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PSC Partners Seeking a Cure

Blog



11th of May 2018

Living With PSC Episode 2 – Dr. Chris Bowlus: Diet & Emerging Treatments

Living With PSC Episode 2 – Dr. Chris Bowlus: Diet & Emerging Treatments   In the second episode of the Living with PSC podcast, Niall McKay interviews Dr. Chris Bowlus about diet and some of the emerging treatments for PSC. Dr. Bowlus is a Professor and Division Chief of Gastroenterology and Hepatology at the University […]


7th of May 2018

Liver Capitol Hill Day 2018: Perspectives from Two PSC Partners Advocates

Liver Capitol Hill Day 2018: Perspectives from Two PSC Partners Advocates On April 18, 2018, The American Association for the Study of Liver Disease (AASLD) organized an event (Liver Capitol Hill Day) in which liver transplant patients, physicians and patient advocates visited our nation’s capital to impart knowledge about liver diseases and advocate for policies […]


3rd of May 2018

PSC Research Summary Series Post 2: Prognostic Scores & Non-Invasive Markers in PSC

In his second post, guest blogger Mahesh Krishna continues to summarize important PSC research in simple terms so that patients and caregivers can understand what these important articles are saying without having specialized knowledge.     Title: Prognostic scores and non-invasive markers in primary sclerosing cholangitis: good for patients or for papers? Author: Douglas Thorburn […]


4th of April 2018

Living With PSC Podcast Episode 1 – Ricky Safer: A Patient’s Perspective

Living With PSC Podcast Episode 1 – Ricky Safer: A Patient’s Perspective PSC Partners Seeking a Cure is thrilled to announce the launch of Living With PSC, a podcast moderated by Niall McKay. Each month, this podcast will explore the latest research and knowledge about PSC. From patient stories, to the latest research updates from […]


3rd of April 2018

PSC Partners Patient Registry: An Increasingly Strong Voice of the PSC Community

PSC Partners Patient Registry: An Increasingly Strong Voice of the PSC Community The PSC Partners Patient Registry entered the hepatology community at precisely the right time. We were right there with the NIH in 2010 when discussions focused on patient-driven registries as being the most effective way of giving the silent rare-disease patients a voice. […]


30th of March 2018

Nutrition Update: 4 Steps to Follow a Low-Sodium Diet Like a Pro

Brittany Roman-Green is a licensed dietitian nutritionist and certified personal trainer.  She is the owner of her private practice in Mountain View, California and specializes in gut and liver conditions. **NOTE: Always speak with your doctor before starting a new diet to make sure that the diet change is appropriate for your medical condition and treatment. […]


29th of January 2018

BLOG: Mahesh Notes (think Cliff Notes) – A PSC Research Summary Series by Guest Blogger Mahesh Krishna

Often times, there is an abundance of information in scientific journals that may contain useful information to patients, yet is inaccessible to many due to excessive medical jargon. This blog series is designed to benefit patients by summarizing important PSC research in simple terms so that patients and caregivers can understand what these important articles […]


20th of December 2017

Nutrition Update with Guest Blogger and Nutritionist Brittany: How to Eat When You’re Exhausted: Part 2

In part 1 of How to Eat When You’re Exhausted, I provided some tips for making meal planning easier and for boosting overall energy. Now, let’s discuss the types of food that will effect how you feel. When exhausted, it’s tempting to choose convenient foods that are frequently high in sugar, that give you an […]


Announcing PSC Mami – A New Podcast About the Intersection of PSC and Parenthood!

By Monika Aldarondo “These numbers are so high, they are useless to me.” My high risk obstetrician, who I loved and is one of the best in Boston, had never seen a pregnant mom with Primary Sclerosing Cholangitis was talking through my blood test results and what they might mean for my baby and my […]


1st of December 2017

NUTRITION UPDATE WITH GUEST BLOGGER AND NUTRITIONIST BRITTANY

How to Eat When You’re Exhausted: Part 1 Everyone is exhausted at some point or another but for people with chronic conditions, such as ulcerative colitis (UC) and primary sclerosing cholangitis (PSC), it’s common for malaise to set in more frequently. When you’re exhausted, it’s challenging to opt for nutritious foods that often require more prep […]