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COVID-19 Information

ON THIS PAGE, WE WILL POST UP-TO-DATE INFORMATION ABOUT THE COVID-19 PANDEMIC, AS IT RELATES TO PRIMARY SCLEROSING CHOLANGITIS (PSC). FOR THE MOST RELIABLE INFORMATION, ALWAYS CHECK WITH YOUR MEDICAL PROVIDER.


UPCOMING COVID-19-RELATED ACTIVITIES

ZoomRooms

ZoomRooms, like our conference Peer Group meetings, are for patients or family/caregivers to (virtually) meet and discuss topics which are important to them. These casual discussions are private and confidential for participants.

  • June 27, 2020, 9 a.m. MDT: ZoomRoom Virtual Get-Together for 40-and-over PSCers (Males & females will be split into separate rooms.) Registration required. Click here to register.

Additional PSC Partners 2020 Conference Webinars, ZoomRoom Get-Togethers, and more will be coming soon. Check back here, watch our social media pages, and monitor the newsletter for updates.


PAST WEBINARS

Second Webinar in the PSC Partners 2020 Annual Conference Series:

UPDATE ON COVID 19 FOR THE PSC PATIENT: WHAT YOU NEED TO KNOW TO NAVIGATE THROUGH THE LATEST INFORMATION

5-3-2020

This webinar featured: Gideon Hirschfield, MD, Professor and Chair, University of Toronto Liver Centre

Cynthia Levy, MD, Professor, University of Miami

Stephen Rossi, PharmD, Clinical Consultant, PSC Partners

Click here to view webinar.

First Webinar in the PSC Partners 2020 Annual Conference Series:

COPING WITH PSC FOR PATIENTS & CAREGIVERS AND EPIDEMIC PSYCHOLOGY

4-29-2020

The interactive session featured Dr. Jerome Schofferman, a retired physician and post-transplant PSC patient, and Dr. Sally Holland, a psychotherapist and PSC caregiver.

Click here to view the webinar.

PSC/IBD AND COVID-19 (CORONAVIRUS): WHAT YOU WANT TO KNOW

Webinar with Three Medical Experts, who discuss COVID-19 as it relates to primary sclerosing cholangitis (PSC) and IBD. 3-19-2020

View the webinar here.


PSC & COVID-19 - Survey

We are witnessing a surge in COVID-19 registries for liver diseases, but none are PSC-specific. We hope very few in our community will have COVID-19, but knowing the impact of this virus on the PSC community may shed new light on PSC.

Please participate if: 

  • you have/had/suspect having COVID-19
  • AND you have PSC or had a liver transplant due to PSC

We all know that the complications of COVID-19 can be extremely serious. If you are a caregiver of a PSCer who is unable to complete the survey or is deceased, please complete the survey on their behalf. 

PSC patients worldwide are invited to join us in sharing the survey. Aggregated information will be shared publicly in a de-identified format.

To take the survey, please click here.


LINKS TO IMPORTANT AND INTERESTING COVID-19 (CORONAVIRUS) INFORMATION:

We have gathered links to articles and websites that provide more details about the current pandemic.

Newest links are at the top of the list.

CLICK LOGOS BELOW FOR UP-TO-DATE COVID-19 (CORONAVIRUS) INFORMATION.

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