Skip to main content

Events

A line of people in red shirts are standing next to bicycles and cheering

Have an event that would be of interest to the PSC community? Send info. to contactus@pscpartners.org

Rare Disease Week on Capitol Hill

Tuesday, February 28, 2023Thursday, March 2, 2023

Hosted by the Rare Disease Legislative Advocates (a program of the EveryLife Foundation for Rare Diseases), Rare Disease Week brings together rare disease advocates from all walks of life to make their voices heard by their Members of Congress. Participants are educated on policy proposals impacting the rare disease community and provided opportunities to advocate for policy changes directly to their Members of Congress.

Complete your profile and join PSC Partners Seeking a Cure in advancing PSC research towards a cure. Find information about clinical trials.