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PSC Partners Seeking a Cure

Blog



7th of November 2017

2017 Research Grant Award Spotlight: Popov, “Integrin AVB6 as a Therapeutic Target for Primary Sclerosing Cholangitis – Associated Cholangiocarcinoma”

Each year, PSC Partners asks research grant awardees to share a layman’s summary as part of the process for accepting the grant.  We are excited to share the 2017 PSC-related research grant summaries with you! In order to make this information more digestible and shine a light on each individual study, we will share one […]


25th of October 2017

Show Your Smiling Face on this Year’s Holiday Card

Dear PSC Community,  We are currently pulling together pictures for our annual holiday card and would love to include yours. We need approximately 7-9 pictures that show the diversity and strong spirit of our community. Help us bring peace and hope to PSC patients and their caregivers by sharing a picture that will make us smile.  […]


13th of October 2017

Advice from a College Student and Fellow PSCer to PSCers Who Are Transitioning to College

By Mahesh Krishna Getting diagnosed with PSC as a minor when you’re living under your parents’ roof is both a blessing and a curse. I was close to my family for the first couple years of my diagnosis and they provided unconditional support.  My mom, a physician herself, would even monitor my health closer than […]


Support PSC Partners with a Donor Advised Fund (DAF)

What is a Donor Advised Fund? A donor advised fund (DAF) is a type of giving program administered by a third party that provides you with the flexibility and most favorable tax benefits to easily support your favorite charities.  DAFs are designed to manage charitable donations on behalf of an organization, family or individual and […]


12th of October 2017

Nutrition Update with Guest Blogger and Nutritionist Brittany

Hello PSC Community! I’m Brittany, a registered dietitian, certified personal trainer, and former All-American collegiate swimmer living with ulcerative colitis (UC) and primary sclerosing cholangitis (PSC). I will be guest blogging for PSC Partners with the mission of empowering others to alleviate symptoms of their disease by making simple dietary and lifestyle changes to dramatically […]


9th of October 2017

2017 Research Grant Award Spotlight: Pinzani, “Exploring the PSC Matrisome: Discovery of Serum Biomarkers for the Stratification and Classification of Patients with Primary Sclerosing Cholangitis”

Each year, PSC Partners asks research grant awardees to share a layman’s summary as part of the process for accepting the grant.  We are excited to share the 2017 PSC-related research grant summaries with you! In order to make this information more digestible and shine a light on each individual study, we will share one […]


28th of September 2017

2017 Research Grant Award Spotlight: Lazaridis and Hemming Karlsen, “Dissecting the Genomic Variants of PSC Outcomes”

Each year, PSC Partners asks research grant awardees to share a lay summary as part of our grant process.  In order to make this information more digestible and shine a light on each individual study, we will share a summary each week (in alphabetical order of the Principal Investigator’s last names).  We welcome your comments […]


22nd of September 2017

Ricky Safer: Reaching a Milestone in Our International PSC Registry

Primary sclerosing cholangitis (PSC) is a rare liver disease affecting the bile ducts inside and outside the liver. As with most rare diseases, it is difficult to conduct large clinical trials that support the development of effective treatments for PSC. In 2014, PSC Partners Seeking a Cure collaborated with the NIH Office of Rare Disease […]


20th of September 2017

2017 RESEARCH GRANT AWARD SPOTLIGHT: KATZMANN, “APICAL AND BASOLATERAL EXOSOME SIGNALING IN NORMAL AND PSC CHOLANGIOCYTES”

Each year, PSC Partners asks research grant awardees to share a lay summary as part of our grant process.  In order to make this information more digestible and shine a light on each individual study, we will share a summary each week (in alphabetical order of the Principal Investigator’s last names).  We welcome your comments […]


2017 RESEARCH GRANT AWARD SPOTLIGHT: GREEN, “THE ROLE OF HEPATIC XBP1 IN CHOLESTATIC LIVER INJURY”

Each year, PSC Partners asks research grant awardees to share a lay summary as part of our grant process.  In order to make this information more digestible and shine a light on each individual study, we will share a summary each week (in alphabetical order of the Principal Investigator’s last names).  We welcome your comments […]