Working together to provide research, education, and support for people affected by Primary Sclerosing Cholangitis
ANNUAL CONFERENCE FOR PATIENTS AND CAREGIVERS
April 26-28, 2013
In conjunction with UPMC at the Doubletree Hotel and Suites Downtown, Pittsburgh, PA
Thank you to Dr. Kapil Chopra and his colleagues for providing the excellent speakers who have broadened our perspectives and understanding of PSC. Our thanks to the University of Pittsburgh Medical Center, our 2013 conference Platinum Sponsor and ITW our Diamond Sponsor. We are also indebted to all our conference sponsors:
Diamond Sponsors
Platinum Sponsors
Gold level sponsors
Dike and Rilee Ajiri
Jason and Jennifer Drasner
Steve and Joanne Grieme
Don and Ricky Safer
Ken and Patty Shepherd
Toyota Motor Sales USA
Anonymous Donor
Silver level sponsors
Genentech
Steve and Joanne Hatchett
The Michael Pearlman Family
Bronze level sponsors
Aubrey Goldstein and Caroline Vanneste
Peter and Helena Holmgren
Sigma-Tau Pharmaceuticals
We also thank all the members of our community who have generously donated their time and funds to the PSC Partners Seeking a Cure foundation.
PSC Partners Seeking a Cure is a 501(c) 3 nonprofit foundation that endeavors to find a cure for primary sclerosing cholangitis. Please see the details of our 2013 patient education conference by viewing the PowerPoint presentations which are posted here. Summaries of the general sessions are available in our post-conference newsletter edition. For more information about PSC Partners Seeking a Cure, go to www.pscpartners.org and click on “Join our Mailing List” button to receive news and information.
Photograph acknowledgements to Karen Pearlman, (K Pearlman Photography), unless otherwise stated.
Note to Readers:
PSC Partners does not provide specific medical advice, is not engaged in providing medical or professional services and does not endorse any medical or professional service obtained through information provided in this presentation. Use of this presentation does not replace medical consultations with a qualified health or medical professional to meet the health and medical needs of you or a loved one.
A slide show of conference photographs by K Pearlman Photography is available here.
Thursday, April 25
6:00 PM - 9:00 PM Casual Get Together VILLA REALE PIZZERIA
FRIDAY April 26
Pre-conference Brunch Cruise - GATEWAY CLIPPER SHIP
Optional Afternoon Activities
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Victoria Veltri, JD, LLM, State Healthcare Advocate
Office of the Healthcare Advocate, Hartford, CT
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Interactive T’ai Chi Session – T’ai Chi for Health and HealingDavid Clippinger, PhD, Director of Still Mountain T’ai Chi & Chi Kung
Registration
Newcomer Orientation
Welcome Reception
SATURDAY April 27 (click title to see presentation)
Buffet Breakfast
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SESSION IAdam Slivka, MD, PhD, Moderator
Professor of Medicine, University of Pittsburgh Medical Center -
[Copyright Kapil Chopra, all rights reserved, 456 KB].
Kapil Chopra, MD, Director of Hepatology, Associate Professor of Medicine, University of Pittsburgh Medical Center -
[Copyright Nora Bergassa, all rights reserved, 807 KB].
Nora Bergasa, MD, Chief, Department of Medicine, Metropolitan Hospital Center, New York, NY, and Professor of Medicine, NY Medical College, Valhalla, NY -
[Copyright Christopher Hughes, all rights reserved, 2525 KB].
Christopher Hughes, MD, Associate Professor of Surgery, Surgical Director, Liver Transplantation Starzl Transplant Institute, University of Pittsburgh Medical Center -
SESSION IIKapil Chopra, MD, Moderator
Director of Hepatology, Associate Professor of Medicine, University of Pittsburgh Medical Center -
[Copyright Adam Slivka, all rights reserved, 1280 KB]
Adam Slivka, MD, PhD, Professor of Medicine, University of Pittsburgh Medical Center -
Presentation 5: "Metabolic Bone Disease in PSC Patients" (presentation unavailable)Mara Horwitz, MD, Associate Professor of Medicine, Division of Endocrinology, University of Pittsburgh School of Medicine
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[Copyright Annika Bergquist, all rights reserved, 377 KB]
Annika Bergquist, MD, PhD, Associate Professor, Karolinska University Hospital, Karolinska Institutet, Stockholm Sweden
Lunch
Breakout Sessions:
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[Copyright all rights reserved, 372 KB]
Kapil Chopra, MD, Director of Hepatology, Associate Professor of Medicine, University of Pittsburgh Medical Center -
[Copyright all rights reserved, 2605 KB]
David Binion, MD, Director, Nutrition Support Service; Co-Director, Inflammatory Bowel Disease Center; Director, Translational IBD Research, Division of Gastroenterology, Hepatology and Nutrition, UPMC Presbyterian Hospital; Professor of Medicine and Professor of Clinical and Translational Science, University of Pittsburgh School of Medicine -
"PSC in Children-The Same Disease?" (presentation unavailable)
Benjamin Shneider, MD, Professor of Pediatrics, University of Pittsburgh School of Medicine, Director of Pediatric Hepatology, Children's Hospital of Pittsburgh of UPMC
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[Copyright all rights reserved, 4793 KB]
Christopher Hughes, MD, Associate Professor of Surgery, Surgical Director Liver Transplantation, Starzl Transplant Institute, University of Pittsburgh Medical Center -
[Copyright all rights reserved, 279 KB]
Alison Jazwinski, MD, MHS, Assistant Professor, Division of Gastroenterology, Hepatology and Nutrition, University of Pittsburgh Medical Center -
[Copyright all rights reserved, 1178 KB]
Shahid Malik, MD, Clinical Assistant Professor of Medicine, Associate Program Director, Transplant Hepatology Fellowship, Division of Gastroenterology, Hepatology and Nutrition, University of Pittsburgh Medical Center -
[Copyright all rights reserved, 769 KB]
Jeremy Burke, DM, ALHC, Learning Consultant Aetna Disability Benefits -
[Copyright all rights reserved, 755 KB]
Dhiraj Yadav, MD, MPH, Associate Professor, Division of Gastroenterology, Hepatology and Nutrition, University of Pittsburgh Medical Center"Novel Optical Approaches for Screening and Diagnosing Cholangiocarcinoma" [Copyright all rights reserved, 1706 KB]
Randall E. Brand, MD, Professor of Medicine, Division of Gastroenterology, Hepatology and Nutrition, University of Pittsburgh Medical Center -
[Copyright all rights reserved, 1242 KB]
Eva Szigethy, MD, PhD, Associate Professor of Psychiatry, Pediatrics and Medicine, Medical Director of Visceral Inflammation and Pain Center, Division of Gastroenterology, University of Pittsburgh and Director, Medical Coping Clinic, Department of Pediatric Gastroenterology, Pittsburgh Children’s Hospital -
[Copyright all rights reserved, 525 KB]
Stacey Walsh, RN, CCTC, Clinical Transplant Coordinator, Thomas E. Starzl Transplantation Institute, University of Pittsburgh Medical Center. Jennifer Hollenberger, MSW, LSW, Clinical Social Worker, University of Pittsburgh Medical Center -
[Copyright all rights reserved, 2537 KB]
Abhinav Humar, MD, Thomas E. Starzl Professor in Transplantation Surgery, Clinical Director of Starzl Transplant Institute -
[Copyright all rights reserved, 2230 KB]
George Mazariegos, MD, FAC, Director of Pediatric Transplantation, Jamie Lee Curtis Professor of Surgery and Critical Care Medicine, Hillman Center for Pediatric Transplantation, Children's Hospital of Pittsburgh of University of Pittsburgh Medical Center -
[Copyright all rights reserved, 807 KB]
Annika Bergquist, MD, PhD, Associate Professor, Karolinska University Hospital, Karolinska Institutet, Stockholm, Sweden -
[Copyright all rights reserved, 1850 KB]
Eva Szigethy, MD, PhD, Associate Professor of Psychiatry, Pediatrics and Medicine, Medical Director of Visceral Inflammation and Pain Center, Division of Gastroenterology, University of Pittsburgh and Director, Medical Coping Clinic, Department of Pediatric Gastroenterology, Pittsburgh Children’s Hospital -
[Copyright all rights reserved, 547 KB]
Beverly Kosmach-Park, DNP, Clinical Nurse Specialist, Department of Transplant Surgery, Children's Hospital of Pittsburgh -
[Copyright all rights reserved, 96 KB]
Mike Pearlman , JD, PSC Parent, Panel Moderator
Panelists: Richard Ayuen, Eileen Pearlman, Karen Rountree, Scott Clouser -
[Copyright all rights reserved, 70 KB]
Mimi Funovits, RN, BS, CCTC, Panel Moderator, Clinical Transplant Coordinator II, Thomas E. Starzl Transplantation Institute, UPMC Montefiore Hospital
Panelists: Todd Clouser, Fred Sabernick, Alison Collins
Breakout Sessions (presentation materials not available)
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"FMLA: Finding Your Way Through The Family And Medical Leave Act And Other Employment Related Issues"Tiffany Rotondo, PHR, Corporate Human Resources Generalist, The Jel Sert Company
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"Panel of PSCers: Interactive Question and Answer Session"Sandi Pearlman, Community Relations Chair, PSC Partners Seeking a Cure, PSC Patient, Panel Moderator
Panelists: Corrine Perrett, Matt Ayuen, Arne Myrabo, Gail Larson -
"Make a Difference: Effective Fundraising Made Easy"Ken Shepherd, Managing Partner, Miller Toyota & Warrenton Toyota, PSC Partners Board Member, PSC Parent
Wrap-up, Don and Ricky Safer
Banquet Dinner
SUNDAY April 28
Continental Breakfast
- General Session
- PSC Partners Foundation Report
- Announcements
- Foundation Updates
- Breakout sessions:
- Teen PSCers
- Female PSCers in their 20s/30s
- Male PSCers in their 20s/30s
- Female PSCers
- Male PSCers
- Post-Transplant PSCers
- Parents of Pediatric PSCers
- Parents of Adult PSCers
- Spouses/Caregivers of PSCers
- Siblings & Other Caregivers of PSCers
Break/snacks
Closing Remarks - Ricky Safer, PSC Partners Seeking a Cure
Complete your profile and join PSC Partners Seeking a Cure in advancing PSC research towards a cure. Find information about clinical trials.
