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International Collaborative Research Network

ROADMAP Initiative

ROADMAP Initiative

ROADMAP Initiative Webinars

The webinars covered four topics: 

  • Patient-Reported Outcome Measures (PROMs)
  • PSC Research
  • Drug Development
  •  Natural History

These key topics all lead towards PSC treatments and a cure. The webinars were divided into two sections. During the first half, experts disseminated information on the given topic. During the second half, attendees were divided into breakout rooms to discuss the topic and share thoughts/experiences. The second half was not recorded, but careful notes were taken. All comments were de-identified.

Click here for downloadable ROADMAP Initiative resources.

Thank you to the founding sponsors of the ROADMAP Initiative:

  • Intercept
  • Mirum
  • Albireo
  • Escient Pharmaceuticals
  • CymaBay Therapeutics


Watch this video to learn more about the PSC Partners 2021 ROADMAP Initiative. This was part of a poster presentation at the 2021 Global Genes conference.

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