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Annual PSC Partners Conference

Three PSC researchers, a woman and two men, sit behind a table with microphones. They are all smiling.

Annual PSC Partners Patient and Caregiver Conference

The 20th Anniversary PSC Partners Annual Conference took place on October 18-20, 2024, Phoenix, Arizona.

Click HERE for more information.

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This graphic features four photos of groups of smiling people from a PSC Partners Conference. In the middle, it says Keep smiling until we can meet, again, in person.

PSC Partners Seeking a Cure holds a conference every year, when able, often in conjunction with a major medical center. The Conference draws patients and caregivers together (spouses, partners, parents, siblings, and friends of PSC patients) to learn about the latest research on treatments, medications, procedures, and  disease outlook. There are support and discussion sessions with physicians and with other attendees. Speakers at our conferences are leaders in the PSC world, and they come from the U.S. as well as international PSC treatment and research centers.

Time also is set aside for fun and entertainment. Many participants say the conference is life-changing. Friendships are forged, and attendees go back home with renewed energy to cope with PSC, both medically and emotionally.

Attendee Testimonials
Two women stand side-by-side smiling at the camera. The woman on the left is wearing a grey PSC Partners sweatshirt.

“I just want to say, this weekend was one of the best experiences of my life, no lie. I am not usually comfortable meeting new people and I haven’t traveled alone in many years, but I can honestly say I have never felt more comfortable! Thank you for your love and support. I had an incredible time!”

“This was my first time at the PSC Partners conference. I did not know what to expect, but I was very happy to finally meet not just one other person with PSC but many, many more. I was assigned a mentor who walked me through what to expect and this helped ease my anxiety. I met so many great people who are able to identify with what I have been through.”

Three young adult males sit side-by-side smiling widely at the camera. One is waving. Conference goers can be seen sitting at other tables behind them.

"All I can say is that it was the most rewarding task/experience I have ever taken on. I will always remember how many attendees we touched here and what a wonderful weekend it was."

“The teens embraced my teenager who is the PSCer, and it was an amazing experience for him. Keep doing what you are doing for the teens…It is unmatched!"

Two young adult males sit side-by-side at a conference table. They are both smiling at the camera.

"It was impossible not to feel the sense of hope in the room as we heard from the brilliant minds working on a breakthrough, and to know that PSC Partners is contributing to that work with the data we collect in the Patient Registry and the funds we raise for grants made it even more gratifying."

"There’s a certain comfort that comes with being surrounded by other people who just get it. At the PSC Partners Conference in June, that comfort was everywhere: in our smiles, our tears, our laughter, our embraces."

Two women, one older than the other, sit smiling at the camera.

"I now know that, every year, I will learn something new at every conference."

"Now that I am post-liver transplant, I not only shared my experience with those who wanted to know what it was like, but, as I spend time in my small group of post-transplantees, I have learned that our experiences continue to be very different. We are able to offer each other a lot of support and talk through issues."

"We love participating in the conference. You never just attend! The conference is like a family reunion every year!"

PSC researcher Gideon Hirschfield stands at a podium behind a microphone talking. The podium has a PSC Partners logo on it.

"My heart felt bigger, and so did my brain! At the sessions led by physicians and researchers, I finally got my questions answered about interpreting lab results, and now I actually understand what happens during an ERCP." 

"Web searching for more PSC-specific information brought us to PSC Partners Seeking a Cure. What we learned there gave us courage, comfort and knowledge to confront our son’s condition."

"(As a conference co-chair,) it was a tremendous feeling to help bring together these motivated people who put their collective passion for research and advocacy into action. We wanted to share that sense of hopefulness and purpose with the new attendees who joined us from all over the world."

Three women stand side-by-side. They are all wearing red, white, and blue costumes. The one in the middle has her arms around the other two.

"The first person I saw was Ricky Safer. She saw my nametag, gave me a huge hug, and I haven't been alone on my journey since then. Two days later, I left with a handful of friends, a better understanding of what my life could hold in store, and without the fear that I had brought with me from home."

"Working with Ricky to plan this meeting was a pleasure and a privilege. Thank you for entrusting me with such a special event!"

A man stands smiling behind a podium. Beside him is a long table with a panel of four seated people, two women in the middle and a man on either end.

Have Ideas or Questions?

We’re eager to start planning future conferences. Have suggestions for conference locations, Saturday eve. gala themes, or other ideas? Have questions?

Please write to us at contactus@pscpartners.org

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