2019 CONFERENCE
PSC Partners Seeking a Cure’s 15th annual conference for PSC patients and caregivers was held in Rochester, Minnesota, from June 21-23, 2019, at the Mayo Civic Center in conjunction with Mayo Clinic.
QUICK LINKS
Thank you to Dr. Konstantinos Lazaridis at Mayo Clinic Rochester for assembling the excellent speakers who broadened our perspectives and provided hope to PSC patients and caregivers alike. Our special thanks to the Mayo Clinic and all our conference sponsors (SponsorshipPoster_2019). We thank all the members of our community who generously donated their time and funds to make the PSC Partners Seeking a Cure conference a success.
Photograph acknowledgements to Kelly Shepherd.
PRE-CONFERENCE ACTIVITIES
FRIDAY, JUNE 21
FRIDAY MORNING BREAKOUT SESSIONS 1
| Robert C. Huebert, M.D., Mayo Clinic | The Basics of PSC (31 MB) |
| Julie K. Heimbach, M.D., Mayo Clinic | Liver Transplantation for PSC in 2019 (24 MB) |
| Mounif El-Youssef, M.D., Mayo Clinic Dilshad Kassam-Lallani, BSN, MN, NP-PHC, Parent of Post-Transition PSCer Afsana Lallani, Post-Transition PSCer | Raising Kids with PSC: The Medical Side of Pediatric PSC and Transitioning from Pediatric to Adult Care (4 MB) |
| Cindy Dunn, FNAO, Certified T’ai Chi Chih Instructor | T’ai Chi Chih for PSC Patients and Caregivers (0 MB) |
| Matthew A. Bartlett, M.B., B.Ch., B.A.O., Mayo Clinic | Complementary Medicine for PSC (0 .8 MB) |
| Randy Oates, Chief Operating Office, IronHealth (Retired), PSC Patient | Navigating Medical Insurance (0 MB) |
| Douglas A. Simonetto, M.D., Mayo Clinic | Liver Cirrhosis in PSC: Diagnosis and Management (4 MB) |
| Jerome Schofferman, M.D., Post-Transplant PSC Patient Sally Holland, PhD, PSC Caregiver | PSC Caregivers: The Stresses and Rewards of Being a Caregiver (0.1 MB) |
| John E. Eaton, M.D., Mayo Clinic Lisa Pedicone, PhD, Executive Vice President, Clinical Affairs, Focus Medical Communications, Parent of a PSCer | Clinical Trials in PSC: A to Z (6 MB) |
| Laura E. Raffals, M.D., Mayo Clinic | IBD: A Comorbidity of PSC (4 MB) |
| Konstantinos N. Lazaridis, M.D., Mayo Clinic Sumera H. Rizvi, M.B.B.S., Mayo Clinic | Learning About PSC in the Era of Social Media (1 MB) |
| Angela Cheung, M.D., Mayo Clinic | PSC and Healthy Bones (5 MB) |
FRIDAY DAY PHOTOS
FRIDAY AFTERNOON BREAKOUT SESSIONS 2
| Andrea A. Gossard, APRN, C.N.P., Mayo Clinic | Understanding Your Test Results (1 MB) |
| Tammy M. Kremers, APRN, C.N.P., Mayo Clinic | Care After Liver Transplant (0.4 MB) |
| Mounif El-Youssef, M.D., Mayo Clinic | Raising Kids with PSC: The Social Side (0.1 MB) |
| Michael Dunn, OD, Optometrist | Mindfulness, the Path to Now |
| Angela Cheung, M.D., Mayo Clinic | Teens Q&A: Every Question is Fair Game |
| Stu Barnett, AAMS®, CFP®, VP-Sr., CERTIFIED FINANCIAL PLANNER™ Charles Schwab and Co., Inc., PSC Patient | Why Everyone Needs an Estate Plan |
| Jerome Schofferman, M.D., Post-Transplant PSC Patient | PSC Patients: Coping with the Stress of Living with PSC (0.1 MB) |
| Laura E. Raffals, M.D., Mayo Clinic (IBD) Alina M. Allen, M.D., Mayo Clinic (PSC) | PSC and IBD: Women’s Health Issues (0.3 MB) |
| Gregory J. Gores, M.D., Mayo Clinic | Everything You Want to Know About Cholangiocarcinoma in PSC (6 MB) |
| Vinay Chandrasekhara, M.D., Mayo Clinic | ERCP for the Diagnosis and Management of PSC (10 MB) |
| Moderators: Richard and Jeanne Heys Panelists: Drew and Cari Buckley | Couples Coping with PSC (0 MB) |
| Nicholas F. LaRusso, M.D., Mayo Clinic | Doctor, What’s Gonna Happen to Me? History of PSC Care (6 MB) |
FRIDAY AFTERNOON GENERAL SESSION
| Amit Sood, M.D. Mayo Clinic | Stress Management and Resiliency Training (SMART) |
FRIDAY WELCOME DINNER
SATURDAY JUNE 22
GENERAL SESSION 1
| Moderator | Robert C. Huebert, M.D., Mayo Clinic |
| Konstantinos N. Lazaridis, M.D., Mayo Clinic |
Genes and Environment in PSC Watch Video | Download Slides (26 MB) |
| Gregory J. Gores, M.D., Mayo Clinic |
Animal Models in PSC Watch Video | Download Slides (12 MB) |
| Nickie M. Francisco Ziller, R.D.N., L.D., Mayo Clinic |
Nutrition for PSC/IBD Patients Watch Video | Download Slides (1.0 MB) |
| Moderator: Robert C. Huebert, M.D., Mayo Clinic Panelists: Speakers from presentations in General Session I |
Question and Answer – Panel Discussion Watch Video |
GENERAL SESSION II
| Moderator | John E. Eaton, M.D., Mayo Clinic |
| David N. Assis, M.D., Yale University |
Management of PSC and Quality of Life Watch Video | Download Slides (1.0 MB) |
| Julie K. Heimbach M.D., Mayo Clinic |
Liver Transplantation & Organ Allocation in 2019 Watch Video | Download Slides (2.0 MB) |
| Aliya F. Gulamhusein, M.D., MPH Toronto General Hospital |
PSC Myth Busters Watch Video | Download Slides (169 MB) |
| Moderator: John E. Eaton, M.D., Mayo Clinic Panelists: Speakers from presentations in General Session II |
Question and Answer – Panel Discussion Watch Video |
SATURDAY DAY PHOTOS
GENERAL SESSION III
| Moderator | Konstantinos N. Lazaridis, M.D., Mayo Clinic |
| John E. Eaton M.D., Mayo Clinic |
Biomarkers & Imaging Watch Video | Download Slides (2.0 MB) |
| Keith D. Lindor, M.D., Arizona State University |
Landscape of Clinical Trials Watch Video | Download Slides (2.0 MB) |
| David N. Assis, M.D., Yale University |
PSC Partners Supported Research Watch Video | Download Slides (2.0 MB) |
| Veronica Miller, Ph.D., UC Berkeley School of Public Health Executive Director, Forum for Collaborative Research |
PSC Forum: Updates and Future Directions Watch Video | Download Slides (6.0 MB) |
| Konstantinos N. Lazaridis, M.D. Mayo Clinic |
PSC 10 Year Forecast Watch Video | Download Slides (26 MB) |
| Moderator: Konstantinos N. Lazaridis, M.D., Mayo Clinic Panelists: Speakers from presentations in General Session III |
Question and Answer – Panel Discussion Watch Video |
SATURDAY EVENING: DINNER (CAMPING THEME), KARAOKE & PHOTO BOOTH
SUNDAY JUNE 23
PEER GROUPS, FEEDBACK, AND WRAP UP
THANKS TO ALL THAT MADE THE 2019 CONFERENCE A HUGE SUCCESS!
2020 ANNUAL CONFERENCE
We are pleased to announce that PSC Partners Seeking a Cure’s 16th annual conference for PSC patients and caregivers will take place in Denver, Colorado from April 24-26, 2020. The conference will be held in partnership with the University of Colorado. Check back at pscpartners.org for future updates!
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