PSC Partners Seeking a Cure Foundation

Working together to provide research,
education, and support for people
affected by Primary Sclerosing Cholangitis

PSC Partners Seeking a Cure Foundation: 2007 Conference Agenda

All conference events were held at the Hyatt Regency Tech Center, Denver, CO

Photographs courtesy of Joanne Hatchett, Lee Bria and David Rhodes

Friday, April 13, 2007

5:30 pm to 7:30 pm Registration and Hors d’oeuvre Welcome Reception

Saturday, April, 14, 2007

Please be patient in downloading the presentations; some of them are quite large (> 9 MB). All presentations are in portable document format [.pdf], meaning that you will need the free Adobe Acrobat Reader installed on your computer in order to read them.

7:00 am to 8:00 am Continental Breakfast

8:00 am to 9:35 am

• Opening Remarks - (8:00-8:10) Don & Ricky Safer, PSC Partners Seeking a Cure Foundation
• Presentation 1 (8:10-8:20) Introduction to PSC: The “Top Ten” Issues for Patients and Families [.pdf] (656 KB) [Copyright Gregory Everson, all rights reserved] - Keynote Speaker - Dr. Gregory Everson, University of Colorado Health Sciences Center (UCHSC)
• Presentation 2 (8:20-8:40) Immunology of Primary Sclerosing Cholangitis [.pdf] (2018 KB) [Copyright John Vierling, all rights reserved] - Dr. John Vierling, Baylor College of Medicine and Current President of American Association for the Study of Liver Diseases
• Presentation 3 (8:40-9:00) Bile Duct Function and Sclerosing Cholangitis [.pdf] (2607 KB) [Copyright Gregory Fitz, all rights reserved] - Dr. Gregory Fitz, UT Southwestern
• Question & Answer Panel (9:00-9:35); Moderator: Dr. Hugo Rosen (UCHSC); Panel: Drs. Everson, Vierling, Fitz

9:35 am to 10:15 am

• Presentation 4: (9:35-9:55) Medical Therapy of PSC - Dr. Lisa Forman, UCHSC
• Presentation 5: (9:55-10:15) The Endoscopic Management of PSC [.pdf] (448 KB) [Copyright Raj Shah, all rights reserved] - Dr. Raj Shah, UCHSC

10:15 am to 10:35 am Break/snacks

10:35 am to 12:15 pm

• Presentation 6: (10:35-10:55) Intestinal Helminths: A New Approach to Therapy of Inflammatory Bowel Disease [.pdf] (9487 KB) [Copyright Doug LaBrecque, all rights reserved] - Dr. Doug LaBrecque, University of Iowa
• Presentation 7: (10:55-11:15) PSC and Liver Transplant [.pdf] (173 KB) [Copyright James Trotter, all rights reserved] - Dr. James Trotter, UCHSC
• Question and Answer Panel on Liver Transplantation (11:15 am-12:15 pm); Moderators: Dr. Gregory Everson and Dr. Igal Kam (UCHSC); Panel: Drs. Forman, Shah, LeBrecque, Trotter, Vierling, and Rosen

12:15 pm to 1:15 pm Lunch

1:15 pm to 1:35 pm

• Presentation 8: Primary Sclerosing Cholangitis in Pediatrics [.pdf] (428 KB) [Copyright Ron Sokol, all rights reserved] - Dr. Ron Sokol, The Children’s Hospital-Denver

1:35 pm to 2:35 pm

• Question and Answer Panel on Social and Financial Issues Related to PSC; Moderator: Dr. Doug LaBrecque; Panelists: Cathy Ray - Clinical Nurse Specialist in Hepatology (UCHSC); Michael Talamantes - Social Worker - Liver Transplantation (UCHSC); Traci Steinberg - Transplant Coordinator (UCHSC); Fabi Imo - Financial Coordinator (UCHSC); Ike Kim - Pharmacy Coordinator (UCHSC)

2:40 pm to 3:40 pm Breakout Sessions - Choose ONE of the following sessions:

• Session I: Question and Answer Panel on Pediatric PSC; Moderator: Dr. Mike Narkewicz; Panelists: Dr. Ron Sokol, The Children’s Hospital - Denver; Dr. Mike Narkewicz, The Children’s Hospital-Denver; Dr. Cara Mack, The Children’s Hospital - Denver
• Session II: Question and Answer Panel on Complementary Alternative Therapies; Moderator: Dr. Lyn Patrick; Panelists: Mel Drisko - Acupuncturist, UCHSC; Dr. Lyn Patrick - Naturopathic Physician (ND), Durango CO (Naturopathic Medicine Approach to PSC and UC [.pdf] [Copyright Lyn Patrick, all rights reserved]); Karen Falbo - Certified Nutritionist, Vitamin Cottage (The Liver: Health & Support of the “Chief Metabolic Organ” [.pdf] (125 KB) [Copyright Karen Falbo, all rights reserved]); Jann Gest - Yoga instructor, Aurora Community College

3:40 pm to 4:00 pm Break/snacks

4:00 pm to 4:15 pm 

• Genes Affecting IBD and PSC Susceptibility and Severity [.pdf] (701 KB) [Copyright David Rhodes, all rights reserved] - Dave Rhodes, PhD, Board Member - PSC Partners Seeking a Cure

4:15 pm to 4:30 pm

• Wrap-up - Dr. Gregory Everson, Don and Ricky Safer

6:30 pm to 8:30 pm

• Evening Banquet; Chris Klug, PSC Patient, Transplant Recipient, Olympic Medalist - To the Edge and Back

Sunday, April 15, 2007

7:00 am to 8:00 am

• Continental Breakfast

8:00 am to 8:15 am

• Presentation: Update on Dr. Chapman’s Research, Ivor Sweigler, PSC UK Support Group

8:15 am to 8:45 am

• PSC Partners - Foundation Progress Report (David Rhodes - update on PSC Partners’ supported research and Deborah Wente - foundation financial report)

8:45 am to 10:15 am

• Open Forum/Support Group - (Male PSCers/Female PSCers/ Parents of PSCers/ Spouses and other caregivers of PSCers)

10:15 am to 10:30 am Break

10:30 am to 11:45 am

• Open Forum/Support Group - (Male PSCers/Female PSCers/ Parents of PSCers/ Spouses and other caregivers of PSCers)

11:45 am to 12:00 pm

• Closing Remarks - Don & Ricky Safer, PSC Partners Seeking a Cure Foundation