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COVID-19 Information

ON THIS PAGE, WE WILL POST UP-TO-DATE INFORMATION ABOUT THE COVID-19 PANDEMIC, AS IT RELATES TO PRIMARY SCLEROSING CHOLANGITIS (PSC). FOR INFORMATION SPECIFIC TO YOUR HEALTH, ALWAYS CHECK WITH YOUR MEDICAL PROVIDER.


Webinar



LINKS TO COVID-19 VACCINE-SPECIFIC INFORMATION


COVID-19-RELATED WEBINARS

(Click here for all webinars in the PSC Partners Seeking a Cure 2020 Conference Series.)

Third PSC Partners COVID-Related Webinar

UPDATE ON COVID 19 FOR THE PSC PATIENT: WHAT YOU NEED TO KNOW TO NAVIGATE THROUGH THE LATEST INFORMATION

5-3-2020

Presenters: 

Gideon Hirschfield, MD, Professor and Chair, University of Toronto Liver Centre 

Cynthia Levy, MD, Professor, University of Miami

Stephen Rossi, PharmD, Clinical Consultant, PSC Partners 

With moderators PSC Partners CEO Ricky Safer and PSC Partners Canada President Mary Vyas

Click here to view webinar.


Second PSC Partners COVID-Related Webinar

COPING WITH PSC FOR PATIENTS & CAREGIVERS AND EPIDEMIC PSYCHOLOGY

4-29-2020

Presenters:

Dr. Jerome Schofferman, a retired physician and post-transplant PSC patient

Dr. Sally Holland, a psychotherapist and PSC caregiver

With moderators PSC Partners CEO Ricky Safer and PSC Partners Canada President Mary Vyas

Click here to view the webinar.


First PSC Partners COVID-Related Webinar

PSC/IBD AND COVID-19 (CORONAVIRUS): WHAT YOU WANT TO KNOW

3-19-2020

Presenters:

Gideon Hirschfield, MD, Professor and Chair, University of Toronto Liver Centre 

Josh Korzenik, MD, Brigham and Women's Hospital, Director of Crohn's and Colitis Center

Jerome Schofferman, a retired physician and post-transplant PSC patient

With moderators PSC Partners CEO Ricky Safer and PSC Partners Canada President Mary Vyas

Click here to view webinar.


PSC & COVID-19 - Survey

We are witnessing a surge in COVID-19 registries for liver diseases, but none are PSC-specific. We hope very few in our community will have COVID-19, but knowing the impact of this virus on the PSC community may shed new light on PSC.

Please participate if: 

  • you have/had/suspect having COVID-19
  • AND you have PSC or had a liver transplant due to PSC

We all know that the complications of COVID-19 can be extremely serious. If you are a caregiver of a PSCer who is unable to complete the survey or is deceased, please complete the survey on their behalf. 

PSC patients worldwide are invited to join us in sharing the survey. Aggregated information will be shared publicly in a de-identified format.

To take the survey, please click here.


LINKS TO IMPORTANT AND INTERESTING COVID-19 (CORONAVIRUS) INFORMATION:

We have gathered links to articles and websites that provide more details about the current pandemic.

Newest links are at the top of the list.

CLICK LOGOS BELOW FOR UP-TO-DATE COVID-19 (CORONAVIRUS) INFORMATION.

Complete your profile and join PSC Partners Seeking a Cure in advancing PSC research towards a cure.