ON THIS PAGE, WE WILL POST UP-TO-DATE INFORMATION ABOUT THE COVID-19 PANDEMIC, AS IT RELATES TO PRIMARY SCLEROSING CHOLANGITIS (PSC). FOR INFORMATION SPECIFIC TO YOUR HEALTH, ALWAYS CHECK WITH YOUR MEDICAL PROVIDER.
LINKS TO COVID-19 VACCINE-SPECIFIC INFORMATION
Articles listed from newest to oldest
- Free N95 Masks Coming Soon
- New CDC Mask Guidelines (Jan. 2022)
- Free COVID tests mailed directly to you.
- Substantial humoral immune response observed in IBD patients after COVID-19 vaccine series: Article from Healio Gastroenterology
- CDC Information: Who is Eligible for a COVID-19 Booster Shot.
- Updated CDC recommendations regarding COVID-19 booster for immunocompromised patients.
- Four global liver disease organizations strongly recommend COVID-19 vaccinations for patients with liver disease. See statement here.
- A recent study raises the question about COVID-19 vaccine protection for immunocompromised people. Listen to a MedPageToday video interview with study author Dr. Dorry Segev, MD, PhD, at Johns Hopkins University.
- If you have questions, please contact your specialist for more information. PSC Partners is currently discussing ways to do PSC-specific follow-up regarding the efficacy of the COVID-19 vaccine for PSC and post-transplant patients. Watch our monthly newsletter and social media pages for more information.
- New guidelines from the CDC for fully-vaccinated people.
- Routine Vaccination During the COVID-19 Outbreak: Info from CDC
- CDC: Fully vaccinated people do not have to quarantine after COVID-19 exposure From Healio
- AASLD EXPERT PANEL CONSENSUS STATEMENT: VACCINES TO PREVENT COVID-19 INFECTION IN PATIENTS WITH LIVER DISEASE Please also review Supplemental Table 1. Recommended Vaccines in Adults with Chronic Liver Disease and Solid Organ Transplant Recipients on page 36.
- GI symptoms plus loss of taste, smell, fever highly specific to COVID-19: From Healio
- How did we develop a COVID-19 vaccine so quickly?: From Medical News Today
- How do COVID-19 vaccines compare with other existing vaccines?: From Medical News Today
- Coronavirus Vaccines Can Have Side Effects. That typically means they’re working: From Washington Post
- Information for People with Certain Medical Conditions: From the CDC
PSC & COVID-19 - Survey
We are witnessing a surge in COVID-19 registries for liver diseases, but none are PSC-specific. We hope very few in our community will have COVID-19, but knowing the impact of this virus on the PSC community may shed new light on PSC.
Please participate if:
- you have/had/suspect having COVID-19
- AND you have PSC or had a liver transplant due to PSC
We all know that the complications of COVID-19 can be extremely serious. If you are a caregiver of a PSCer who is unable to complete the survey or is deceased, please complete the survey on their behalf.
PSC patients worldwide are invited to join us in sharing the survey. Aggregated information will be shared publicly in a de-identified format.
To take the survey, please click here.
COVID-19-RELATED WEBINARS
(Click here for all webinars in the PSC Partners Seeking a Cure 2020 Conference Series.)
Third PSC Partners COVID-Related Webinar
UPDATE ON COVID 19 FOR THE PSC PATIENT: WHAT YOU NEED TO KNOW TO NAVIGATE THROUGH THE LATEST INFORMATION
5-3-2020
Presenters:
Gideon Hirschfield, MD, Professor and Chair, University of Toronto Liver Centre
Cynthia Levy, MD, Professor, University of Miami
Stephen Rossi, PharmD, Clinical Consultant, PSC Partners
With moderators PSC Partners CEO Ricky Safer and PSC Partners Canada President Mary Vyas
Second PSC Partners COVID-Related Webinar
COPING WITH PSC FOR PATIENTS & CAREGIVERS AND EPIDEMIC PSYCHOLOGY
4-29-2020
Presenters:
Dr. Jerome Schofferman, a retired physician and post-transplant PSC patient
Dr. Sally Holland, a psychotherapist and PSC caregiver
With moderators PSC Partners CEO Ricky Safer and PSC Partners Canada President Mary Vyas
Click here to view the webinar.
First PSC Partners COVID-Related Webinar
PSC/IBD AND COVID-19 (CORONAVIRUS): WHAT YOU WANT TO KNOW
3-19-2020
Presenters:
Gideon Hirschfield, MD, Professor and Chair, University of Toronto Liver Centre
Josh Korzenik, MD, Brigham and Women's Hospital, Director of Crohn's and Colitis Center
Jerome Schofferman, a retired physician and post-transplant PSC patient
With moderators PSC Partners CEO Ricky Safer and PSC Partners Canada President Mary Vyas
FROM CENTER FOR DISEASE CONTROL (CDC)
LINKS TO IMPORTANT AND INTERESTING COVID-19 (CORONAVIRUS) INFORMATION:
We have gathered links to articles and websites that provide more details about the current pandemic.
Newest links are at the top of the list.
- COVID-19 and the Liver: AASLD Webinar Series
- UNOS: Transplant Patients and COVID-19: Navigating the Risks: Medscape Coronavirus pandemic is difficult for everyone, but brings special challenges for transplant patients. This UNOS site has vital information, including frequently asked questions.
- Marketplace Health Plan & Coronavirus: All Marketplace plans cover treatment for pre-existing medical conditions and can’t terminate coverage due to a change in health status, including diagnosis or treatment of COVID-19. While your coverage benefits will remain the same, you should log in to update your Marketplace application if COVID-19 impacts your income or household. You may be able to change your plan if certain situations apply.
- How to Prevent Spreading of GI Viruses in the Age of COVID-19: Advice from Digestive Disease Experts from the American College of Gastroenterology
CLICK LOGOS BELOW FOR UP-TO-DATE COVID-19 (CORONAVIRUS) INFORMATION.
Complete your profile and join PSC Partners Seeking a Cure in advancing PSC research towards a cure.
