ROADMAP Initiative Webinar -- Natural History 101: Power of the Patient Experience: The Basics of Natural History Registries
If you've already registered for tonight's webinar but are having trouble joining the call, CLICK REGISTRATION BUTTON BELOW to re-register, and another link will be emailed to you from Zoom.
ROADMAP Initiative is an ongoing virtual event conducted by PSC Partners.
Whether you're a PSC Patient, Caregiver, Clinician, or Researcher, WE NEED YOUR VOICE!
Goals for Feb. 24th Webinar:
* Learn more about how patient data, like lab work and medical records, drive future research and drug development for PSC
* Discover how researchers and clinicians collect data
* Learn what it means to study the natural history of PSC
* Discuss how quality of life and patient-reported data are a critical component of PSC Natural History Registries
* Learn why your patient voice and participation in Natural History Registries are so important
Complete your profile and join PSC Partners Seeking a Cure in advancing PSC research towards a cure. Find information about clinical trials.
