PSC Partners Seeking a Cure Statement on Diversity, Equity, and Inclusion

Posted: January 2022

At PSC Partners Seeking a Cure, our mission is to drive research to identify treatments and a cure for primary sclerosing cholangitis (PSC), while providing education and support for those impacted by this rare disease. We recognize that under-represented and disadvantaged patients, families, and caregivers endure much greater challenges due to inequitable treatment and lack of support throughout the healthcare system. We cannot accomplish our mission without promoting equitable access to PSC treatments, education, and support for all living with and impacted by PSC.

We are grateful to community members who have brought attention to opportunities to take action toward ensuring diversity, equity, and inclusion (DEI) across our organization and community. We acknowledge that our prior DEI efforts have not been as robust as we intended, and we are committed to growing and improving as an organization while fostering a sense of belonging for everyone. We appreciate the continued dialogue that helps us to learn and evolve in our journey of meaningful change and growth.  

Diversity enriches and strengthens us, and we aim to foster a sense of inclusivity and belonging.

PSC Partners is committed to: 

1. Pursuing diversity, equity, and inclusion within our staff, board of directors, and among our broader community.
2. Championing diversity among our patient advocates, invited speakers, and research collaborators, and promoting diversity, equity, and inclusion across all of our educational and support programs.
3. Striving to improve outcomes and quality of life for all living with PSC, acknowledging that systemic barriers contribute to health inequity and culminate in unacceptable, disparate outcomes for marginalized groups. 
4. Working to identify and eradicate health disparities within the PSC community, while honoring the fundamental value and dignity of all people living with PSC.

As we move forward, we will take action to enhance diversity, equity, and inclusion within our team and across the PSC community. We look forward to sharing and discussing our progress with you openly and with full transparency. Thank you for being a part of this important journey.

CLICK HERE for a downloadable copy of our DEI statement.