From one patient’s diagnosis to a global movement, we are united in our pursuit of a cure.

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Our Mission

“The mission of PSC Partners Seeking a Cure is to drive research to identify treatments and a cure for primary sclerosing cholangitis (PSC) while providing education and support for those impacted by this rare disease.”

Patients Connected

Years of Impact

Research Projects Supported

Founded in 2005, PSC Partners Seeking a Cure is a 501(c)(3) nonprofit organization.

Our programs support patients, caregivers, families, and friends, educate the medical community about this rare liver disease, and encourage groundbreaking research in the search for treatments.

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Our Story

2003

The Beginning

A PSC diagnosis left Ricky Safer feeling isolated and uncertain. After connecting with others living with PSC and realizing they shared the same fears and lack of support and education, Ricky and her family decided that they could do something to make life better for PSCers and stimulate research to find that elusive cure for PSC.

“Ricky, you have PSC… We can try to continue treating the symptoms, but there is no cure.”

Like all my fellow PSCers, this diagnosis threw me into an emotional tailspin. I was suddenly dealing with anxiety, fear of the unknown, and anger. I craved two things: more accurate information and the support of others who understood.
2005

PSC Partners is Born

PSC Partners Seeking a Cure officially launched in January 2005 and held its first conference, bringing together 84 enthusiastic supporters.
Jan 2025

Leading the Way to a Cure

Since 2007, PSC Partners has awarded over $5 million for groundbreaking research.

117

Grants Awarded

1

Shared Goal

$5.15 M

Funded
Our Impact

A Growing Movement Worldwide

Today, PSC Partners Seeking a Cure continually expands our programs, thanks to the expertise of our board, Scientific/Medical Advisory Committee (SMAC), and our amazing community.

We remain a true working partnership between patients, caregivers, and medical professionals. Together, we act as a family for PSCers and offer hope to all of us.

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