2018 CONFERENCE
PSC Partners Seeking a Cure’s 14th annual conference for PSC patients and caregivers was held in Sacramento, California from June 22-24, 2018 at the Sheraton Grand Sacramento Hotel in conjunction with the UC Davis Medical Center.
QUICK LINKS
Thank you to Dr. Christopher Bowlus at the University of California Davis Medical Center for assembling the excellent speakers who broadened our perspectives and understanding of PSC. Our special thanks to the UC Davis Medical Center and all our conference sponsors. We thank all the members of our community who generously donated their time and funds to the PSC Partners Seeking a Cure organization.
Photograph acknowledgements to Rachel Gomel, Benjamin Hatchett, and Steve Hatchett!
PRE-CONFERENCE ACTIVITIES
FRIDAY, JUNE 22
FRIDAY MORNING GENERAL SESSION
| Misha Ruth Cohen, OMD | Integrated Chinese Medicine and PSC: Accessing the Best of East and West (71 MB) |
FRIDAY AFTERNOON BREAKOUT SESSIONS
| Christopher Bowlus, MD | Basics of PSC (5.7 MB) |
| Kidist K. Yimam, MD | Pre-Transplant Considerations: When and Where to Consider Liver Transplant Evaluation for PSC (4.8 MB) |
| Sunpreet Kaur, MD Dishad Kassam-Lallani, BDN | PSC in Kids: The Medical Side of Pediatric PSC (2.5 MB) & Transitioning from Pediatric to Adult Care Slides (0.8MB) Patient Story (0.1MB) |
| Cindy Dunn, FNAO, Certified Instructor | T’ai Chi Chih for PSC Patients and Caregivers |
| Christina Sheppard, Transplant Financial Coordinator Randy Oates, COO (Ret) Iron Health & PSC Patient |
Navigating Medical Insurance Sheppard (0.4 MB) Oates (0.1 MB) |
| Moderator: Britt Moore, PSC Patient Panelists: Lindsey Nanz, Travis Stoltzfus Young Adult PSC Patients | Every Question is Fair Game: Panel of Young Adult PSCers Answer Your Questions |
| Marion Peters, MD | Managing Complications of Cirrhosis (0.6 MB) |
| Moderator: Jerome Schofferman, MD, Post-Transplant PSC Patient Panelists: Mary Vyas, Jane Weyer, Sheila Finnerty, Wes Hendrix, PSC Caregivers | PSC Caregivers: The Stresses and Rewards of Being a Caregiver (0.4MB) |
| Lisa Pedicone, PhD, and Parent of a PSCer | Clinical Trials: The ABCs of What They Are and Why They Are Important (6.2 MB) |
| Jesse Stondell, MD, Assistant Professor, Division of Gastroenterology and Hepatology, UC Davis School of Medicine | IBD and PSC (2.0 MB) |
| Sam Siegel, MD and Samantha Siegel, MD | Medical Information: What and Whom Do I Trust |
| Nancy Lane, MD | Bone Health and PSC |
| Christopher Bowlus, MD | Interpreting Your Test Results |
| Kidist K. Yimam, MD | Post-Transplant Management, Complications and Outcomes in PSC (2.0 MB) |
| Moderator: Richard Ayuen, Live Donor, Parent of PSCer. Panelists: Tawny Blum, Christer Hiort, Serbrina Vasquez, Post-Transplant PSC Patients and Sharon Nanz, Parent of Post-Transplant PSC Patient | Q & A Session: Everything You Want to Ask About the Transplant Experience |
| Vincent S. Fong, LCSW, UC Davis School of Medicine. Panelists: Trish Stoltzfus, Parent of PSCer and Aly Dubrovsky, Joe Hatchett, Young Adult PSCers | Raising Kids with PSC: The Social Side (2.0MB) |
| Michael Dunn, OD, Optometrist | The Six Paths to Mindfulness (Caring for You Track) |
| Sunpreet Kaur, MD | Teen Q&A: Every Question is Fair Game (For Teens Only) |
| Stu Barnett, Certified Financial Planner and PSC Patient | Financial Planning for PSC Families to Stay on Track: Managing Financial Risk |
| Moderator: Jerome Schofferman, MD, Post-Transplant PSC Patient. Panelists: Fred Sabernick, Linda Waters, Rick Seifert, Heather Whiteman, PSC Patients | PSC Patients: The Psychological and Psychosocial Stress that Might Arise from Chronic Illness (0.5 MB) |
| Monika Sarkar, MD, and Monika Aldarondo, Post-Transplant PSC Patient, Host of PSC Mami Podcast | The Intersection of Women’s Health and Liver Disease (5.0 MB) |
| Steven Colquhoun, MD | Cholangiocarcinoma (20 MB) |
| James Tabibian, MD | Imaging Tests for PSC (13 MB) |
| Moderator: Monica Crowley, PSC Caregiver. Panelists: Richard and Jeanne Heys, Willie and Raquel McKinney | Couples Coping with PSC |
FRIDAY WELCOME DINNER
SATURDAY JUNE 23
GENERAL SESSION I
| Moderator | Kidist K. Yimam, MD |
| James Tabibian, MD |
The Microbiome in PSC: Hope or Hype Watch VideoDownload Slides (6.0 MB) |
| Valentina Medici, MD |
Diets and Nutrients in PSC Watch VideoDownload Slides (1.0 MB) |
| Christopher Bowlus, MD Aparna Goel, MD |
Ursodiol Therapy for PSC: Point/Counterpoint Watch VideoDownload Slides Bowlus (3.0 MB) Download Slides Goel (2.0 MB) |
| Yinka Davis, MD James Tabibian, MD |
Oral Vancomycin Therapy for PSC: Point/Counterpoint Watch VideoDownload Slides Davies (2.0 MB) Download Slides Tabibian (0.2 MB) |
| Tabibian, Medici, Bowlus, Goel, Davies |
Question and Answer – Panel Discussion Watch Video |
GENERAL SESSION II
| Moderator | Christopher Bowlus, MD |
| Marion Peters, MD |
Practical Approaches to Alleviating Your PSC Symptoms Watch VideoDownload Slides (0.7 MB) |
| Aparna Goel, MD |
Can We Predict the Future of Your PSC Progression? Watch VideoDownload Slides (1.0 MB) |
| Jennifer Guy, MD |
Liver Transplant for Patients with PSC Watch VideoDownload Slides (3.0 MB) |
| Peters, Goel, Guy |
Question and Answer – Panel Discussion Watch Video |
GENERAL SESSION III
| Moderator | James Tabibian, MD |
| Christopher Bowlus, MD |
PSC Partners Supported Research and Current Trends in PSC Research Watch VideoDownload Slides (44 MB) |
| Veronica Miller, PhD |
The PSC Forum: Updates and Future Directions Watch VideoDownload Slides (2.0 MB) |
| Bilal Hameed, MD |
Drugs in Development for PSC Watch VideoDownload Slides (9.0 MB) |
| Natesh Parashurama MD, PHd |
Current State of Stem Cells and Regenerative Medicine Research for PSC Watch VideoDownload Slides (97 MB) |
| Bowlus, Miller, Hameed, Parashurama |
Question and Answer – Panel Discussion Watch Video |
SATURDAY EVENING: DINNER LUAU & PHOTO BOOTH
SUNDAY JUNE 24
PEER GROUPS, FEEDBACK, AND WRAP UP
THANKS TO ALL THAT MADE THE 2018 CONFERENCE A HUGE SUCCESS!
2019 ANNUAL CONFERENCE
We are pleased to announce that PSC Partners Seeking a Cure’s 15th annual conference for PSC patients and caregivers will take place in Rochester, Minnesota from June 21-23, 2019. The conference will be held in partnership with the Mayo Clinic. Check back at pscpartners.org for more details!
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