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PSC Partners Seeking a Cure

Blog



31st of August 2018

Living with PSC Episode 5 – Dr. Cyriel Ponsioen: Fecal Microbiota Transplantation

PSC Partners Seeking a Cure is pleased to present Living With PSC, a podcast moderated by Niall McKay. Each month, this podcast will explore the latest research and knowledge about PSC. From patient stories, to the latest research updates from PSC experts, to collaborations that are necessary to find better treatments and a cure, this […]


27th of July 2018

Living with PSC Episode 4 – A Conversation with Dr. Gideon Hirschfield

  PSC Partners Seeking a Cure is pleased to present Living With PSC, a podcast moderated by Niall McKay. Each month, this podcast will explore the latest research and knowledge about PSC. From patient stories, to the latest research updates from PSC experts, to collaborations that are necessary to find better treatments and a cure, […]


24th of July 2018

Transitioning to Adult Care: A PSC Patient’s Perspective

Transitions. What does a transition mean to you? Around this time a year ago, I would tell you that it meant putting my big girl pants on and walking across the street to the adult general hospital and never looking back to the oh so comfy paediatric hospital that I had grown to love. It […]


6th of July 2018

Role of Endoscopy in Primary Sclerosing Cholangitis: A Summary

Role of Endoscopy in Primary Sclerosing Cholangitis:  A Summary of the Clinical Guideline Issued by the European Society of Gastrointestinal Endoscopy and the European Association for the Study of the Liver. Author: David W. Blevins, Assistant professor of Chemistry,  Molecular Imaging and Translational Research Program, University of Tennessee Graduate School of Medicine Introduction This is a summary […]


8th of June 2018

Living With PSC Episode 3 – Dr. Scott Bea: Living with the Uncertainty of PSC

Living With PSC Episode 3 – Dr. Scott Bea: Living with the Uncertainty of PSC     PSC Partners Seeking a Cure is thrilled to announce the launch of Living With PSC, a podcast moderated by Niall McKay. Each month, this podcast will explore the latest research and knowledge about PSC. From patient stories, to […]


11th of May 2018

Living With PSC Episode 2 – Dr. Chris Bowlus: Diet & Emerging Treatments

Living With PSC Episode 2 – Dr. Chris Bowlus: Diet & Emerging Treatments   In the second episode of the Living with PSC podcast, Niall McKay interviews Dr. Chris Bowlus about diet and some of the emerging treatments for PSC. Dr. Bowlus is a Professor and Division Chief of Gastroenterology and Hepatology at the University […]


7th of May 2018

Liver Capitol Hill Day 2018: Perspectives from Two PSC Partners Advocates

Liver Capitol Hill Day 2018: Perspectives from Two PSC Partners Advocates On April 18, 2018, The American Association for the Study of Liver Disease (AASLD) organized an event (Liver Capitol Hill Day) in which liver transplant patients, physicians and patient advocates visited our nation’s capital to impart knowledge about liver diseases and advocate for policies […]


3rd of May 2018

PSC Research Summary Series Post 2: Prognostic Scores & Non-Invasive Markers in PSC

In his second post, guest blogger Mahesh Krishna continues to summarize important PSC research in simple terms so that patients and caregivers can understand what these important articles are saying without having specialized knowledge.     Title: Prognostic scores and non-invasive markers in primary sclerosing cholangitis: good for patients or for papers? Author: Douglas Thorburn […]


4th of April 2018

Living With PSC Podcast Episode 1 – Ricky Safer: A Patient’s Perspective

Living With PSC Podcast Episode 1 – Ricky Safer: A Patient’s Perspective PSC Partners Seeking a Cure is thrilled to announce the launch of Living With PSC, a podcast moderated by Niall McKay. Each month, this podcast will explore the latest research and knowledge about PSC. From patient stories, to the latest research updates from […]


3rd of April 2018

PSC Partners Patient Registry: An Increasingly Strong Voice of the PSC Community

PSC Partners Patient Registry: An Increasingly Strong Voice of the PSC Community The PSC Partners Patient Registry entered the hepatology community at precisely the right time. We were right there with the NIH in 2010 when discussions focused on patient-driven registries as being the most effective way of giving the silent rare-disease patients a voice. […]