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PSC Partners Seeking a Cure

Blog



26th of June 2019

The Ins and Outs of Responding to Requests for Help

  RESPONDING TO REQUESTS FOR HELP TIPS FROM A PSCer and HER CAREGIVER HUSBAND “Just let me know what I can do to help.” – a phrase we’ve all heard or even said to someone going through a trying time. Oftentimes, that statement adds extra stress to the person who needs the help. They might […]


30th of May 2019

PRURITUS: Advice From Mom/Caregiver/Pharmacist Pauline Tostenrud

PRURITUS Advice From Mom/Caregiver/Pharmacist Pauline Tostenrud PSCers Often Have An Itch to Scratch As many PSCers and their caregivers know, itching, known as pruritus, is a big issue for those affected by this disease. The bile acid buildup from PSC is believed to cause this itching, and suggestions about ways to deal with this problem […]


15th of May 2019

Living With PSC Episode 12 – John Crowley – Living Donor Transplant Recipient

PSC Partners Seeking a Cure is pleased to present Living With PSC, a podcast moderated by Niall McKay. Each month, this podcast will explore the latest research and knowledge about PSC. From patient stories, to the latest research updates from PSC experts, to collaborations that are necessary to find better treatments and a cure, this […]


7th of May 2019

Q & A with Winning Athlete & PSC Patient Yvette Matthews

  Q & A with Winning Athlete & PSC Patient Yvette Matthews For this month’s blog, we would like to introduce you to Yvette Matthews. Yvette was diagnosed with PSC in 2001, and received a liver transplant in 2013. Prior to her diagnosis, Yvette was a college athlete and a semi-pro beach volleyball player. So, […]


15th of April 2019

Living With PSC Episode 11 – Monika Aldarondo – Motherhood and PSC

PSC Partners Seeking a Cure is pleased to present Living With PSC, a podcast moderated by Niall McKay. Each month, this podcast will explore the latest research and knowledge about PSC. From patient stories, to the latest research updates from PSC experts, to collaborations that are necessary to find better treatments and a cure, this […]


14th of March 2019

Living With PSC Episode 10 – Dr. Valentina Medici: Nutrition and PSC

Living With PSC Episode 10 – Dr. Valentina Medici: Nutrition and PSC PSC Partners Seeking a Cure is pleased to present Living With PSC, a podcast moderated by Niall McKay. Each month, this podcast will explore the latest research and knowledge about PSC. From patient stories, to the latest research updates from PSC experts, to […]


5th of March 2019

Preparing to See Your Doc…A Bit of Organization Ensures You Make the Most of Your Appointment

Preparing to See Your Doc… A Bit of Organization Ensures You Make the Most of Your Appointment If you’re experiencing symptoms related to primary sclerosing cholangitis (PSC), chances are you need to be seen by a hepatologist or a gastroenterologist with expertise in liver disease. Maybe you’ve already been seen by one, but are you […]


11th of February 2019

Living With PSC Episode 9 – Dr. Konstantinos Lazaridis: The Interaction Between Genetics & Environmental Exposures in PSC

PSC Partners Seeking a Cure is pleased to present Living With PSC, a podcast moderated by Niall McKay. Each month, this podcast will explore the latest research and knowledge about PSC. From patient stories, to the latest research updates from PSC experts, to collaborations that are necessary to find better treatments and a cure, this […]


16th of January 2019

Living With PSC Episode 8 – Dr. Heather Francis: Impact of URSO on PSC

PSC Partners Seeking a Cure is pleased to present Living With PSC, a podcast moderated by Niall McKay. Each month, this podcast will explore the latest research and knowledge about PSC. From patient stories, to the latest research updates from PSC experts, to collaborations that are necessary to find better treatments and a cure, this […]


19th of December 2018

Caregiving: Some Do’s and Don’ts

Caregiving: Some Do’s and Don’ts No one ever really “plans” to be a caregiver. I know I never thought about it, beyond maybe providing ginger ale and crackers for someone with a stomach bug. But that slowly began to change after I met Nicola over 10 years ago. (Spoiler alert – she’s now my wife!). […]