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Annual PSC Partners Conference

Annual Conference for Patients and Caregivers

PSC Partners Seeking a Cure holds a conference every year in conjunction with a major medical center. The conference draws patients and caregivers (spouses, partners, parents, siblings, and friends of PSC patients) to learn about the latest research on treatments, medications, procedures, and  disease outlook. There are support and discussion sessions with physicians and with other attendees. Speakers at our conferences are leaders in the PSC world, and they come from the U.S. as well as international PSC treatment and research centers.

Time also is set aside for fun and entertainment. Many participants say the conference is life-changing. Friendships are forged, and attendees go back home with renewed energy to cope with PSC, both medically and emotionally.

  • Learn more about our 2021 upcoming conference in Boston, June 11-13, 2021.
  • In lieu of our 2020 Conference, PSC Partners has launched a series of webinars to ensure that our community stays informed and educated about primary sclerosing cholangitis (PSC) research, treatments, and more. 
  • Take a look at the material and media from our previous conferences.
  • Previous additions of our newsletter The Duct also cover the conference in detail.
  • Download the Annual Conference FAQ Sheet for answers to commonly asked questions.
  • Add your email address to our mailing list to get updated Conference information.

Attendee Testimonials

I just want to say, this weekend was one of the best experiences of my life, no lie. I am not usually comfortable meeting new people and I haven’t traveled alone in many years, but I can honestly say I have never felt more comfortable! Thank you for your love and support. I had an incredible time!”

“This was my first time at the PSC Partners conference. I did not know what to expect, but I was very happy to finally meet not just one other person with PSC but many, many more. I was assigned a mentor who walked me through what to expect and this helped ease my anxiety. I met so many great people who are able to identify with what I have been through.”

"All I can say is that it was the most rewarding task/experience I have ever taken on. I will always remember how many attendees we touched here and what a wonderful weekend it was."

The teens embraced my teenager who is the PSCer, and it was an amazing experience for him. Keep doing what you are doing for the teens…It is unmatched!"

"It was impossible not to feel the sense of hope in the room as we heard from the brilliant minds working on a breakthrough, and to know that PSC Partners is contributing to that work with the data we collect in the Patient Registry and the funds we raise for grants made it even more gratifying."

"There’s a certain comfort that comes with being surrounded by other people who just get it. At the PSC Partners Conference in June, that comfort was everywhere: in our smiles, our tears, our laughter, our embraces."

"I now know that every year I will learn something new at every conference."

"Now that I am post-liver transplant, I not only shared my experience with those who wanted to know what it was like, but, as I spend time in my small group of post-transplantees, I have learned that our experiences continue to be very different. We are able to offer each other a lot of support and take through issues."

"We love participating in the conference. You never just attend! The conference is like a family reunion every year!"

"My heart felt bigger, and so did my brain! At the sessions led by physicians and researchers, I finally got my questions answered about interpreting lab results, and now I actually understand what happens during an ERCP." 

"Web searching for more PSC-specific information brought us to PSC Partners Seeking a Cure. What we learned there gave us courage, comfort and knowledge to confront our son’s condition."

"(As a conference co-chair,) it was a tremendous feeling to help bring together these motivated people who put their collective passion for research and advocacy into action. We wanted to share that sense of hopefulness and purpose with the new attendees who joined us from all over the world."

"The first person I saw was Ricky Safer. She saw my nametag, gave me a huge hug, and I haven't been alone on my journey since then. Two days later, I left with a handful of friends, a better understanding of what my life could hold in store, and without the fear that I had brought with me from home."

"Working with Ricky to plan this meeting was a pleasure and a privilege. Thank you for entrusting me with such a special event!"


Have Ideas or Questions?

We’re eager to start planning future conferences. Have suggestions for conference locations, Saturday eve. gala themes, or other ideas? Have questions?

Please write to us at contactus@pscpartners.org


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