The Impact of Research
A fundamental part of our mission is to drive research to identify treatments and ultimately a cure for PSC.
Research Grant Program
Since the launch of the PSC Partners Research Grants program in 2007, PSC Partners has awarded 129 grants totaling $5.15 million USD to drive pioneering research around the world. Learn more
View our 2024 Research Grant Impact Report
WIND-PSC
WIND-PSC is a patient-led global, prospective, multi-center observational study generating regulatory-quality data to support PSC drug development. It is actively enrolling up to 2,000 patients at up to 20 sites in North America and Europe. Learn More
Patient Registry
The PSC Partners Patient Registry gathers PSC patient-reported data to support research on patient experiences, recruit for and facilitate clinical trials, and provide a platform for patient surveys. Over 2,500 patients from 56 countries are currently participating. Learn More
International Collaborative Research Network (ICRN)
The International Collaborative Research Network (ICRN) is a forum for global PSC experts and patient community members to collaborate on innovative research ideas and develop potential research proposals aligned with community priorities. Learn More
PSC Symptom Assessment Project
The PSC Symptom Assessment Project is a patient-partnered development of PSC-specific patient-reported outcome measures for potential use as validated clinical trial endpoints.
Acute Cholangitis Patient Experience Survey
The Acute Cholangitis Patient Experience Survey is a collaboration between PSC Partners, PSC Support (UK), and the Forum for Collaborative Research/PSC Forum. It is a multi-national survey of patients experiencing an acute cholangitis attack and describing their symptoms, treatments, and access to care. Over 450 responses have been received to date.
Clinical Trials
Clinical trials give patients a chance to take part in research. In a clinical trial, participants receive treatments or follow plans designed by researchers. These treatments can include medicines, medical devices, procedures, or lifestyle changes like diet.
PSC Partners collaborates with investigators conducting clinical trials, be they pharmaceutical, biotech, or independent investigator sponsored. We can add our patient perspective to the trial protocol and support trial enrollment through education. We also share clinical trial information with the PSC community. Clinical Trials
Help support PSC research
The more we learn about PSC, the closer we get to finding treatments and a cure.
