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Working together to provide research, education, and support for people affected by Primary Sclerosing Cholangitis

ANNUAL CONFERENCE FOR PATIENTS AND CAREGIVERS

April 26-28, 2013

In conjunction with UPMC at the Doubletree Hotel and Suites Downtown, Pittsburgh, PA

Thank you to Dr. Kapil Chopra and his colleagues for providing the excellent speakers who have broadened our perspectives and understanding of PSC. Our thanks to the University of Pittsburgh Medical Center, our 2013 conference Platinum Sponsor and ITW our Diamond Sponsor.  We are also indebted to all our conference sponsors:

Diamond Sponsors

Platinum Sponsors

Gold level sponsors

Dike and Rilee Ajiri
Jason and Jennifer Drasner
Steve and Joanne Grieme
Don and Ricky Safer
Ken and Patty Shepherd
Toyota Motor Sales USA
Anonymous Donor

Silver level sponsors

Genentech
Steve and Joanne Hatchett
The Michael Pearlman Family

Bronze level sponsors

Aubrey Goldstein and Caroline Vanneste
Peter and Helena Holmgren
Sigma-Tau Pharmaceuticals

We also thank all the members of our community who have generously donated their time and funds to the PSC Partners Seeking a Cure foundation.

PSC Partners Seeking a Cure is a 501(c) 3 nonprofit foundation that endeavors to find a cure for primary sclerosing cholangitis. Please see the details of our 2013 patient education conference by viewing the PowerPoint presentations which are posted here. Summaries of the general sessions are available in our post-conference newsletter edition. For more information about PSC Partners Seeking a Cure, go to www.pscpartners.org and click on “Join our Mailing List” button to receive news and information.

Photograph acknowledgements to Karen Pearlman, (K Pearlman Photography), unless otherwise stated.

Note to Readers:

PSC Partners does not provide specific medical advice, is not engaged in providing medical or professional services and does not endorse any medical or professional service obtained through information provided in this presentation.  Use of this presentation does not replace medical consultations with a qualified health or medical professional to meet the health and medical needs of you or a loved one.

A slide show of conference photographs by K Pearlman Photography is available here.

Thursday, April 25

6:00 PM - 9:00 PM Casual Get Together VILLA REALE PIZZERIA

FRIDAY April 26

Pre-conference Brunch Cruise - GATEWAY CLIPPER SHIP

Optional Afternoon Activities

Registration

Newcomer Orientation

Welcome Reception

SATURDAY April 27 (click title to see presentation)

Buffet Breakfast

Lunch

Breakout Sessions:

Breakout Sessions (presentation materials not available)

  • "FMLA: Finding Your Way Through The Family And Medical Leave Act And Other Employment Related Issues"
    "FMLA: Finding Your Way Through The Family And Medical Leave Act And Other Employment Related Issues"

    Tiffany Rotondo, PHR, Corporate Human Resources Generalist, The Jel Sert Company

  • "Panel of PSCers: Interactive Question and Answer Session"
    "Panel of PSCers: Interactive Question and Answer Session"

    Sandi Pearlman, Community Relations Chair, PSC Partners Seeking a Cure, PSC Patient, Panel Moderator
    Panelists: Corrine Perrett, Matt Ayuen, Arne Myrabo, Gail Larson

  • "Make a Difference: Effective Fundraising Made Easy"
    "Make a Difference: Effective Fundraising Made Easy"

    Ken Shepherd, Managing Partner, Miller Toyota & Warrenton Toyota, PSC Partners Board Member, PSC Parent

Wrap-up, Don and Ricky Safer

Banquet Dinner

SUNDAY April 28

Continental Breakfast 

  • General Session
    • PSC Partners Foundation Report
    • Announcements
    • Foundation Updates
  • Breakout sessions:
    • Teen PSCers
    • Female  PSCers in their 20s/30s
    • Male PSCers in their 20s/30s
    • Female PSCers
    • Male PSCers
    • Post-Transplant PSCers
    • Parents of Pediatric PSCers
    • Parents of Adult PSCers
    • Spouses/Caregivers of PSCers
    • Siblings & Other Caregivers of PSCers  

Break/snacks

Closing Remarks - Ricky Safer, PSC Partners Seeking a Cure

Complete your profile and join PSC Partners Seeking a Cure in advancing PSC research towards a cure.