The impact of research cannot be overstated. At the heart of our mission is a deep commitment to advancing research that leads to effective treatments and ultimately, a cure for PSC.
Research Grant Program
Since launching the PSC Partners Research Grants program in 2007, PSC Partners has awarded 129 grants totaling $5.15 million USD to drive pioneering research worldwide. Learn more
View our 2024 Research Grant Impact Report
WIND-PSC
WIND-PSC is a patient-led global, prospective, multi-center observational study generating regulatory-quality data to support PSC drug development. It is actively enrolling up to 2,000 patients at up to 20 North America and Europe sites. Learn More
International Collaborative Research Network (ICRN)
The International Collaborative Research Network (ICRN) is a forum for global PSC experts and patient community members to collaborate on innovative research ideas and develop potential research proposals aligned with community priorities. Learn More
PSC Symptom Assessment Project
The PSC Symptom Assessment Project is a patient-partnered development of PSC-specific patient-reported outcome measures for potential use as validated clinical trial endpoints.
Acute Cholangitis Patient Experience Survey
The Acute Cholangitis Patient Experience Survey is a collaboration between PSC Partners, PSC Support (UK), and the Forum for Collaborative Research/PSC Forum. It is a multi-national survey of patients experiencing an acute cholangitis attack and describing their symptoms, treatments, and access to care. Over 450 responses have been received to date.
Clinical Trials
Clinical trials give patients a chance to take part in research. In a clinical trial, participants receive treatments or follow plans designed by researchers. These treatments include medicines, medical devices, procedures, and lifestyle changes like diet.
PSC Partners collaborates with investigators conducting clinical trials, whether pharmaceutical, biotech, or independent investigator-sponsored. We can add our patient perspective to the trial protocol and support trial enrollment through education. We also share clinical trial information with the PSC community. Clinical Trials
