PSC Partners Seeking a Cure’s 21st annual conference was held September 12-14, 2025, in Denver, Colorado. The event was co-hosted by Dr. Gideon Hirschfield and Audra Fleming, Executive Director of PSC Partners. Below are select conference presentations shared with permission from the presenters.
FRIDAY, SEPTEMBER 12
General Session I: Moving the Needle - Part A
How the Patient Voice Enhances Research from Bench to Bedside - Sonya MacParland, PhD
Coping with the Challenges of PSC - Sara Ahola Kohut, PhD, CPsych
PSC Nutrition: A Deeper Dive
Jennifer Lai, MD, MBA Presentation Summary
Breathing for Energy, Mental Clarity, and Sleep
Puneeta Tandon, MD, MSC, Presentation Summary
Pediatric PSC 101
Pediatric Primary Sclerosing Cholangitis - Shikha S. Sundaram, MD, MSCI
Communicating Patient Experiences with Fatigue, Brain Fog & Liver Pain
Donna Evon and Brian Thorsen Presentation Summary
PSC 201: Test Results & Imaging
Sayed 'Obi' Aseem, MD, PhD, Presentation Summary
Communicating Patient Experiences with Fatigue, Brain Fog & Liver Pain
PSC Partners' Symptom Assessment Project - Donna M. Evon, PhD, Brian Thorsen
PSC & IBD Research Updates
Probing New Generation Immunotherapy Approaches Using a New Mouse Model of PSC-associated Cholangiocarcinoma - Yury Popov, MD, PhD
General Session II: Clinical Trials - Industry Updates
Why It's Important to Be in a Clinical Trial - Christopher Bowlus, MD
Committed to Advancing Research in Cholestatic Liver Disease - Joanne Quan, MD
Ipsen Clinical Trials Update: Primary Sclerosing Cholangitis - Benjamin Miller, PharmD
Esperion's Next Generation ACLY Inhibition PSC Discovery Program - Heather Powell, PharmD
SATURDAY, SEPTEMBER 13
Pediatric 201: Coping as a Family
Loss and Grief While Living with Primary Sclerosing Cholangitis - Sara Ahola Kohut, PhD, CPsych
General Session II: Moving the Needle Part B
New Ways to Diagnose and Monitor CCA - Pedro M. Rodrigues, PhD and Juane Valle MB ChB, MSc FRCP
