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Global Genes 2021 RARE Patient Advocacy Summit

Monday, September 27, 2021Wednesday, September 29, 2021

The 2021 Global Genes RARE Patient Advocacy Summit is an exciting opportunity to reconnect and experience the bonds and camaraderie that are unique to the rare disease community.

The event write-up says: Join us for a variety of interactive and educational events, meet-ups, workshops and networking opportunities. Here you’ll have the opportunity to connect and engage with others in the rare disease community, while experiencing the sense of community and belonging we’ve missed so much. Gain insights about the latest in rare disease innovations, best practices for advocating on an individual and organizational level, and actionable strategies you can implement immediately to accelerate change.

The 2021 RARE Patient Advocacy Summit is a hybrid event that will be livestreamed from San Diego, California on Monday, September 27, 2021 through Wednesday, September 29, 2021. Space is limited in San Diego, however, if you are interested in attending, please email

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