Volunteer for Organ Donation Awareness
PSC Partners strongly supports organ donation and urges members to become involved in increasing awareness about the need for organ donation. Increased donations will help decrease the time spent on the transplant waiting list. The national liver waiting list stands at more than 16,000, representing all causes of liver disease, not just PSC. About 6,000 liver transplant surgeries occur each year in this country.
For more information about United Network for Organ Sharing (UNOS), visit this page on our website.
According to recent surveys, 90 percent of Americans say they support organ donation, but only 30 percent know how to become a donor.
Sign Up to Be a Donor!
You can sign up at the DMV, online, etc. Make sure that your family is informed about your decision. State your wishes in writing, and file them with your living will or advance directives. If you're under 18, parental consent may be necessary. To register as an organ donor in the United States, click here. Thank you!
How You Can Help
After you sign up to be an organ donor and inform your family, many other ways exist to support organ donation awareness.
Chris Klug Foundation: Independent local groups are also active. Chris Klug, an Olympic award-winning snowboarder and post-transplant PSCer, has a foundation to encourage organ donation and hold events to raise awareness. Visit the Chris Klug Foundation.
Contact Centers: Contact the nearest transplant center to determine if they have programs or events supporting organ donation. Sometimes, the centers and the local organ procurement organizations (OPOs) work together to train advocates and create memorable events.
Find Support Groups: Local liver support groups also may have programs that help increase the number of people who want to donate. Check with the American Liver Foundation and nearby hospitals.
Other National Organizations: Below is a list of different national organizations that support organ donation and awareness. Check them out!
