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2019 CONFERENCE

PSC Partners Seeking a Cure’s 15th annual conference for PSC patients and caregivers was held in Rochester, Minnesota, from June 21-23, 2019, at the Mayo Civic Center in conjunction with Mayo Clinic.

QUICK LINKS

Thank you to Dr. Konstantinos Lazaridis at Mayo Clinic Rochester for assembling the excellent speakers who broadened our perspectives and provided hope to PSC patients and caregivers alike. Our special thanks to the Mayo Clinic and all our conference sponsors (SponsorshipPoster_2019).  We thank all the members of our community who generously donated their time and funds to make the PSC Partners Seeking a Cure conference a success.

Photograph acknowledgements to Kelly Shepherd.

PRE-CONFERENCE ACTIVITIES

FRIDAY, JUNE 21

FRIDAY MORNING BREAKOUT SESSIONS 1

Robert C. Huebert, M.D., Mayo Clinic The Basics of PSC (31 MB)
Julie K. Heimbach, M.D., Mayo Clinic Liver Transplantation for PSC in 2019 (24 MB)
Mounif El-Youssef, M.D., Mayo Clinic Dilshad Kassam-Lallani, BSN, MN, NP-PHC, Parent of Post-Transition PSCer Afsana Lallani, Post-Transition PSCer Raising Kids with PSC: The Medical Side of Pediatric PSC and Transitioning from Pediatric to Adult Care (4 MB)
Cindy Dunn, FNAO, Certified T’ai Chi Chih Instructor T’ai Chi Chih for PSC Patients and Caregivers (0 MB)
Matthew A. Bartlett, M.B., B.Ch., B.A.O., Mayo Clinic Complementary Medicine for PSC (0 .8 MB)
Randy Oates, Chief Operating Office, IronHealth (Retired), PSC Patient Navigating Medical Insurance (0 MB)
Douglas A. Simonetto, M.D., Mayo Clinic Liver Cirrhosis in PSC: Diagnosis and Management (4 MB)
Jerome Schofferman, M.D., Post-Transplant PSC Patient Sally Holland, PhD, PSC Caregiver PSC Caregivers: The Stresses and Rewards of Being a Caregiver (0.1 MB)
John E. Eaton, M.D., Mayo Clinic Lisa Pedicone, PhD, Executive Vice President, Clinical Affairs, Focus Medical Communications, Parent of a PSCer Clinical Trials in PSC: A to Z (6 MB)
Laura E. Raffals, M.D., Mayo Clinic IBD: A Comorbidity of PSC (4 MB)
Konstantinos N. Lazaridis, M.D., Mayo Clinic Sumera H. Rizvi, M.B.B.S., Mayo Clinic Learning About PSC in the Era of Social Media (1 MB)
Angela Cheung, M.D., Mayo Clinic PSC and Healthy Bones (5 MB)

FRIDAY DAY PHOTOS

FRIDAY AFTERNOON BREAKOUT SESSIONS 2

Andrea A. Gossard, APRN, C.N.P., Mayo Clinic Understanding Your Test Results (1 MB)
Tammy M. Kremers, APRN, C.N.P., Mayo Clinic Care After Liver Transplant (0.4 MB)
Mounif El-Youssef, M.D., Mayo Clinic Raising Kids with PSC: The Social Side (0.1 MB)
Michael Dunn, OD, Optometrist Mindfulness, the Path to Now
Angela Cheung, M.D., Mayo Clinic Teens Q&A: Every Question is Fair Game
Stu Barnett, AAMS®, CFP®, VP-Sr., CERTIFIED FINANCIAL PLANNER™ Charles Schwab and Co., Inc., PSC Patient Why Everyone Needs an Estate Plan
Jerome Schofferman, M.D., Post-Transplant PSC Patient PSC Patients: Coping with the Stress of Living with PSC (0.1 MB)
Laura E. Raffals, M.D., Mayo Clinic (IBD) Alina M. Allen, M.D., Mayo Clinic (PSC) PSC and IBD: Women’s Health Issues (0.3 MB)
Gregory J. Gores, M.D., Mayo Clinic Everything You Want to Know About Cholangiocarcinoma in PSC (6 MB)
Vinay Chandrasekhara, M.D., Mayo Clinic ERCP for the Diagnosis and Management of PSC (10 MB)
Moderators: Richard and Jeanne Heys Panelists: Drew and Cari Buckley Couples Coping with PSC (0 MB)
Nicholas F. LaRusso, M.D., Mayo Clinic Doctor, What’s Gonna Happen to Me? History of PSC Care (6 MB)

FRIDAY AFTERNOON GENERAL SESSION

Amit Sood, M.D. Mayo Clinic Stress Management and Resiliency Training (SMART)

FRIDAY WELCOME DINNER

SATURDAY JUNE 22

GENERAL SESSION 1

Moderator Robert C. Huebert, M.D., Mayo Clinic
Konstantinos N. Lazaridis, M.D., Mayo Clinic Genes and Environment in PSC
Watch Video | Download Slides (26 MB)
Gregory J. Gores, M.D., Mayo Clinic Animal Models in PSC
Watch Video | Download Slides (12 MB)
Nickie M. Francisco Ziller, R.D.N., L.D., Mayo Clinic Nutrition for PSC/IBD Patients
Watch Video | Download Slides (1.0 MB)
Moderator: Robert C. Huebert, M.D., Mayo Clinic Panelists: Speakers from presentations in General Session I Question and Answer – Panel Discussion
Watch Video

GENERAL SESSION II

Moderator John E. Eaton, M.D., Mayo Clinic
David N. Assis, M.D., Yale University Management of PSC and Quality of Life
Watch Video | Download Slides (1.0 MB)
Julie K. Heimbach M.D., Mayo Clinic Liver Transplantation & Organ Allocation in 2019
Watch Video | Download Slides (2.0 MB)
Aliya F. Gulamhusein, M.D., MPH Toronto General Hospital PSC Myth Busters
Watch Video | Download Slides (169 MB)
Moderator: John E. Eaton, M.D., Mayo Clinic Panelists: Speakers from presentations in General Session II Question and Answer – Panel Discussion
Watch Video

SATURDAY DAY PHOTOS

GENERAL SESSION III

Moderator Konstantinos N. Lazaridis, M.D., Mayo Clinic
John E. Eaton M.D., Mayo Clinic Biomarkers & Imaging
Watch Video | Download Slides (2.0 MB)
Keith D. Lindor, M.D., Arizona State University Landscape of Clinical Trials
Watch Video | Download Slides (2.0 MB)
David N. Assis, M.D., Yale University PSC Partners Supported Research
Watch Video | Download Slides (2.0 MB)
Veronica Miller, Ph.D., UC Berkeley School of Public Health Executive Director, Forum for Collaborative Research PSC Forum: Updates and Future Directions
Watch Video | Download Slides (6.0 MB)
Konstantinos N. Lazaridis, M.D. Mayo Clinic PSC 10 Year Forecast
Watch Video | Download Slides (26 MB)
Moderator: Konstantinos N. Lazaridis, M.D., Mayo Clinic Panelists: Speakers from presentations in General Session III Question and Answer – Panel Discussion
Watch Video

SATURDAY EVENING: DINNER (CAMPING THEME), KARAOKE & PHOTO BOOTH

SUNDAY JUNE 23

PEER GROUPS, FEEDBACK, AND WRAP UP

THANKS TO ALL THAT MADE THE 2019 CONFERENCE A HUGE SUCCESS!

2020 ANNUAL CONFERENCE

We are pleased to announce that PSC Partners Seeking a Cure’s 16th annual conference for PSC patients and caregivers will take place in Denver, Colorado from April 24-26, 2020. The conference will be held in partnership with the University of Colorado. Check back at pscpartners.org for future updates!

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