"PSC Partners Seeking a Cure" Conference, 2006

The PSC Partners Seeking a Cure foundation held its Second Annual Conference in Pittsburgh, PA, from April 7-9, 2006 [.pdf] at the Pittsburgh Marriott City Center:

MARRIOTT
PITTSBURGH CITY CENTER
112 Washington Place
Pittsburgh, PA 15219
(412) 471-4000
(Near Mellon Arena)

Arne Myrabo has kindly compiled digital photographs taken by himself at the conference (see: Photo Gallery) (Copyright 2006 Arne Myrabo. All rights reserved).

The weekend was as follows:

Please click on the links below to view the speaker's slide presentations. The presentations are available in Portable Document Format [.pdf], meaning that you will need the free Adobe Acrobat Reader installed on your computer in order to read the files. Please me patient in downloading the files as some of them are quite large (> 9 MB).

Friday April 7:

5:30 - 7:30 pm: Registration and Reception

Saturday April 8:

Continental Breakfast (7:00-8:00 am)

Opening Remarks (8:00-8:10 am) Don and Ricky Safer, PSC Partners Seeking a Cure Foundation

• Presentation One (8:10-8:40 am)
  Keynote Speaker, Dr. Keith Lindor, Mayo Clinic, Rochester, MN
  PSC - An Overview [.pdf] (1641 KB)
  (Copyright 2006 Dr. Keith Lindor. All rights reserved)
   
• Presentation Two (8:40-9:05 am)
  Dr. Adam Slivka, UPMC
  Role of the Endoscopist [.pdf] (1161 KB)
  (Copyright 2006 Dr. Adam Slivka. All rights reserved)
   
• Presentation Three (9:05-9:30 am)
  Dr. Nora Bergasa, SUNY Downstate Medical Center
  Itching in Cholestasis [.pdf] (542 KB)
  (Copyright 2006 Dr. Nora Bergasa. All rights reserved)
   
• Question and Answer Panel (9:30-10:15 am) Above Three Speakers

Break (10:15-10:30 am)

• Presentation Four (10:30-10:50 am
  Dr. Kapil Chopra, Mayo Clinic, Phoenix
  Medical Management of PSC [.pdf] (9114 KB)
  (Copyright 2006 Dr. Kapil Chopra. All rights reserved)
   
• Presentation Five (10:50-11:10 am)
  Dr. Thomas Shaw-Stiffel, UPMC
  Transplant Workup and Outcomes [.pdf] (965 KB)
  (Copyright 2006 Dr. Thomas Shaw-Stiffel. All rights reserved)
   
• Presentation Six (11:10-11:30 am)
  Dr. Kusum Tom, Starzl Transplantation Institute
  Liver Transplant [.pdf] (77KB)
  (Copyright 2006 Dr. Kusum Tom. All rights reserved)
   
• Question and Answer Panel (11:30-12:15 pm) Above Three Speakers

Box Lunch (12:15-1:15 pm)

• Presentation Seven (1:15-1:35 pm)
  Dr. Leonard Baidoo, UPMC
  IBD in PSC [.pdf] (103 KB)
  (Copyright 2006 Dr. Leonard Baidoo. All rights reserved)
   
• Presentation Eight (1:35-1:55 pm)
  Dr. Laura Matarese, UPMC
  Nutrition for PSC and IBD [.pdf] (972 KB)
  (Copyright 2006 Dr. Laura Matarese. All rights reserved)
   
• Presentation Nine (1:55-2:10 pm)
  David Rhodes, PSC Partners Seeking a Cure Foundation
  Update on PSC Research [.pdf] (746 KB)
  (Copyright 2006 David Rhodes. All rights reserved)
   
• Presentation Ten (2:10-2:20 pm)
  Dr. Dennis Black, Morgan Foundation
  The Morgan Foundation [.pdf] (571 KB)
  (Copyright 2006 Dr. Dennis Black. All rights reserved)
   
• Question and Answer Panel (2:30-2:45 pm) Above Four Speakers

Break (2:45-3:00 pm)

Breakout Sessions: Session 1 (3:00-3:30 pm) Pick 1

• Quality of Life for Children with a Chronic Illness - Dr. Robert Noll, Children’s Hospital of Pittsburgh
• Nance Conney, Starzl Transplantation Institute
  Organ Allocation - How the Process Works [.pdf] (814 KB)
• (Copyright 2006 Nance Conney. All rights reserved)
• Meditation - Dorit Baurer

Breakout Sessions: Session 2 (3:30-4:05 pm) Pick 1

• Stress Management - Jerry DeNucci, Highmark Blue Cross Blue Shield
• Disability/Social Security - Glenn Sinko, Esq.
• Nance Conney, Starzl Transplantation Institute
  Organ Allocation - How the Process Works [.pdf] (814 KB)
  (Copyright 2006 Nance Conney. All rights reserved)

Evening Dinner Reception (6:00-8:00 pm) Chris Klug, PSC Patient, Transplant Recipient, Olympic Medalist - To the Edge and Back

Sunday April 9:

Continental Breakfast (7:30-8:30 am)

Presentation (8:30-9:00 am) Update on Dr. Chapman’s Research - Ivor Sweigler, PSC UK Support Group

Roundtable Discussions (9:00-10:15 am)

Break (10:15-10:30 am)

Roundtable Discussions (10:30-11:45 am)

Closing Remarks (11:45-12:00 pm) Don and Ricky Safer, PSC Partners Seeking a Cure Foundation

We are extremely grateful to the following Corporate Partners who sponsored our 2006 Conference [.pdf] (54 KB):

• Gold level: Astellas Pharma
• Silver level: American Liver Foundation - Western Pennsylvania Chapter
• Bronze level: Axcan Scandipharm
• Bronze level: Roche Pharmaceuticals
• Copper level: ConAgra Foods
• Copper level: UPMC - Thomas Starzl Transplantation Institute
• Other sponsors: AAA Environmental