PSC Healthcare Provider Map Frequently Asked Questions

This map is a living document. We expect updates and changes, and that’s why we truly appreciate input from our community.

Read this response from PSC Partners about your concerns/edits/additions.

How was the PSC Healthcare Provider Map created?

PSC Partners has partnered with Komodo Health, a health technology company with the industry's largest real-time view into healthcare journeys in the US, to identify providers and healthcare organizations with PSC expertise based on the below criteria: 

Providers on the list must be a relevant specialty, which includes Hepatologists, Gastroenterologists, Pediatricians, Internists, Hospitalists, Nurse Practitioners, and Physician Assistants. Healthcare providers must have a moderate to high PSC patient volume, as defined by usage of the PSC ICD-10 diagnosis code (K83.01). Some providers may also have publications or clinical trials related to PSC.

Healthcare organizations are included on the list by having a moderate to high PSC patient volume itself, or by virtue of having qualified specialists who primarily practice at that site of care.

Additionally, the map identifies whether the PSC patients managed by each healthcare provider or organization are exclusively pediatric, exclusively adult, or a mix of both. All map information is refreshed quarterly, and providers and organizations may be added or removed based on the latest information.

PSC Partners is not endorsing or recommending any provider or organization on this map.

Is this an up-to-date list?

The map of Healthcare Providers (HCP) and Healthcare Organizations (HCO) is updated on a quarterly basis, and any changes will be reflected after updates have taken place.

Who updates this information?

PSC Partners has partnered with Komodo Health to leverage the largest, most comprehensive healthcare map in the U.S. to identify HCPs and HCOs that treat PSC patients.

Why isn't my doctor listed?

If your doctor is not on this list, it does NOT mean that they aren't capable or qualified to treat you or the individual with PSC. Providers on the list must be a relevant specialty, which includes Hepatologists, Gastroenterologists, Pediatricians, Internists, Hospitalists, Nurse Practitioners, and Physician Assistants. Specialists must have a moderate to high PSC patient volume, as defined by usage of the PSC ICD-10 diagnosis code (K83.01). Some providers may also have publications or clinical trials related to PSC. 

PSC Partners is not endorsing or recommending any provider or organization on this map.

Why isn't there a healthcare provider listed in my state?

If you live in a state without a healthcare provider that specializes in PSC, please expand your search by looking at nearby states or join our PSC Partners Patient Registry to view the Registry map of PSC healthcare providers used by our Registry members.

If you as a healthcare provider or organization would like to request to be removed or be considered for inclusion on this map, email contactus@pscpartners.org, or call 303-771-5227.