At PSC Partners Seeking a Cure, we believe that the future of PSC research must be shaped with patients, not just for them. As a patient-founded and patient-led organization, the patient voice has historically guided our research priorities and research programs.
We encourage all grant applicants - including those in basic science or preclinical research - to meaningfully integrate patient partnership into their work. Our goal is simple: to help investigators unlock the full potential of patient insights and align their research more closely with community needs.
PSC Partners is dedicated to connecting investigators with educational resources, patient partnership representatives, and trained staff to assist with the specifics…
- For investigators and grant applicants: email grants@pscpartners.org for guidance on how to develop a patient partnership plan for your research grant proposal
- For community members (patients, relatives, caregivers): email grants@pscpartners.org for more information on assisting with patient-partnered PSC research
