Skip to main content

Events

Have an event that would be of interest to the PSC community? Send info. to contactus@pscpartners.org

Rare Disease Day NORD - Wear Your Stripes and Post on Social Media

Monday, February 28, 2022

ABOUT RARE DISEASE DAY®
It’s a day to raise awareness of the over 7,000 rare diseases that impact over 300 million people globally!

The National Organization for Rare Disorders (NORD) is the official U.S. partner for Rare Disease Day. They work with EURORDIS (Rare Diseases – Europe) and others all around the world to drive an international campaign that shines a light on rare diseases and advocates for health equity for all those living with a rare disease. Click button below to visit the international Rare Disease Day site for additional information and resources at rarediseaseday.org.

On this site you can find ways to get involved in events and activities taking place across the United States.

Complete your profile and join PSC Partners Seeking a Cure in advancing PSC research towards a cure.