Join a Committee
Share your talents and expertise by volunteering. Especially needed are those with experience in finance, accounting, website creation and management, newsletter editing/writing, grant writing, fundraising, social media, graphic design and political action. Regardless of your skill set, all volunteers are welcome and appreciated. Please let us know how you would like to help by emailing firstname.lastname@example.org.
- Deliver information and registry brochures to your hepatologist or GI’s office for them to distribute to patients. You can order free copies of our brochures by writing to email@example.com or download and reprint the brochures yourself. This is a great way to share the resources of PSC Partners Seeking a Cure with healthcare workers and other patients..
- Join MOVE (Medical Outreach Volunteer Effort). MOVE is a dedicated group of nurses and people interested in the PSC Partners Seeking a Cure patient registry, with the goals of discovering ways to communicate and connect with physicians and healthcare providers to increase awareness of PSC and the PSC Partners Seeking a Cure patient registry, as well as to inform PSC patients and caregivers about the multiple available resources available through PSC Partners Seeking a Cure. If you are interested in joining MOVE write to firstname.lastname@example.org
- Other ways to raise awareness include hosting a Lunch and Learn with friends and co-workers or start a support group. E-mail email@example.com for more information.
- Share our “Faces of PSC” video and other PSC-related information on Facebook, Twitter and YouTube.
Share Your Story
Tell us about you or your loved one’s journey with PSC for use in our newsletter or social media.
Join Our Mailing List
Join PSC Partners’ mailing list to stay informed about research and organizational events.
Host a Conference
Consider hosting our annual conference for patients and caregivers in your home city. Our staff will work with you to help develop a proposal and to organize the event itself. See our Conference Hosting Guidelines for more information.