PSC Partners is fortunate to have a very talented and motivated group of people serving on its Board of Directors. Our board members come from a rich variety of backgrounds and experiences and are united by our common cause to find a cure for PSC.
Ricky Safer - CEO
After having led the life of a health nut for decades, Ricky Safer was shocked to receive her PSC diagnosis in 2003, and then to discover that there was little accurate information or support available for PSC patients. Still reeling from her recent diagnosis, Ricky decided she didn’t want to wait around to see if things would improve. In 2004, with the help of her family, her hepatologist (Dr. Everson) and two friends from the support group (Lee Bria and David Rhodes), Ricky founded PSC Partners Seeking A Cure. Ricky’s years of volunteering with CCFA locally and nationally and her position on the board of the Donor Awareness Council provided her with the background to get PSC Partners Seeking a Cure off the ground. Ricky has served on the Nutritional Panel for CCFA, and also received the CCFA Sigman award.
Ricky feels extremely lucky to have her family as her loyal support group and constant helpers. One of her greatest joys is spending time with her family—her husband (Don), daughter and son-in-law (Elissa and Steven), son and daughter-in-law (Adam and Sue), and grandkids (Sam, Lily, Rowan and Hudson). She enjoys her role as CEO of PSC Partners, and continues to be passionate about finding a cure for PSC, and making life better for all PSCers. In Ricky’s other life, she taught foreign languages and provided cross-cultural training at the University of Denver. Ricky received her B.A. in French with honors from the University of Michigan, and her Master of Arts in Teaching from Johns Hopkins University. Ricky can be reached at contactus@pscpartners.org.
Monica Crowley - Chair
Monica Crowley, J.D., serves as the Chief Strategy & Planning Officer and Senior Counsel at Central Health, the Travis County Hospital District. In this role, she leads strategic planning efforts and integrates state and federal health care policies with system development, while also managing the transformation of critical partnerships and affiliations. Monica was instrumental in the development of Central Health’s 7-year Healthcare Equity Plan, which charts the strategic focus for the organization and includes the first safety-net focused community health needs assessment and a clinical capacity and gap analysis for the Austin/Travis County area.
With over 25 years of experience, Monica has a distinguished background as an advocate and attorney for public entities and non-profit organizations. Her career includes extensive work in strategic planning, health care law and public policy, legal and governmental affairs, and criminal enforcement. Prior to joining Central Health, Monica served as Vice President of Strategic Communication and Policy at Lone Star Circle of Care. In her role as Executive Director of the Austin Fund for Quality Healthcare, she was instrumental in leading the public education campaign that supported Central Health’s 2012 tax rate increase election, which supported the establishment of a medical school at The University of Texas at Austin. Additionally, Monica served as a white-collar criminal attorney in the U.S. Department of Justice Antitrust Division and the Medicaid Fraud Control Unit of the Texas Attorney General’s Office.
Monica earned her undergraduate degree from Austin College and her law degree from The University of Texas at Austin School of Law. She is the chair of the board of PSC Partners Seeking a Cure, an international organization dedicated to research and advocacy to develop treatments for primary sclerosing cholangitis, and has served as the board chair of Caritas of Austin, a non-profit focused on ending homelessness in Central Texas.
Matt McMurtry
Matt McMurtry's association with PSC Partners began with a charity bike ride in 2015. He says that he was so impressed with the positive ‘can do’ attitude of the participants, he knew he needed to be involved with this group.
He is a retired Surgeon currently living in Winston-Salem North Carolina. He and his wife have attended each subsequent annual PSC Partners meeting, and say they continue to be impressed with the commitment of PSC Partners to patient support, education, and research.
Britt Moore - Secretary
Britt Moore is a Board Certified Behavior Analyst and works with families of children diagnosed with developmental disabilities. She completed her undergraduate degree at Luther College in Decorah, Iowa and her Master’s Degree at Western Michigan University, both in Psychology. Britt currently works with families and caregivers teaching them to use behavior analytic principles to enhance their children’s appropriate behavior and learn new skills in their home environment.
Britt was diagnosed with PSC in the fall of 2011 and was able to attend her first conference in the spring of 2012 in her very own Minnesota. She says she was blown away by the friendships and knowledge she gained while at the conference and has been involved ever since. She lives in Saint Paul with her husband and three children. They love to get out when the weather allows it; gardening, golfing, skiing, camping, and listening to music.
Scott Malat - Treasurer
Scott Malat, CFA, attended his first PSC Partners Conference looking for more information after his wife was diagnosed in 2005. At that conference, he was amazed to find such a talented, dedicated group of volunteers that immediately treated him like family. Scott joined the board of directors to help the organization manage its explosive growth and invest in finding a cure.
Scott previously served as the chief strategy officer of XPO Logistics, where he led the strategy that grew XPO from less than $200 million in revenue to over $17 billion in 32 countries, with 1,525 locations and more than 100,000 employees. Prior to XPO, Scott worked at Goldman Sachs, UBS, and JP Morgan Chase. Scott is a CFA® charterholder and has a degree in statistics with a concentration in business management from Cornell University.
Rachel Gomel
Rachel Gomel’s commitment to PSC Partners began in 2008 when she attended the Jacksonville conference. Rachel holds a Master’s degree in English Literature from McGill University, Montreal, Canada. Her Ph.D. work at McGill University was cross-disciplinary (in Philosophy of History, Comparative Literature, and Literary Criticism), and earned her three Canada Council awards. She left McGill University shortly after her third child was born.
She has been involved in many community projects and in teaching literature. She was on the board of the Atwater Children Libraries that serve underprivileged sections of Montreal. During her eleven years as volunteer and four years as head of the local YMCA Advisory Board, she ran a youth swim team, organized self-help workshops and conference series for the public. Rachel organized city-wide running races to bring awareness and funds to the special needs of single moms with special-need children. Over the years, she has advised and mentored many college-bound young people. Her husband, three children, and their families are the center of her life.
Joanne Grieme
Joanne Grieme lives in Pittsburgh, PA, and has been an active volunteer with PSC Partners since attending the first PSC Partners conference in 2005. Her son was diagnosed at the age of 15 with PSC in 2001, and has had four liver transplants.
Joanne has worked with her husband in the family business in the aviation industry for over 20 years, but is most fulfilled with her volunteer work helping others and raising awareness for PSC. She has also served on the Board of Directors for other liver organizations in the Pittsburgh area.
Jesse Kirkpatrick
Jesse Kirkpatrick has been committed to the mission of PSC Partners since 2010, when a family member was diagnosed. A senior in high school at the time, Jesse decided that he would pursue a career as a scientist, with the goal of answering key unsolved questions in PSC. As an undergraduate and later as a PhD student at MIT, Jesse learned how to apply the principles of engineering to problems relevant to PSC—his PhD thesis centered on developing nanoparticles to enable the early detection of cancer. Now, as a postdoctoral researcher, Jesse is using engineered bile ducts in a dish to shed light on the cause of PSC and identify effective therapies. Ultimately, Jesse hopes to become a physician-scientist, caring for PSC patients in the clinic while working to better understand, diagnose, and treat this condition in the lab.
Jesse has served as a peer group leader at multiple PSC Partners conferences where he has also had the opportunity to engage with and learn from clinical and scientific leaders in PSC. In his free time, Jesse enjoys running and reading, and is an avid ballroom dancer.
Mahesh Krishna
Mahesh Krishna was diagnosed with PSC when he was only 15 years old. As a kid, it was difficult for him to learn that he had this incurable, progressive, chronic disease that would eventually lead to a liver transplant. He felt uncertain and unsure about what the future would hold. He says that PSC Partners was a vital resource for him during those first few years in helping him feel like he could live a full life with PSC.
Mahesh has been to several PSC Partners conferences with his dad and has loved being part of the welcoming community. He has volunteered for PSC Partners as a writer about his experience and about the latest scientific literature on PSC, as a moderator for his peer group, as a mentor to new conference attendees, and as part of the research committee. He genuinely believes that PSC Partners will make a difference in helping find a cure. Mahesh is currently a third-year medical student at Johns Hopkins University School of Medicine and hopes to find an effective therapy in the future so that no other kid has to feel like he did when he was first diagnosed. In his spare time, he enjoys playing basketball and chess, rooting for Philly sports teams, and playing with his pets.
Fred Sabernick
Fred Sabernick was diagnosed with PSC in 2004, and upon becoming symptomatic he attended his first PSC Partners Conference in 2009. He quickly bonded with the people and organization of PSC Partners, and credits the friendship and support he received for helping manage his disease. After worsening health he received a liver transplant in 2012.
He volunteered with PSC Partners in a number of roles before joining the Board, and has previously volunteered in adult literacy education and as a youth hockey referee. He holds a MSEE from the University of Florida and has been employed in the electronics and computer industry for over thirty-five years, and has traveled extensively both in North America and overseas. He enjoys running, woodworking, and trying (failing) to keep up with current technology, and has called the Atlanta, GA area home since 1997.
Leah R. Sciabarrasi
Leah became involved with PSC Partners in 2018, shortly after her family’s own experience with Primary Sclerosing Cholangitis (PSC). The support and resources provided by the PSC Partners community were invaluable to her, inspiring Leah to actively contribute to the organization’s mission to find a cure for PSC. As a passionate advocate, she is deeply committed to furthering the organization’s efforts and bringing hope to those impacted by this rare disease.
In addition to her role as President at a wealth management firm based in Boston, MA, Leah has served on several non-profit boards, leveraging her strategic insights and dedication to advancing the missions of these organizations.
Beyond her career and philanthropic activities, Leah enjoys spending time with her husband and three young boys. She enjoys making the most of family time through adventure travel, enjoying the outdoors and cooking at home!
Trish Stoltzfus
Trish Stoltzfus first became aware of PSC after her 16 year old son was diagnosed with PSC in 2010. She attended her first PSC Partners conference in 2012, and quickly realized what an outstanding organization it is. As so many individuals have said - it is the family you never wanted and wouldn’t know what to do without! As a way to become involved, she became the Mentor/Mentee coordinator for the annual conferences beginning in 2015. In 2018 she helped PSC Partners convince the CDC (Centers for Disease Control) of the need for a unique ICD-10-CM code (K83.01) and the impact it would have on finding possible treatments and eventually a cure for PSC.
Trish is the Director of Coding and HIM Systems for UPMC Pinnacle in Central Pennsylvania and has worked in Health Information Management more than 35 years. She lives in Harrisburg, PA, and has two adult sons. One has settled in Ohio with his wife, and her PSCer lives in St. Petersburg, Florida, living life to its fullest!
A heartfelt thank you to our passionate and dedicated Board of Directors for guiding us in all the major decisions for the organization.
