Living with PSC Podcast
PSC Partners Seeking a Cure is pleased to present Living With PSC, a podcast moderated by Media Producer Niall McKay. Each month, this podcast explores the latest research and knowledge about PSC. From patient stories to the latest research updates from PSC experts to collaborations that are necessary to find better treatments and a cure, this podcast has it all!
Episode 1: Ricky Safer: A Patient’s Perspective
In Episode 1, Niall speaks with Ricky Safer, Founder and CEO of PSC Partners Seeking a Cure
Episode 2 – Dr. Chris Bowlus: Diet & Emerging Trends
In the second episode of the Living with PSC podcast, Niall McKay interviews Dr. Chris Bowlus about diet and some of the emerging treatments for PSC. Dr. Bowlus is a Professor and Division Chief of Gastroenterology and Hepatology at the University of California, Davis, and was co-host of our 2018 Conference in Sacramento. He is also co-chair of PSC Partners’ Scientific/Medical Advisory Committee and scientific head of the PSC Partners Registry.
Episode 3 – Dr. Scott Bea: Living with the Uncertainty of PSC
In the third episode of Living with PSC, Niall McKay interviews Dr. Scott Bea about the uncertainty of living with PSC. Dr. Bea is a Clinical Psychologist at the Cleveland Clinic.
Episode 4 – A Conversation with Dr. Gideon Hirschfield
In the fourth episode of Living with PSC, Niall McKay interviews Dr. Gideon Hirschfield about a variety of topics related to PSC. Dr. Hirschfield is a member of PSC Partners’ Scientific/Medical Advisory Committee.
Episode 5 – Dr. Cyriel Ponsioen: Fecal Microbiota Transplantation
In the fifth episode of Living with PSC, Niall McKay interviews Dr. Cyriel Ponsioen about Fecal Microbiota Transplantation (FMT). Dr. Ponsioen is a senior staff member at the Department of Gastroenterology & Hepatology at the Academic Medical Center in Amsterdam, and is a member of PSC Partners’ Scientific/Medical Advisory Committee.
Episode 6 – Trish Stoltzfus: The New ICD-10-CM Code for PSC
In the sixth episode of Living with PSC, Niall McKay interviews Trish Stoltzfus, professional medical coder and mother of a PSC patient, about the new ICD-10 code for primary sclerosing cholangitis (K83.01).
Episode 7 – Dr. Julie Heimbach: Liver Transplantation and PSC
In the seventh episode of Living with PSC, Niall discusses liver transplantation and PSC with Dr. Julie Heimbach, transplant surgeon and surgical director of liver transplantation at Mayo Clinic in Rochester, MN.
Episode 8 – Dr. Heather Francis: Impact of URSO on PSC
In the eighth episode of Living with PSC, Niall McKay discusses the influence of the medication Ursodiol (aka URSO and UDCA) on PSC, including the impact of combining it with antihistamines, with Dr. Heather Francis, PhD, associate professor at the Texas A & M College of Medicine and recipient of a PSC Partners research grant.
Episode 9 – Dr. Konstantinos Lazaridis: The Interaction Between Genetics and Environmental Exposures in PSC
In the ninth episode of Living with PSC, Niall McKay discusses the interaction between genetics and environmental exposures in PSC, with Dr. Konstantinos Lazaridis from Mayo Clinic Rochester. Dr. Lazaridis has received multiple PSC Partners research grants.
Episode 10 – Dr. Valentina Medici: Nutrition and PSC
In the tenth episode of Living with PSC, Niall McKay discusses nutritional guidance for PSC patients, with Dr. Valentina Medici, Associate Professor, University of California Davis.
Episode 11 – Monika Aldarondo: Motherhood and PSC
In the 11th episode of Living with PSC, Niall McKay discusses motherhood and PSC with Monika Aldarondo, a PSCer juggling parenthood and her rare disease.
Episode 12 – John Crowley: Living Donor Transplants and PSC
In the 12th episode of Living with PSC, Niall McKay discusses living donor liver transplants and PSC with John Crowley, whose brother was his living donor.
Episode 13 – PSC Partners Conference Conversations
Episode 14 – Dr. James Tabibian, Vancomycin as a Treatment for PSC
In the 14th episode of Living with PSC, Media Producer Niall McKay has a conversation with Dr. James Tabibian, a gastroenterologist and director of endoscopy and resident research director at Olive View-UCLA Medical Center, about the possible use of Vancomycin as a treatment for primary sclerosing cholangitis (PSC).