Events

The 2024 NORD® Living Rare, Living Stronger® Patient and Family Forum will be held in Los Angeles, CA, at the Hilton Universal City on June 8. After six years, they are excited to bring this program to the west coast! This event will bring together the incredible rare disease community for a day filled with learning, networking, and relationship building. The Living Rare Forum is an opportunity for people living with rare diseases and their families to come together, often for the first time, to gain practical knowledge on how to manage their health and live their best rare lives.

Program topics often include sessions about how to advocate for yourself in the healthcare system, how to coordinate your medical care team, and how get involved in rare disease research and advocacy. Click link below to learn more about this exciting event, including information on Travel & Lodging assistance, registration and the agenda coming soon!