2016 CONFERENCE
PSC Partners Seeking a Cure’s 12th annual conference for PSC patients and caregivers was held in New Haven, Connecticut from June 24-26, 2016 at the Omni New Haven in conjunction with the Yale Liver Center and Yale School of Medicine. For the 1st time the conference was held back to back with the first U.S. meeting of the International PSC Study Group (IPSCSG). The IPSCSG is a group of the top PSC researchers and hepatologists from 17 countries, whose aim is to coordinate PSC research projects between leading institutions worldwide. Members of this group gave presentations to our attendees on Saturday and Sunday.
Thank you to Dr. James Boyer, Dr. Mario Strazzabosco, Dr. Tom Karlsen and Dr. David Assis and their colleagues for providing the excellent speakers who broadened our perspectives and understanding of PSC. Our special thanks to the Yale Liver Center and Yale School of Medicine, the IPSCSG and our Long Term Premier Partner Illinois Tool Works. We are also indebted to all our conference sponsors. We thank all the members of our community who generously donated their time and funds to the PSC Partners Seeking a Cure organization.
Photograph acknowledgements to Karen Pearlman, K Pearlman Photography
THURSDAY JUNE 23
Casual Get Together/Dinner @ Fornarelli’s Ristorante
FRIDAY JUNE 24
Brunch at Anthony’s Ocean View
FRIDAY AFTERNOON BREAKOUT SESSIONS
WELCOME DINNER & IMPROV PERFORMANCE
SATURDAY JUNE 25
GENERAL SESSION 1 UNDERSTANDING PSC
| Moderator | Keith Lindor, MD |
| Cyriel Y. Ponsioen, MD, PhD |
New Insights into the Natural History of PSC Watch VideoDownload (8.77 MB) |
| John Eaton, MD |
Environmental Risk Factors and Primary Sclerosing Cholangitis Watch VideoDownload (20.4 MB) |
| Tom Karlsen, MD, PhD |
PSC and Genetic Factors Watch VideoDownload (10.1 MB) |
| Lindor, Ponsioen, Eaton, Karlsen |
Question and Answer – Panel Discussion Watch Video |
GENERAL SESSION 2 MANAGING PSC
| Moderators | Christoph Schramm, MD and Kidist Yimam, MD |
| Gideon Hirschfield, MD |
Looking After Patients with PSC: The Big Picture Approach Watch VideoDownload (11.7 MB) |
| Olivier Chazouilleres, MD |
Non-Invasive Assesment of PSC Progression Watch VideoDownload (2.7 MB) |
| Mark Topazian, MD |
Endoscopic Management of PSC: Is ERCP Helpful? Watch VideoDownload (10.1 MB) |
| Schramm, Yimam, Hirschfield, Chazouilleres, Topazian |
Question and Answer – Panel Discussion Watch Video |
GENERAL SESSIONS 3-4 : PSC AND THE FUTURE
| Moderators | David Goldberg, MD and Cynthia Levy, MD |
| Bertus Eksteen, MD, PhD |
Concepts and Key Issues Specific to PSC Transplant Assessment and Planning Watch VideoDownload (1.3 MB) |
| David Mulligan, MD |
New Paradigms for Transplant Surgery in PSC: MELD and Living Donor Considerations Watch VideoDownload (41.7 MB) |
| Christopher Bowlus, MD |
Seeking Treatments for PSC – Out of the Desert and into the Woods Watch VideoDownload (9.6 MB) |
| Ulrich Beuers, MD |
Future Directions in PSC Research Watch VideoDownload (7.4 MB) |
| Goldberg, Levy Eksteen, Mulligan Bowlus, Beuers | Question and Answer – Panel Discussion Watch Video |
BANQUET DINNER THEME INTERNATIONAL COSTUMES
KARAOKE!
SUNDAY JUNE 26
JOINT PLENARY SESSION WITH IPSCSG: SURROGATE AND PATIENT REPORTED OUTCOMES IN PSC
| Moderators | Erik Schrumpf, MD, PhD and Roger Chapman, BSc, MBBS, MD, FRCP, MA |
| Christopher Bowlus, MD |
Patient Registries – Collaboration, Competition, or Confusion? Download (396 KB) |
| Cyriel Ponsioen, MD, PhD |
Defining Surrogate Outcomes for PSC Download (3.9 MB) |
| David Assis, MD |
Defining Value Based and Patient-Reported Outcomes in PSC Download (1.0 MB) |
| Schrumpf, Chapman, Bowlus, Ponsioen, Assis | Question and Answer Panel Discussion |
| Ricky Safer, CEO PSC Partners Seeking A Cure |
Physician/Patient Future Collaboration Opportunities Download (1.3 MB) |
THANKS TO ALL THAT MADE THE 2016 CONFERENCE A HUGE SUCCESS!
2017 ANNUAL CONFERENCE
We are pleased to announce that PSC Partners Seeking a Cure’s 13th annual conference for PSC patients and caregivers will take place in Cleveland, Ohio from June 23-25, 2017. The conference will be held in partnership with the Cleveland Clinic Transplant Center, at the Intercontinental Hotel, on the grounds of the Cleveland Clinic main campus. Check back at pscpartners.org for more details!
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