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PSC Partners Seeking a Cure

Blog



18th of November 2019

Living With PSC Episode 16: PSC Patient Dr. Jerome Schofferman, Ins & Outs of PSC

PSC Partners Seeking a Cure is pleased to present Living With PSC, a podcast moderated by Niall McKay. Each month, this podcast will explore the latest research and knowledge about PSC. From patient stories, to the latest research updates from PSC experts, to collaborations that are necessary to find better treatments and a cure, this […]


14th of October 2019

Living With PSC Episode 15 – Dr. Christopher Bowlus, Drug and Clinical Development for PSC Treatment

PSC Partners Seeking a Cure is pleased to present Living With PSC, a podcast moderated by Niall McKay. Each month, this podcast will explore the latest research and knowledge about PSC. From patient stories, to the latest research updates from PSC experts, to collaborations that are necessary to find better treatments and a cure, this […]


Information Can Be Harmful to Your Health, by Tim Wholey

  INFORMATION CAN BE HARMFUL TO YOUR HEALTH Whoa! What the heck is this guy talking about? Information is power, isn’t it? Let me explain why my title is what it is.  I have had PSC for 18-plus years and I’ve been part of the yahoo support group and the PSC Partners support group. I […]


16th of September 2019

Living With PSC Episode 14 – Dr. James Tabibian, Vancomycin as a treatment for PSC

PSC Partners Seeking a Cure is pleased to present Living With PSC, a podcast moderated by Niall McKay. Each month, this podcast will explore the latest research and knowledge about PSC. From patient stories, to the latest research updates from PSC experts, to collaborations that are necessary to find better treatments and a cure, this […]


13th of August 2019

Living With PSC Episode 13 – PSC Conference 2019

PSC Partners Seeking a Cure is pleased to present Living With PSC, a podcast moderated by Niall McKay. Each month, this podcast explores the latest research and knowledge about PSC. From patient stories, to the latest research updates from PSC experts, to collaborations that are necessary to find better treatments and a cure, this podcast […]


26th of June 2019

The Ins and Outs of Responding to Requests for Help

  RESPONDING TO REQUESTS FOR HELP TIPS FROM A PSCer and HER CAREGIVER HUSBAND “Just let me know what I can do to help.” – a phrase we’ve all heard or even said to someone going through a trying time. Oftentimes, that statement adds extra stress to the person who needs the help. They might […]


30th of May 2019

PRURITUS: Advice From Mom/Caregiver/Pharmacist Pauline Tostenrud

PRURITUS Advice From Mom/Caregiver/Pharmacist Pauline Tostenrud PSCers Often Have An Itch to Scratch As many PSCers and their caregivers know, itching, known as pruritus, is a big issue for those affected by this disease. The bile acid buildup from PSC is believed to cause this itching, and suggestions about ways to deal with this problem […]


15th of May 2019

Living With PSC Episode 12 – John Crowley – Living Donor Transplant Recipient

PSC Partners Seeking a Cure is pleased to present Living With PSC, a podcast moderated by Niall McKay. Each month, this podcast will explore the latest research and knowledge about PSC. From patient stories, to the latest research updates from PSC experts, to collaborations that are necessary to find better treatments and a cure, this […]


7th of May 2019

Q & A with Winning Athlete & PSC Patient Yvette Matthews

  Q & A with Winning Athlete & PSC Patient Yvette Matthews For this month’s blog, we would like to introduce you to Yvette Matthews. Yvette was diagnosed with PSC in 2001, and received a liver transplant in 2013. Prior to her diagnosis, Yvette was a college athlete and a semi-pro beach volleyball player. So, […]


15th of April 2019

Living With PSC Episode 11 – Monika Aldarondo – Motherhood and PSC

PSC Partners Seeking a Cure is pleased to present Living With PSC, a podcast moderated by Niall McKay. Each month, this podcast will explore the latest research and knowledge about PSC. From patient stories, to the latest research updates from PSC experts, to collaborations that are necessary to find better treatments and a cure, this […]