PSC is a rare disease and not everyone “gets it.” Part of the mission of PSC Partners Seeking a Cure is to provide support to PSC Patients, families and caregivers. We provide support with in-person meetings, online support groups, and regional support groups where available.
One of the best ways to get support is to attend one of our Annual Conferences. Each year, PSC Partners Seeking a Cure holds a conference in association with a major medical center. Our conferences showcase extremely informative academic and medical sessions, and allow attendees to meet people who deal with many of the same questions and issues. Learn about the location and date for our next conference and start making plans to attend. Recent conferences have been held in New Haven, Dallas, Denver, Pittsburgh and other cities. Read more about previous conferences including the agendas and presentations (where available).
PSC Partners Online Groups
PSC Partners provides online support groups where you can ask questions and receive emotional support. Remember that even though PSC is rare, there are thousands of people around the world who live with PSC. Our online groups are appropriate for patients, caregivers, family members, friends, or other interested parties.
Note that our online support groups are hosted on Facebook and you will need an account to access these resources.
Local/Regional/International Support Groups