PSC Medication Tetris

April 4, 2016
By PSC Partners
PSC Medication Tetris

Ok, I’m stubborn.  I play PSC Medication Tetris every week.  You remember Tetris, the computer game where you fit various shapes and try to fill all the empty spaces …

Several years ago when my post-transplant medicines were sufficiently reduced I purchased a compact – and cheap – 7 day pill caddy.  Using this compact container – after months of measuring out my pills into a  small suitcase – represented an exhilarating new freedom.  This sense of freedom grew ever stronger each time a medication was reduced or eliminated altogether.  At one point all I was taking were two small capsules twice daily.

In the intervening time I admittedly have suffered a few setbacks.  My PSC has returned and because of this and other complications my current pill load is many times greater.  Stubbornly, I still use the same compact pill case but to do so requires a very careful arrangement of each different pill shape to maximize the available space.

The anti-viral pills go first, one on edge and the others lying flat.  Then a layer of 6 tacrolimus  capsules, carefully stacked.  By orienting these first entrants to one side a small valley is created and into this go the prednisone tablets and blood thinner.  Next I add a single multi-vitamin paired with a magnesium supplement, and finally in front of these – but still on top of the underlying layers – I top off the space with vitamin D, a protonix tablet, and a baby aspirin. Altogether I get 17 pills into this tiny compartment, then repeat the process assembly line fashion to complete a full 7 days of medication.

Related Stories

Videos

Patient-Focused Drug Development Forum (PFDD)

On October 23, 2020, PSC Partners Seeking a Cure hosted an interactive virtual public meeting giving […]

Patient-Focused Drug Development Forum (PFDD)
Newsletter

The Duct Newsletter – May 2026

The Duct Newsletter – May 2026
Blog

How a Patient’s Self-Advocacy Changed Her Center’s MRCP Protocols

PSC is a rare disease, and some medical providers have little experience with it, so patients […]

How a Patient’s Self-Advocacy Changed Her Center’s MRCP Protocols
Newsletter

The Viaduct – Spring 2026

The Viaduct – Spring 2026

Take the First Step
Toward Connection

Stay connected to the PSC community. Get updates on research, events, and stories straight to your inbox.

Subscription Form

"*" indicates required fields

This field is hidden when viewing the form