continues through mid-day Sunday, June 25. Almost all of the conference events will take place at the InterContinental Hotel Cleveland, located on the Cleveland Clinic campus at 9801 Carnegie Ave., Cleveland, OH 44106, (216) 707-4100. (Please note this is NOT the InterContinental Suites Hotel located on Euclid Ave.) When a conference event does not take place at the InterContinental Hotel, transportation will be provided for attendees. Click HERE to view the InterContinental Hotel in Google Maps and obtain directions from your location.

PARKING: To access self parking during the conference, follow signs to Parking Garage #2 on the Cleveland Clinic Campus. Patient Parking Garage #2 is located on the corner of Carnegie and E. 100th St. The cost is $10 per day. From the parking garage, you can walk to the hotel via the Skyway on the 3rd floor. You can also walk to the InterContinental Hotel outside. You may want to drop your baggage off at the hotel and then go and park in the Patient Garage #2. Valet parking is also available at the hotel for $20 per day.




Rooms are still available for conference attendees at the InterContinental Hotel and The Holiday Inn Cleveland Clinic. Unfortunately, the block of discounted rooms has sold out. Here are the current room rates available:

InterContinental Hotel Cleveland

Thursday and Sunday – $239.00/night

Friday and Saturday – $169.00/night

If you need additional reservation assistance or if you need to cancel your reservation for any reason, please call the InterContinental central reservations office at (877) 707-8999.

Holiday Inn Cleveland Clinic (just a few blocks away at 8650 Euclid Ave, Cleveland, OH 44106 )

Thursday and Sunday – $169.00/night

Friday and Saturday – $129.00/night

To reserve a room please visit the Holiday Inn website or call 216-707-4200


For more information about Cleveland’s attractions, points of interest, dining and events, please visit The site is updated periodically to include information about current events and activities to enjoy during your visit to Cleveland.

Questions? Contact us at or (303) 771-5227 and we’ll be happy to help!